dry eyes and mouth?: hi again all! I... - Pernicious Anaemi...

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dry eyes and mouth?

Lhood08 profile image
7 Replies

hi again all!

I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to convince myself that my super dry eyes and mouth could be from one of those things (low iron or reversing out symptom) rather than Sjogren’s. My rheumatologist isn’t convinced it’s that, but I don’t know any other explanation. Would love your input and experience!

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Lhood08
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7 Replies
LWhelan profile image
LWhelan

I also have super super dry eyes and mouth and my rheumatologist wasn’t convinced either that it was Sjogrens but I kept tearing the top layer of my eyes due to the dryness so she put me on pilocarpine tablets and eye drops and nightly gel. I now now easily manage it 👍

am111 profile image
am111

I get dry mouth from B12 deficiency. Haven't noticed dry eyes though.

pitney profile image
pitney

I have had very dry eyes,mouth, and very dry skin in general from just before I was diagnosed with PA. I would also wake in the night because my throat was so dry, have been better since SI once a month but I do use eye drops now as and when I think I need them.

Nackapan profile image
Nackapan in reply topitney

I too now have sn extremely dry scalp and dry skin .I use lubricating Eye drops from the opticusns .

Valentine on lips

Eye area cream.

Also got extra dry inner ears of all things that once got infected sp have to use a plain exycema cream to ketp moisturised .

Ypu are not alone !!

doityourself profile image
doityourself

I use 2 types of eyedrops for dry eyes also have dry mouth but have put that down to pre diabetes. I've come to the conclusion that if you have PA there's a good chance of many so called unrelated conditions and symptoms.(Sorry about italics) 😬

FancyPants54 profile image
FancyPants54

You can get dry everything from being hypothyroid and I'm afraid to say that if the NHS says your thyroid levels are normal it means nothing. In the US if your TSH is over 3 you are diagnosed hypothyroid and treatment commences. Here they like us to suffer until our TSH is over 10 before they will admit we have a problem and prescribe too low a dose and probably keep you on that too low dose for too long!

Join the thyroid board on this site. You will learn a lot and hopefully be able to advocate for yourself better as a result.

Hashimoto's will come in swings so if you are in a hypo swing everything will feel worse.

pitney profile image
pitney in reply toFancyPants54

couldnt agree more👍

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