British medical journal publication - Pernicious Anaemi...

Pernicious Anaemia Society

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British medical journal publication

LadyBothwell profile image
16 Replies

bmj.com/content/bmj/383/bmj... hope your GP /practice nurse reads this! If not send them the link!

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LadyBothwell profile image
LadyBothwell
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16 Replies
Thrones12 profile image
Thrones12

Thank you

Wheat profile image
Wheat

Thank you, appreciated.

WIZARD6787 profile image
WIZARD6787

Thank you for that.

I will send it to some medics in the USA. With out comments that are justified but not helpful.

I will also use this to let my GP know I would like someone who is current to this standard to treat me so I can stop self treating. I still will self treat but would like the testing covered by my insurance.

VellBlue profile image
VellBlue

This is amazing, just what we need! Finally, acknowledgement of so many of the things that we have been saying for years

Technoid profile image
Technoid

Excellent Paper! Perhaps worth pinning the post Gambit62 ? And maybe including in the B12D resources jade_s . It is a compressed summary of solid B12D diagnostic and treatment advice. There should be a copy in every GP's office!

Clare184 profile image
Clare184

Really hoping this is the reason the new guidelines have been delayed would be amazing to see this included in them, don't really dare to think it could happen.

Orchard33 profile image
Orchard33

Thank you for this. Invaluable. Will send to my GP practice.

NOTI1 profile image
NOTI1 in reply to Orchard33

I would love to send this to my gp practice but do not think they will tale any notice. I am, like everyone here, desperate to be treated sufficiently but symptoms are not acknowledged as underdressed PA I'm spite of diagnosis. Do you think your gp will change your treatment in response to this?

Orchard33 profile image
Orchard33 in reply to NOTI1

No. Not until NICE decree from on high. But, as they say at Tesco's, every little helps.

Doris11 profile image
Doris11

Thank you 🙏

purpleabc profile image
purpleabc

Thank you ! I've copied it already to take with me tomorrow when I go to my surgery to see the physio for a lazy leg problem.Been through a lot this last year . Felt no vibration in the hip when tested so I have to manually lift it onto the table ! I'll just pray she reads it and passes it on to the gp's to put with the other invaluable info I gave them from PAS. I got my final retort from them at last which was that "this surgery won't be giving you 2 weekly or more B12 injections, it will be like other patients, every 2 or 3 months" I think I will melt my armour down and make candlesticks. or maybe a helmet, because banging your head against a brick wall hurts.

MrsTuft profile image
MrsTuft

Fab thanks

Cherylclaire profile image
CherylclaireForum Support

Stunned, Lady Bothwell !

What a find.

I really loved the advice for treating those with neurological symptoms: to reduce the injections slowly from every other day once no more improvements can be had. That way, undertreatment could be identified - and rectified quickly !

This could be really useful to a lot of people here. Must surely help that it is in the BMJ.

Glad to see that Martyn Hooper and others from PAS were included.

Natural1970 profile image
Natural1970

I have just read through this. Very interesting. Worth looking at if you have B12 issues. Thanks for the post.

JanCymru profile image
JanCymru

Thank you! This is brilliant! Have downloaded and will be taking a copy to my GP Surgery. Really appreciate this link. Thank you again!

lkeegan16 profile image
lkeegan16

There are two tests for deficiencies. One is erroneous and one is accurate. An extracellular test is from B 12 extracted in the blood stream that can be either from supplements or food. This is deceiving. An intracellular test, such as Spectracell, confirms whether or not the nutrients are getting absorbed in to cells for delivery. For the truth, request an intracellular test.

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