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Anybody left with servere virtigo after covid ?

Jillymo profile image
18 Replies

I caught covid after visiting the hospital for an MRI to look at my gastric issues.

The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest on my feet at the best of times so as you can imagine these events are very frightening and make me feel nauseous.

I have considered Menieres because from my understanding of covid it can attack the middle ear. Another consideration is autonomic neuropathy but i'm not able to discuss this until I am seen in Rheumy in December.

Has anybody else suffered such issues after covid ?

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Jillymo profile image
Jillymo
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18 Replies
Nackapan profile image
Nackapan

Yes my balance got worse again after having covid .Vertigo was present at the beginning for me.

I think if you try and do some Cawthorne exercises sitting down .

Take it very carefully and it will improve with time .

Don't worry about meniers and such like.

Give it a bit of time .

Took another 5 weeks for mine to settle after the covid vaccination and also getting covid .

Hope it passes soon.

Jillymo profile image
Jillymo in reply to Nackapan

I have suffered with ear problems since quite young and minier's was considered some years ago but this is different. Even when still I seem to be moving.

Just as you say it hit balance from the very start. In fact I was quite happily dipping a chip in a fried egg when it hit me. I have done the recommended eye movements and balance retraining albeit I have to be careful when doing it.

Yesterday was awful. All I could do was aim at the door and take myself off to bed. I fixed my eyes on the light bulb and was frightened to move my head else I would have been sick - I had my new recycle food bin at my side just in case. I couldn't have changed the bed had I have been paid.

It is really horrible. My daughter who obviously caught the virus from me didn't seem to suffer the balance issues !

It's like being drunk without the drink. 🥂 🍾

Nackapan profile image
Nackapan in reply to Jillymo

Yes. My mum gets it.

She does vomit .

She has medication now

Meniers/ vertigo treated the same.

As has Jared hersftoo many tines falling with it.

I've had ear pressure tests.

No everyone else that got covid the same time at a family gathering didn't get it just me!!

Infact out of 7 3didn't get it . One being my husband?

One tested positive. No symptoms .

1 very mild.

2 badly.

Me the longest.

Whatever strain reacts differently in every individual.

Yes Spitting to move.

No bending .

Or turning head to the side without whole body turning.

Horrid.

Jillymo profile image
Jillymo in reply to Nackapan

Nackapan this link might explain why some suffer more with covid than others........... ncbi.nlm.nih.gov/pmc/articl....

😱 😢 😵‍💫 😷 ......I cant find a zimmer frame amongst my emojis but thats what I need at the mo.

Nackapan profile image
Nackapan in reply to Jillymo

Yes ,difficult . Perhaps try medication ,??

cocoa profile image
cocoa

I caught covid while in hospital recovering from surgery for a broken hip.

I do also have ataxia ( cause unknown). After two months in hospital, I am back home but still unable to walk unaided.

I always thought there was a connection with covid, so your post has made me convinced.

Hope you feel better soon.

Nackapan profile image
Nackapan in reply to cocoa

Hope you feel better soon.

Jillymo profile image
Jillymo in reply to cocoa

Poor you, as if hip surgery wasn't enough to cope with.

It is just my balance that has been affected, my speach is fine but my coodination is slow. I read on line that covid can cause these symptoms !

I expect your surgery depleted most of your B12 and my low immune left more open to getting the virus. I am not able to have the vaccine which didn't help.

I find it odd how it only leaves a few with such issues and others seemed more to have a very heavy cold which lasted 5 days where as mine lasted longer before showing clear.

I have another scan tomorrow, if honest dreading going in case i catch something else. I am traveling with hospital transport so at least they can assist and steady me. 🤞

I hope you make a speady recovery. 😷

You might find this of interest............

ncbi.nlm.nih.gov/pmc/articl....

Nackapan profile image
Nackapan in reply to Jillymo

Is it possible to wear a mask ?

Jillymo profile image
Jillymo in reply to Nackapan

I think I need to wear a balclava the wrong way round. I had worn a mask plus I had used an antiviral spray up my nose and still I caught it!

Apparently this wretched bug can enter the body through the eyes. Maybe I caught it whilst in the MRI tunnel. 🤔

Tomorrow's scan is an ultra sound. I can assure you I shall be wearing a double mask throughout the proceedure. 😘 💐

Nackapan profile image
Nackapan in reply to Jillymo

Wecsny win.Ffp3 good but doesn't cover your eyes!!

Hope it's okay

Cherylclaire profile image
CherylclaireForum Support

Sorry to hear you have been stuck with another problem. Let's hope it goes soon.

It took me about three weeks to get rid of Covid - but no after-effects.

"Drunk without the drink" ; I've had antibiotics on three occasions since having B12 deficiency - and this is exactly what I experienced then (never before that).

It isn't nice at all.

Still made me laugh about the balaclava !

Jillymo profile image
Jillymo in reply to Cherylclaire

I couldn't believe how quick this virus hit me.

I dont go out very often but my daughter had taken me to get my hair cut. On the way home my daughter suggested we stop for a spot of lunch. There I were quite happly dipping my nice crispy chip in my egg ----- when zap. It was like being hit around the head with a damned baseball bat.

I suddenly needed the ladies room but couldn't walk unaided due to the room spinning. Twice my daughter escorted me to the ladies with everyone looking at me as if I were drunk. I told her I needed to leave, as we got outside I were sick. This being my very first open air vomit it took me by surprise, When we got home all I could do was fall on the bed.

Luckily a couple of days before we had been delivered our food recycle bins., I found good use for them . The smaller one was ideal to have on the bed to throw up in and the other for when I couldn't make the bathroom. All I can do is thank the authorities for delivering them !

I really am not looking forward to my scan tomorrow.

KBird01 profile image
KBird01

A few years ago, before covid, I contracted a virus. Nothing too serious, but it left me with labrinthitis. This was very debilitating, but I was eventually seen by a doctor who performed the epley manoeuvre. This cured most of the symptoms very quickly. I think labrinthitis is fairly common after a virus. If you google it, there's a lot of info on Dr google. 😉

Jillymo profile image
Jillymo

I had labrinthitis after a virus too but it was different to what I have now. The labrinthitis was constant where as this what I am suffering now comes and goes. It comes on so suddenly that its quite frightening.

I have been doing all the different exercises with the eye's, looking the wrong way when walking ( very carefully ) to try and retrain the brain to regain balance. I have also carried out eply manoeuvre in case I had fluid in the middle ear. Lets hope it clears over time it's making me feel very nauseous.

It's as bad as labrinthitis ( which was very frightening at the the time ) but this as I say is different. My glands are also swollen and my cordination seems to be slow. Maybe the virus zapped my B12 !

I will keep up the exersices to see if it improve's.

Marz profile image
Marz in reply to Jillymo

I think your B12 comment is very valid. I often feel off balance when my weekly j@b is due. I also had Crohns diagnosed 50 years ago - after surgery for Gut TB. Hashimotos diagnosed in 2005 🌈

Happy to help if appropriate.... 🌻

Jillymo profile image
Jillymo in reply to Marz

Hello Marz it's been a while since I have seen you. When I were first diagnosed with a B12 deficiency I were 'very off balance' which got better once I started self injecting. The recent covid episode has caused me to be so dizzy I feel nauseous. I have been clear of covid for a few weeks but i'm still suffering bouts of vertigo.

I was diagnosed with both thyroid and parathyroid issues but despite a low calcium level everything is in range.

Gut TB and surgery not good but can you remember if you had a palpable mass. I have a mass on my left side for which I were refered for investigation. I have always suffered with my gut and bowel and have a hiatus hernia, errosive gastritis together with diverticulitis.

Crohns as well you know after your 50yrs of suffering with it is nasty. Crohns hadn't entered my head but my eldest brother is diagnosed with it. The consultant would like to carry out a colonoscopyto take a closer look at what is going on. I know a little about Crohns because my friends husband has it quite acutely and has to have infusions ! It will be interesting to see what the colonoscopy shows. I have the added bonus of suffering from APs ( sticky clotting blood ) which is of concern.

How miserable for you to have suffered from Crohns for so many years and can only hope your getting good treatment for it. 😘

Marz profile image
Marz in reply to Jillymo

You certainly have a lot on your plate - really hope things soon improve for you.

Regarding the mass - I had abscesses which burst through a laperotomy wound. The first exploratory op' they did at the beginning of the 22 week hospital stay ! This is how the TB was confirmed. Treatment was long. Crohns later found in the ascending colon ....

I have not had any Crohns treatment for over 20 years - as it made me more poorly. Hashimotos diagnosed in Crete in 2005...

I found going gluten free helpful - lots of VitD and keeping inflammation low with diet. I had further Crohns gut surgery over the years and now feel fine gut-wise ! Need weekly B12 as without a Terminal Ileum B12 metabolism is poor. I am occasionally reminded of my past issues when I eat the wrong thing !! I am grateful to have reached 77 in reasonable health - helped no doubt by 15 years in Crete 🌞 My only medication now is T3 - which I have taken for 10 years. Prescribed by my Greek GP and now buy on-line since returning to the UK. Hope your T3 levels are checked...

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