Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2023

Can high B12 levels actually turn out to be B12 deficiency.

Hi M54 Have recently got bloods back from medichecks was an advanced thyroid test. Have basically suffered from an under active thyroid for over 4 years,...

Hi M54 Have recently got bloods back from medichecks was an advanced thyroid tes...

gerrycrilley1

•6 months ago

35 Replies

B12 expiry date

Hi all. I have around 20 vials of B12 and have just checked the expiry date. It is the end of this month! 🙄Is the expiry date fixed, or am I able to use them...

Hi all. I have around 20 vials of B12 and have just checked the expiry date. It ...

Wellington1

•6 months ago

7 Replies

Interesting

At least I think so. I have started to experience the pins and needles of Paresthesia. I have never experienced this symptom before. It does not worry me as...

At least I think so. I have started to experience the pins and needles of Pare...

WIZARD6787

•6 months ago

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Bruising

My B12 deficiency causes bruising. It is intermittent and not blessed by the physicians I have worked with. Pretty much the tests they have taken do not show...

My B12 deficiency causes bruising. It is intermittent and not blessed by the p...

WIZARD6787

•6 months ago

3 Replies

Stuck in my Craw.

Someone on this forum shared that some medic indicated that they could not condone self injecting. I was livid to the point I could not respond at the time....

Someone on this forum shared that some medic indicated that they could not condo...

WIZARD6787

•6 months ago

5 Replies

too much or not enough???

been s/I ing now for 20 days or so and feeling rotten. Particularly today ataxia awful, fall over every time I close my eyes. This is worse than it has ever...

been s/I ing now for 20 days or so and feeling rotten. Particularly today ataxia...

totallyFrustrated

•6 months ago

6 Replies

Vagus nerve stimulation'

I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral...

I've posted here a few times to discuss gut health for those of you suffering fr...

expatkerry

•6 months ago

16 Replies

How can you get homocysteine test on NHS

I’ve had an under active thyroid for many years and now I think may be B12 deficient too. Also have high blood pressure. I’ve been doing a lot of research...

I’ve had an under active thyroid for many years and now I think may be B12 defic...

HighlandMo

•6 months ago

17 Replies

Bruising

hi all Does anyone else find that they bruise really easily? I am constantly covered in bruises especially on my legs. I’m not particularly clumsy so Just...

hi all Does anyone else find that they bruise really easily? I am constantly co...

chloeg91

•6 months ago

8 Replies

Atypical Pernicious Anaemia

Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".

Hi All, If you have any spare time...I found some interesting articles when I s...

Sleepybunny

•6 months ago

12 Replies

Iron infusion

Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will...

Finally after many many months I found a sympathetic GP who referred me for an i...

davina70

•6 months ago

9 Replies

Air Purifiers

This may be off topic bit I have Hypothyroidism and also have a rare blood disorder that can react to viruses and want to try and get back to a more normal...

This may be off topic bit I have Hypothyroidism and also have a rare blood disor...

thyreoidea

•6 months ago

8 Replies

3-Ds, Disbelief, Discrimination & Delays

Dear All, I feel it imperative as a community to discuss these in an open, safe and respectful way. Please note this is by no means discounting our male...

Dear All, I feel it imperative as a community to discuss these in an open, safe...

Narwhal10

•6 months ago

57 Replies

PA and oral B12 supplements

I have recently been diagnosed with PA and I’ve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I...

I have recently been diagnosed with PA and I’ve had an initial booster course of...

Pa234aw

•6 months ago

14 Replies

Help me find a post please. Male PA member linked a journal article about his success with an innovative depression procedure.

I thought I saved it for a loved one, but can not find it. The member had a procedure done that involved brain stimulation for depression, that still existed...

I thought I saved it for a loved one, but can not find it. The member had a proc...

Litatamon

•6 months ago

6 Replies

Three years in

Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive....

Today three years ago I walked into a emergency room. I could only walk 60 yards...

WIZARD6787

•6 months ago

15 Replies

British medical journal publication

https://www.bmj.com/content/bmj/383/bmj-2022-071725.full.pdf hope your GP /practice nurse reads this! If not send them the link!

https://www.bmj.com/content/bmj/383/bmj-2022-071725.full.pdf hope your GP /pra...

LadyBothwell

•6 months ago

16 Replies

PA/b12 and ferratin

Hi, extremely confused here, I have been seeing a neurology specialist for cluster headaches, my last appointment I mentioned that I'm mixing my words up and...

Hi, extremely confused here, I have been seeing a neurology specialist for clust...

Mammymonster

•6 months ago

3 Replies

B12 help

Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771)....

Following on from previous post I have an under active thyroid (Hashimoto’s) a...

Denny39

•6 months ago

7 Replies

Having trouble ordering b12 as there is apparently a shortage in Australia. Help!!

I am in New Zealand but ordered my B12 from Australia. Without warning, I have just discovered there is a shortage that may go on to as far off as March next...

I am in New Zealand but ordered my B12 from Australia. Without warning, I have j...

brenanddave

•6 months ago

23 Replies

Anybody left with servere virtigo after covid ?

I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided...

I caught covid after visiting the hospital for an MRI to look at my gastric issu...

Jillymo

•6 months ago

18 Replies

B12 thyroid

Hi, I am new to the PA site. I was diagnosed with under active thyroid in 2021 which I’m still struggling daily with. I have peripheral neuropathy in legs...

Hi, I am new to the PA site. I was diagnosed with under active thyroid in 202...

Denny39

•6 months ago

7 Replies

Testing for Intrinsic Factor - borderline results

Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder...

Hello to you all on this precious platform, thank you for saving my sanity on ma...

Discombobulated247

•6 months ago

40 Replies

Interesting B12 Study

An article about new B12 research...

MoKayD

•6 months ago

13 Replies

small fibre neuropathy

How long does small fibre neuropathy due to prolonged B12 deficiency for many years take to be reversed, if possible ? After 14 months of self injecting daily...

How long does small fibre neuropathy due to prolonged B12 deficiency for many ye...

GoneWithTheWind1972

•6 months ago

37 Replies

B12 early days of injections

Hi, DH has started a course of B12 injections through a private clinic which specialises in vitamin injections. He has autoimmune thyroiditis, NCGS and...

Hi, DH has started a course of B12 injections through a private clinic which sp...

Zmalp

•6 months ago

5 Replies

Oral B12

I know that oral supplements aren’t always the answer but does anyone have any views on Methylcobalamin vs. Cynocobalamin tablets please? They both appear to...

I know that oral supplements aren’t always the answer but does anyone have any v...

Pa234aw

•6 months ago

2 Replies

What is a good level of active B12

What level of active B12 is considered optimal with range being (37.5-188). Thank you

What level of active B12 is considered optimal with range being (37.5-188). Tha...

Eton

•6 months ago

8 Replies

Notes to former self

November 2020 IT is not and never was all in your head. Yes IT does get more intense with stress of all types and it is physical. You are...

November 2020 IT is not and never was all in your head. Yes IT does get more in...

WIZARD6787

•6 months ago

11 Replies

Conjecture

I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this...

I use conjecture as part of my creative process. Thing is I do not pretend it is...

WIZARD6787

•6 months ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(76)

All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2023

Can high B12 levels actually turn out to be B12 deficiency.

B12 expiry date

Interesting

Bruising

Stuck in my Craw.

too much or not enough???

Vagus nerve stimulation'

How can you get homocysteine test on NHS

Bruising

Atypical Pernicious Anaemia

Iron infusion

Air Purifiers

3-Ds, Disbelief, Discrimination & Delays

PA and oral B12 supplements

Help me find a post please. Male PA member linked a journal article about his success with an innovative depression procedure.

Three years in

British medical journal publication

PA/b12 and ferratin

B12 help

Having trouble ordering b12 as there is apparently a shortage in Australia. Help!!

Anybody left with servere virtigo after covid ?

B12 thyroid

Testing for Intrinsic Factor - borderline results

Interesting B12 Study

small fibre neuropathy

B12 early days of injections

Oral B12

What is a good level of active B12

Notes to former self

Conjecture

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive