Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for February 2024

I have ALL of the symptoms of PA and it is ruining my life. My GPs won't look further.

Hello, I have been suffering for a year with all of the symptoms of PA. My b12 levels have fallen from 550 to 280 within a year... my b12 tests come back low...

Hello, I have been suffering for a year with all of the symptoms of PA. My b12 l...

Suffering_sunny

•4 months ago

49 Replies

NHS in NI

There are some on here who are absolutely brilliant at advice. . . . Bookish, Narwhal just two of so many who take the time to answer often the same queries...

There are some on here who are absolutely brilliant at advice. . . . Bookish, N...

OldmanD

•4 months ago

20 Replies

B12 order

Just thought I'd post this info,....All suppliers I tried today were out of the Panpharma b12 Depot ( Hydroxocobalamin ) so, I've ordered Panpharma...

Just thought I'd post this info,....All suppliers I tried today were out of the ...

WWWJAN

•4 months ago

10 Replies

Want to take advantage of all our features? Just log in!

Ferritin Questions

Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low...

Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylf...

Monkharris

•4 months ago

16 Replies

10yo daughters results…HELP!

Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues....

Hello, I have posted before regarding my daughter who is 10yo but we have just h...

RachelP03

•4 months ago

24 Replies

What deficiencies could B12 injection cause?

Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini...

Some of you might remember me writing about how, since moving to Pascoe vials fr...

Sunnysidoop

•4 months ago

25 Replies

Help please

Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B12 depot and Hevert B12 depot hydroxocobalamin acetate ....I am looking to...

Hi can anyone tell me....is there a difference between Hevert hydroxocobalamin B...

WWWJAN

•4 months ago

9 Replies

B12 expiry date

I ordered from Germany last year, not realising the expiry date. I have 2 boxes of 10 ampoules that expired December 2023.. 😕 can I still use them.On a...

I ordered from Germany last year, not realising the expiry date. I have 2 boxes ...

pinkpaddleboarder

•4 months ago

8 Replies

Curious. . . . . Cobalamin Germany

I see people regularly ask where to get Cobalamin injectables and I see pharmacies mostly in Germany I also see all kinds of instructions about how to get the...

I see people regularly ask where to get Cobalamin injectables and I see pharmaci...

OldmanD

•4 months ago

24 Replies

Hyper/hyper thyroidism?

Following recent scan of saliva glands, which were normal, my thyroid was noted as being “dark”? As I had a partial thyroidectomy 40 years ago and do not take...

Following recent scan of saliva glands, which were normal, my thyroid was noted ...

Beattie-75

•4 months ago

2 Replies

Why I now use Methylcobalamin rather than any other form.

I reviewed the medical field's rationale for prescribing whatever form they preferred and found the rationale based on retention times as established by the...

I reviewed the medical field's rationale for prescribing whatever form they pref...

WIZARD6787

•4 months ago

14 Replies

Antidepressants

Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on...

Hi all, Increased anxiety has become one of my worst symptoms of B12 deficien...

Pa234aw

•4 months ago

54 Replies

Alzheimer's drug - Panorama

Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for Alzheimer's? The presenter reveals how the drug causes major side effects and...

Has anyone seen the recent Panorama programme on Lecanumab, the latest drug for ...

Pickle500

•4 months ago

20 Replies

Need help with results

can anyone help me to understand my results Symptoms are plentiful but in the main it’s the exhaustion, breathlessness, brain fog and numbness that trouble...

can anyone help me to understand my results Symptoms are plentiful but in the ...

Doeyditdot

•4 months ago

6 Replies

Ferritin and B12D/PA

Some time ago (on this forum?) I read that 80% of PA people had peripheral neuropathy and 20% did not. I have dizziness, brain fog and tinnitus but not PN. I...

Some time ago (on this forum?) I read that 80% of PA people had peripheral neuro...

Orchard33

•4 months ago

10 Replies

Apple cider vinegar gummies

Hi, although I tested IF antibody negative, I'm experiencing nasty gastritis that I think is linked to low stomach acid. Long term I feel I'll need to acidify...

Hi, although I tested IF antibody negative, I'm experiencing nasty gastritis tha...

Myoldcat

•4 months ago

51 Replies

Help Needed! Have I got Pernicious Anaemia?

I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also...

I hope this isn't too long and/or too boring. I suspect I have PA but as with a...

Grannypants

•4 months ago

21 Replies

Advice

Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022...

Hi, I'm not sure if this is the right place to post, but im looking for some adv...

Kma123

•4 months ago

18 Replies

Low B12 but Negative Parietal Cell Autoantibodies

Hi! I had some blood tests done last week (a brief history - I haven’t been 100% since I had Covid 14 months ago and been suffering with extreme tiredness and...

Hi! I had some blood tests done last week (a brief history - I haven’t been 100%...

Hidden

•4 months ago

17 Replies

Why would Active B12 blood test not be recognised by GP when I have lots of symptoms?

I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of...

I had previously had a blood test for B12 which was apparently normal if a littl...

GSDLover17

•4 months ago

21 Replies

Advice moving forward?

So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6...

So I recently had blood tests that showed low b12, iron and vit D. Was prescrib...

Dan444

•4 months ago

12 Replies

Hospital operation

To those who know Cecily she wants you all to know has had her operation yesterday was painful but sucessful with a few post op complications will update you...

To those who know Cecily she wants you all to know has had her operation yesterd...

cannyscotsman

•4 months ago

3 Replies

B12 deficiency v. Ferritin deficiency

Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the...

Hi everyone. Some of you may have come across one of my posts this week and may ...

MLJ2024

•4 months ago

24 Replies

sourcing b12

I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative do you use? Hoping to stay injecting hydroxocobalamin as my body hates change....

I’ve been unable to get hold of my usual panpharma b12 for SI. What alternative ...

Pepperpots302

•4 months ago

7 Replies

Opinions

If I was to list my blood test results on here would people give their opinion on what they think it all means collectively?

If I was to list my blood test results on here would people give their opinion o...

Popcorn12345

•4 months ago

11 Replies

Informing GP of sourcing own supplies

Hi, as some of you are aware I am in the process of writing to my GP and my MP. My GP does not know that I source my own supplies of B12. I was going to put...

Hi, as some of you are aware I am in the process of writing to my GP and my MP. ...

BeachArt

•4 months ago

45 Replies

on b12 treatment, when start folic acid?

Hi all, I was able to feel better over the last year with the help of this forum, a big thank you. My problem started with neurological symptoms without...

Hi all, I was able to feel better over the last year with the help of this forum...

Kat_88

•5 months ago

10 Replies

Confused again 😕

How do you know if your intrinsic factor antibody blood test is good or bad?

Popcorn12345

•5 months ago

7 Replies

Oral B12

So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also...

So i am fully aware that those of us with PA don't absorb b12 through our diets,...

FatThumbs

•5 months ago

17 Replies

Heartburn

Hi All. I've read some contradictory things on this subject, maybe you can help clear things up. I have PA, also Psoriatic Arthritis for whatever that is...

Hi All. I've read some contradictory things on this subject, maybe you can help ...

FatThumbs

•5 months ago

16 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2024

I have ALL of the symptoms of PA and it is ruining my life. My GPs won't look further.

NHS in NI

B12 order

Ferritin Questions

10yo daughters results…HELP!

What deficiencies could B12 injection cause?

Help please

B12 expiry date

Curious. . . . . Cobalamin Germany

Hyper/hyper thyroidism?

Why I now use Methylcobalamin rather than any other form.

Antidepressants

Alzheimer's drug - Panorama

Need help with results

Ferritin and B12D/PA

Apple cider vinegar gummies

Help Needed! Have I got Pernicious Anaemia?

Advice

Low B12 but Negative Parietal Cell Autoantibodies

Why would Active B12 blood test not be recognised by GP when I have lots of symptoms?

Advice moving forward?

Hospital operation

B12 deficiency v. Ferritin deficiency

sourcing b12

Opinions

Informing GP of sourcing own supplies

on b12 treatment, when start folic acid?

Confused again 😕

Oral B12

Heartburn

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive