Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for November 2023

Help with next appointment following loading doses

Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been...

Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Fo...

GW1000

•8 months ago

7 Replies

Thyroid home test - Monitor My Health

Hi, this is a new testing laboratory to me & wondered, as it’s an NHS lab, whether the results of your private finger prick test are uploaded to your NHS...

Hi, this is a new testing laboratory to me & wondered, as it’s an NHS lab, wheth...

QUE6T-33

•8 months ago

5 Replies

Ferritin levels

I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin...

I have collected my blood test results and am looking for information before my ...

Suesue246

•8 months ago

8 Replies

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Bioactive

Means: having an effect on a living organism. bioactive molecules. It is used sometimes with the adjective "more". "More Bioactive" or "The Bioactive" is a...

Means: having an effect on a living organism. bioactive molecules. It is used so...

WIZARD6787

•8 months ago

1 Reply

New PAS blog posts

Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and...

Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Soc...

Sleepybunny

•8 months ago

2 Replies

B12 Deficiency

I have Peripheral Neuropathy and am being treated for B12 deficiency. Having just completed an 8 week course of tablets I am awaiting results of a blood test....

I have Peripheral Neuropathy and am being treated for B12 deficiency. Having jus...

Headoverheels

•8 months ago

39 Replies

Unable to SI

Sorry, slightly off topic. I do my daughters B12 injections for her, she has a needle phobia. She has just come out of hospital since an operation and is...

Sorry, slightly off topic. I do my daughters B12 injections for her, she has a ...

pinkpaddleboarder

•8 months ago

13 Replies

Methylcobalamin and lack off sleep.

Is there a link between methylcobalamin and bad sleep. Sublingual i don't usually take. I'm Inbetween injection from the gp. Changed my usual Jarrow b12+Folate...

Is there a link between methylcobalamin and bad sleep. Sublingual i don't usuall...

Natural1970

•8 months ago

36 Replies

Serum ferritin level & RBC count help please

Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate...

Hi there, just wondered If anyone could please tell me if a Ferritin level of 44...

CandiR

•8 months ago

7 Replies

What causes autoimmune diseases?

https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos but I was much impressed by this lecture by Dr Peter Osborne and felt the need...

https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos b...

Frank77

•8 months ago

15 Replies

High B12 - more tests needed?

My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood...

My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness,...

AnotherEarlyRiser

•8 months ago

5 Replies

buzzing in foot

Hi all, I’m new to the this post, but I have not been diagnosed by a doctor yet. I have my vitamin B 12 check six months ago and it was fine a few weeks ago I...

Hi all, I’m new to the this post, but I have not been diagnosed by a doctor yet....

Sandalsforever

•8 months ago

7 Replies

Active B12 level medichecks

Hi this is my first time posting 😀 I did an advanced thyroid test with medichecks last week for general tiredness etc. my active b12 level has come back as...

Hi this is my first time posting 😀 I did an advanced thyroid test with medic...

Strawberry1992

•8 months ago

8 Replies

Filter needles for methylcobalamin

Do you use filter needles to draw up your B12? If so, where do you get them? I just received my dry methylcobalamin and normal saline ampules, and I mixed it...

Do you use filter needles to draw up your B12? If so, where do you get them? I j...

prettypear

•9 months ago

9 Replies

EOD Injections

I am reading a lot of posts where PA members are Injecting EOD are these SUB CUT or IM injections they are having, thank you

I am reading a lot of posts where PA members are Injecting EOD are these SUB CUT...

Helliborous

•9 months ago

8 Replies

B12 injections impact on other medical tests

Hello all I recently posted about this and only got one reply so carried on researching and ….. I have stumbled across this pdf on the New Zealand govt...

Hello all I recently posted about this and only got one reply so carried on res...

Rosydawn

•9 months ago

5 Replies

Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?

I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants...

I have just been found to have coronary artery calcification incidentally when h...

Cherylclaire

Forum Support•9 months ago

37 Replies

GP blood test for B12 - but should other tests be done too ?

I’ve recently been posting on the thyroid forum. I have had frizzy feeling feet, then going up my legs, but it has calmed down a lot quite suddenly. The feet...

I’ve recently been posting on the thyroid forum. I have had frizzy feeling feet...

Applethorpe

•9 months ago

25 Replies

PA and Private Health Insurance

Hi Guys I wonder what other’s experience has been with private health care and PA? As I am self employed I have private health care as I cannot afford to be...

Hi Guys I wonder what other’s experience has been with private health care and ...

Wwwdot

•9 months ago

12 Replies

Interested to know …

I was diagnosed with PA in July SI EOD since taking all of the co factors and ensuring I get plenty of potassium. I know everyone is different but I’d be...

I was diagnosed with PA in July SI EOD since taking all of the co factors and en...

Mark2027

•9 months ago

13 Replies

B12 deficiency and gastrointestinal (GI) upset

Many people with B12 deficiency mention gastrointestinal (GI) upset. I came across a brief article that discusses some aspects of this relationship....

Many people with B12 deficiency mention gastrointestinal (GI) upset. I came acro...

WiscGuy

•9 months ago

2 Replies

B12 and nerve regeneration

Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain,...

Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in ...

WiscGuy

•9 months ago

33 Replies

Regulating speed of healing

This has only become an issue with injecting 4+ times a day with two injections of B12 1 mg in a solution of 1mg/ml. Prior to that my body was starving for B12...

This has only become an issue with injecting 4+ times a day with two injections ...

WIZARD6787

•9 months ago

3 Replies

Are 0.25ml syringes available anywhere please

Can’t find anything so far so would be grateful for any links to appropriate websites Thank you

Can’t find anything so far so would be grateful for any links to appropriate web...

Noelnoel

•9 months ago

13 Replies

Books on Pernicious Anemia

Hi everyone, could you tell me which is Martin's most informative book, thanks

Helliborous

•9 months ago

9 Replies

B12 or something else?

Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not...

Hi About 2-3 years ago, during lockdown when it was difficult/impossible to se...

Justine_Case

•9 months ago

19 Replies

Recently diagnosed with pernicious anaemia

Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i...

Uk 49 yrs old ...over the years ive been back and forth to drs as been tired an...

Tay10r

•9 months ago

10 Replies

Polyps found in Endoscopy

Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gastritis with metaplasia, thanks

Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gast...

Bilbao

•9 months ago

7 Replies

MTHFR Article

I thought this was a good article about MTHFR confusion...

MoKayD

•9 months ago

2 Replies

Loading dose now complete and...drum roll

Last of the 6 jabs was two days ago. I've had some "standard" improvements and some unexpected ones. First thing I noticed was that the half moons on my...

Last of the 6 jabs was two days ago. I've had some "standard" improvements and s...

Onefish

•9 months ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2023

Help with next appointment following loading doses

Thyroid home test - Monitor My Health

Ferritin levels

Bioactive

New PAS blog posts

B12 Deficiency

Unable to SI

Methylcobalamin and lack off sleep.

Serum ferritin level & RBC count help please

What causes autoimmune diseases?

High B12 - more tests needed?

buzzing in foot

Active B12 level medichecks

Filter needles for methylcobalamin

EOD Injections

B12 injections impact on other medical tests

Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?

GP blood test for B12 - but should other tests be done too ?

PA and Private Health Insurance

Interested to know …

B12 deficiency and gastrointestinal (GI) upset

B12 and nerve regeneration

Regulating speed of healing

Are 0.25ml syringes available anywhere please

Books on Pernicious Anemia

B12 or something else?

Recently diagnosed with pernicious anaemia

Polyps found in Endoscopy

MTHFR Article

Loading dose now complete and...drum roll

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