Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for February 2024

B12 injections out of stock for a long time

My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long...

My last post was regarding this but I don’t know what date that was. Versandapo....

Ryaan

•4 months ago

14 Replies

B12 over 4000 with injections, any need to worry?

Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro....

Hello lovely people, I've been SI 1500ug twice weekly since mid December as a b...

Bertiepuss

•4 months ago

31 Replies

Courage

There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a...

There seems to be a misconception that it takes courage to make the rational cho...

WIZARD6787

•4 months ago

5 Replies

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what is the difference?

Is there any difference between these 2 products, apart from the fact that one is available and the other sold out? https://prnt.sc/yJRttE79C1vd...

Is there any difference between these 2 products, apart from the fact that one i...

totallyFrustrated

•4 months ago

20 Replies

Which Brand B12 NHS injections please ?

My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the...

My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation ...

Spritze

•4 months ago

15 Replies

Flying with b12 medication

Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank...

Good evening, Just wondering, if a person ever needs to travel (fly) with their ...

Suffering_sunny

•4 months ago

8 Replies

High Folate with PA terrible GP

Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER...

Hello everyone, Im afraid this might be a little long, but i hope someone can he...

EllaNore

•4 months ago

64 Replies

A positive tale...so far

Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12...

Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treat...

Myoldcat

•4 months ago

69 Replies

Supplies of b12 injections

Hi everyone, hope you are all ok. I need to order some more b12, where is the best place to order it from at the moment. Many thanks🙏🙏

Hi everyone, hope you are all ok. I need to order some more b12, where is the be...

Mrsmr

•4 months ago

18 Replies

B12 loading dose

Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a stroke in the Pons 3 years ago I had a message from the GP this morning to say...

Hi I am diagnosed with MS Trigeminal Neuralgia and hughes syndrome I also had a ...

mully

•4 months ago

4 Replies

RBC advice

Hi everyone! I hope you are all doing better than yesterday and that tomorrow will be even better. I have been SI twice daily and taking all cofactors for...

Hi everyone! I hope you are all doing better than yesterday and that tomorrow wi...

brenanddave

•4 months ago

16 Replies

Ferritin and Iron levels

After an infusion three months ago my ferritin has increased from 18 to 202 but my iron is still only 11 a slight increase from 8 My RBD is still in the...

After an infusion three months ago my ferritin has increased from 18 to 202 b...

davina70

•4 months ago

11 Replies

Starting B12 Injections - What To Expect?

Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, one every other day for 2 weeks then one every three months. I just wondered...

Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, o...

Hidden

•4 months ago

18 Replies

Zentiva

Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoules

Has anyone tried this???? .. . . . ZENTIVA Vitamin B 12 Lichtenstein Ampoule...

OldmanD

•4 months ago

12 Replies

If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?

Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels...

Hi Everyone, Im a bit out of my depth here and wondered if you could help plea...

Gillybean1

•4 months ago

9 Replies

Neurological Symptoms of B12

Hi, I just wondered if anyone can confirm the neurological symptoms of B12 deficiency for me please. I'm currently fighting with the GP as I think I need more...

Hi, I just wondered if anyone can confirm the neurological symptoms of B12 defic...

Kma123

•4 months ago

25 Replies

I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?

I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel...

I had low b12, took ppi and h2 before Mt body crashed. But I also realised that ...

Suffering_sunny

•4 months ago

9 Replies

NAC with ferritin deficiency or PA

Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could...

Hi all. Just thought I’d pop in and ask my new friends if they know of any reaso...

MLJ2024

•4 months ago

30 Replies

Fuming, daughter so ill

So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all...

So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loadin...

Polo22

•4 months ago

53 Replies

Generic B12-symptoms news article

Occasionally I see what I call a generic news article on issues pertaining to B12 deficiency. Typically the articles are not very good, misrepresenting some...

Occasionally I see what I call a generic news article on issues pertaining to B1...

WiscGuy

•4 months ago

6 Replies

B vits pyridoxal-5-phosphate (vitamin B6)

What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitamin B6) in? What else do people take other than potassium rich diet and B...

What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitam...

Rachael887

•4 months ago

4 Replies

Angular Chelities

Hi,Does anyone suffer with angular Chelities and if so how do you control it? I have had episodes of it for a number of years and it normally clears up within...

Hi,Does anyone suffer with angular Chelities and if so how do you control it? I ...

HKAnne

•4 months ago

4 Replies

Active b12 levels normal - can it still be PA??

Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?

Hello everyone, I am wondering if you can have normal or high active b12 levels ...

Suffering_sunny

•4 months ago

3 Replies

Buying Hydroxocobalamin in Spain

Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I...

Hello, my GP did allow me a prescription (usually an annual one) but this time o...

pinkpaddleboarder

•4 months ago

5 Replies

Iron plus zinc better for iron deficiency anemia

reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined...

reading about zinc I came across the following article. I mean it focuses on ch...

B12life

•4 months ago

7 Replies

B12 or Menopause?

In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 loading doses into the beginning of January plus a month of folic acid and felt...

In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 lo...

UpsyDaisy2

•4 months ago

12 Replies

FBC Test results help please

Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and...

Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B1...

tzracer

•4 months ago

12 Replies

Has Anyone Watched The Film?

Whilst looking online elsewhere at B12 issues I came across a film (American) which on further investigation was a dramatisation of Sally Pacholok’s book ‘It...

Whilst looking online elsewhere at B12 issues I came across a film (American) wh...

B12again

•4 months ago

11 Replies

haemoglobin values.

hello good souls. I have had PA for 40 years. My haemoglobin level is always around 103 and ferrous normal. it is always considered to be expected in view...

hello good souls. I have had PA for 40 years. My haemoglobin level is always ...

Yingtong22

•4 months ago

4 Replies

NICE - your views and experiences

It appears that NICE are asking people to take part in a survey. I have not (yet) done so - therefore cannot comment on the questions! In general, it...

It appears that NICE are asking people to take part in a survey. I have not (yet...

helvella

•4 months ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2024

B12 injections out of stock for a long time

B12 over 4000 with injections, any need to worry?

Courage

what is the difference?

Which Brand B12 NHS injections please ?

Flying with b12 medication

High Folate with PA terrible GP

A positive tale...so far

Supplies of b12 injections

B12 loading dose

RBC advice

Ferritin and Iron levels

Starting B12 Injections - What To Expect?

Zentiva

If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?

Neurological Symptoms of B12

I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?

NAC with ferritin deficiency or PA

Fuming, daughter so ill

Generic B12-symptoms news article

B vits pyridoxal-5-phosphate (vitamin B6)

Angular Chelities

Active b12 levels normal - can it still be PA??

Buying Hydroxocobalamin in Spain

Iron plus zinc better for iron deficiency anemia

B12 or Menopause?

FBC Test results help please

Has Anyone Watched The Film?

haemoglobin values.

NICE - your views and experiences

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