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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2023

Migraines, headaches, and relationship to b12

I feel like I spend half my life with a headache these days 😭 There’s definitely migraine with prodrome/aura, which I suspect would be there to some degree...

I feel like I spend half my life with a headache these days 😭 There’s definitel...

MindfulSquirrel

•6 months ago

22 Replies

Counter-intuitive.

I had in my head that the further I went along with my injections the harder it would be to evaluate the effects of the injection as I improved. In the last...

I had in my head that the further I went along with my injections the harder it ...

WIZARD6787

•6 months ago

1 Reply

Frequency of Injections

It is definitive for me that more frequent injections lead to my body healing. How I arrived at this being a possibility is through 3 years of study,...

It is definitive for me that more frequent injections lead to my body healing. H...

WIZARD6787

•6 months ago

1 Reply

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Can a needle be used twice in quick succession?!

I presume not but info from Googling suggests that people do. My rational brain thinks the risk is no different the 2nd time round as it's going through the...

I presume not but info from Googling suggests that people do. My rational brain ...

Sunnysidoop

•6 months ago

27 Replies

Blood test tomorrow

Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules!...

Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B1...

Doris11

•6 months ago

3 Replies

To increase or not

my main current symptom of B12 deficiency is incontinence of urine. I inject myself and the problem gets worse for 24 hours, leading to puddles on the floor,...

my main current symptom of B12 deficiency is incontinence of urine. I inject mys...

Hectorsmum2

•6 months ago

26 Replies

positive then negative intrinsic factor

hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two...

hi guys, I had a positive intrinsic factor blood test back in April and this ...

Ellamae2

•6 months ago

16 Replies

Intro + some PA questions

Hi all :) As an avid armchair researcher, I already have good notes on B12 deficiency and Pernicious Anemia, but a few things still confuse me. I'm also...

Hi all :) As an avid armchair researcher, I already have good notes on B12 defi...

Vitaman

•6 months ago

32 Replies

Newly diagnosed with PA help please

Hi i have recently been diagnosed with PA and have been told i have a B12 level of 89. i have issues with fatigue, headaches but most of all balance issues...

Hi i have recently been diagnosed with PA and have been told i have a B12 leve...

SHARPY

•6 months ago

5 Replies

Users of 6mm needles

Just ordered pack of Antonmove 6mm steel pipes and it said only 13 left in stock Don't know if this is a real christmas shortage or scare tactics. Anyway,...

Just ordered pack of Antonmove 6mm steel pipes and it said only 13 left in stock...

Wheat

•6 months ago

5 Replies

I find this helpful;

If I wake up in the middle of the night I inject. I suspect the reason I wake is lack of available B12 for whatever reason. I still experience lack of...

If I wake up in the middle of the night I inject. I suspect the reason I wake is...

WIZARD6787

•6 months ago

1 Reply

Too much methylcobalamin?

The first 2.5 years I believe I was starving my body for B12 even though I was injecting 1 mg to 1.5 mg a day. How I experienced 'reversing out' was likely...

The first 2.5 years I believe I was starving my body for B12 even though I was i...

WIZARD6787

•6 months ago

1 Reply

Learning and Careers with B12 Anemia

Hi everyone, I wanted to know what everyone studied and does for a living here. I am feeling down because I have not done well with college and keeping a job...

Hi everyone, I wanted to know what everyone studied and does for a living here....

GreenTamales

•6 months ago

34 Replies

Immunology Lecture 1 | Brief History of Immunology

https://m.youtube.com/watch?v=ACYSUXNSsMM

Technoid

•6 months ago

3 Replies

Help with diagnosis

Hello, I feel like finding this condition has been a light bulb moment. I’m a 33 year old female and have struggled with low folic acid and have been...

Hello, I feel like finding this condition has been a light bulb moment. I’m a 3...

Cathjack

•6 months ago

11 Replies

slippery elm & pernicious anaemia

Morning all. I would like some advice on the following as don’t want to make my health any worse than it is. If you have pernicious anaemia & have absorption...

Morning all. I would like some advice on the following as don’t want to make my ...

Winniepoo15

•6 months ago

20 Replies

Walking in the rain !

Just caught the end of Michael Mosley on radio 4 this morning. From what I was able to gather, walking and breathing in the air filled negative ions from...

Just caught the end of Michael Mosley on radio 4 this morning. From what I was ...

Polaris

•6 months ago

21 Replies

Update upset / furious

Just looked at app.1 b12 ampoule back on prescription. Rather than blank. A start . That should secure IM one at the surgery . Frequency of 2 weekly clearly...

Just looked at app.1 b12 ampoule back on prescription. Rather than blank. A sta...

Nackapan

•6 months ago

5 Replies

need help

Recently tripped went splat and fractured my shoulder and am unable to self inject my due b12 shot one handed is there anyone in the Nuneaton area who could...

Recently tripped went splat and fractured my shoulder and am unable to self inj...

Angie47

•6 months ago

31 Replies

Loosing Your Marble

This is a picture of the world taken by the crew of the Apollo-17. It has been reproduced on many occasions and is called The Blue Marble. It depicts Earth,...

This is a picture of the world taken by the crew of the Apollo-17. It has been r...

Narwhal10

•6 months ago

6 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2023

Migraines, headaches, and relationship to b12

Counter-intuitive.

Frequency of Injections

Can a needle be used twice in quick succession?!

Blood test tomorrow

To increase or not

positive then negative intrinsic factor

Intro + some PA questions

Newly diagnosed with PA help please

Users of 6mm needles

I find this helpful;

Too much methylcobalamin?

Learning and Careers with B12 Anemia

Immunology Lecture 1 | Brief History of Immunology

Help with diagnosis

slippery elm & pernicious anaemia

Walking in the rain !

Update upset / furious

need help

Loosing Your Marble

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive