Today three years ago I walked into a emergency room. I could only walk 60 yards without resting. I had to stop driving 6 times during a 40 minute drive.
Luckily I was admitted and luckily my B12 was finally tested and was <150 which is the lowest level that this particular lab tests for.
I started self treating after 3 months terrified of permanent neurological damage.
The medics sucked and still do and did not even follow the ineffective algorithm that is used by them. It was a nightmare. My main issue at this point is they do not practice humility at all.
I was shocked I was admitted as I have been in the emergency room often and never got the correct diagnosis. Pretty much the reason I was in such bad shape is there was no reason to see a doctor based on the previous half a century.
It was not until 2 years later after a hematologist reviewed the blood work from my intake that I was informed I was 4 weeks from death.
I improved all along even with just oral 1mg a day of cyanocobalamin per my GP.
Jump to now three years later.
If I inject 1 mg of methylcobalamin and either 1 mg of cyanocobalamin or hydroxocobalamin 4 times a day and take 50 mg of PSP twice a day along with other supplements and improve weekly. This I have been only doing consistently due to sourcing issues for two months.
The concept that EOD maximum is based not on science rather bureaucratic controls I discovered this about 6 months ago. Working out how to procure the necessary product and design and implement the trials took about 6 months.
I went to Scotland for 6 months to design a protocol that was best for me based on my evaluation of all factors available to me utilizing my abilities. Which is where I discovered the lack of applicable science to the maximum EOD.
I believe that some can find the best treatment for them by “finding what works”. I do not understand that and do trials based on my evaluations of what to try.
The relief and freedom of having a protocol that I expect to lead to weekly improvement is immense. I do not miss using up my B12 one bit. I still fear being on that roller coaster.
Safety is my first criteria when designing a protocol and is laborious.
It takes little courage to risk healing by non-conformance. It is a lot of work and frustration. For me it is doing my evaluation in a way that I trust. This often includes finding the literature where current protocols are written based on what might be true.
My next milestone will be to get to the winter solstice and not be sun deprived which was not possible before due to the stress on my body from being B12 deprived.
I view all predicted results or lack of them along with how long it takes to heal as being based on current treatment which I do not do any more.
The winters here take a lot of energy. Overall I have to back off taking more risks needed to maybe improve healing. I am in a real way expecting to be in much better shape when it is time to open water swim. I do allow I may improve enough to take more risks.
I am not big on regrets. I am all about grieving loss. That my children knew I was dying and I and the 50+- medical personnel did not is a loss I am still grieving.
When I meet with medical personnel I will see them as people and not expect that in return. They are in a position to do great acts. It does not follow that they do. I was surprised that they do not follow simple flow charts for reasons unknown.
I had a stone in my salivary tube two years ago which just passed. I saw 9 professionals. I could see right through them and it was easier as I had healed in the last two years. One surgeon lied about the size of the stone in an attempt to schedule surgery to artificially create an opening in my tube. All 9 gave information that was incorrect although not all gave the same misinformation.
So, you all have been important on my journey, however not the most important. That would be me. However I can not imagine a different path that I could have discovered the concept of more frequent injections may have a higher efficacy and if so it would not be known by anyone who did not experience an increased frequency. It was a cognitive leap to not think in terms of only amounts and forms which I do not think I could have made without your sharing and being given the privilege of sharing.
I was going to retrace my steps to the emergency room today to process that experience. This would lead to me processing my leaving the hospital after 6 days of mostly fasting waiting to be put under anesthesia and only given a shot of B12 on the last day. I do not want to spend the energy on processing/grieving what I experienced after leaving the hospital at this time.
Suffering since 4 years and now pains are increasing.
B12 injections were stopped a few years ago, feeling awful
Self-injecting 2 ml EOD.
