November 2020
IT is not and never was all in your head. Yes IT does get more intense with stress of all types and it is physical.
You are according to one hematologist 4 weeks from death and the medics you are dealing with have no clue what to do for you but very confident in that what they can do is the best that can be done. They will be proud of their treatment of you and not accept you are going to self-treat in a way they are not capable of. Ignore them for now.
View youtube.com/watch?v=q5cyMLt... you will not get a complete understanding. You will have a better understanding than all medics I have spoken to. The standard is extremely low.
Inject B6 1mg/ml a day and this will ease the pain by healing the nerves. As the pain decreases switch to P5P oral.
Have all the testing done as described in theb12society.com/diagnosing as this is the easiest presentation for you to understand.
Ignore the results your body does not use cobalamin effectively. It is physical. The testing is simply to measure progress.
Test "cofactors" as outlined in theb12society.com/treatment and supplement accordingly.
Supplement with Simple Supplement starting gradually as it will be effective and at first it will be distressful as your body needs to adjust to having these nutrients. Make sure to account for the ingredients in Simple Supplements when doing other supplementation.
Once you are supplementing as best you know how based on the site above start injecting subcutaneous methyelcobalamin in a solution you will have to mix yourself at a strength of .5mg/ml. Start with once twice a day. Increase as you feel you need to. This is not loading, it is starting gradually and increasing giving your body time to adjust to healing hopefully you will not need to experience 'reversing out' to a distressing degree.
That is all I got and what you will experience is unknown as it has never been done. I would not bet against you to swim at least 1/2 mile this summer.
As best you can stay away from what if it is something else and stay away from medics as they will likely find something that will resolve with effective treatment.
Love you and sorry fate has not been kind to you with IT.