DH has started a course of B12 injections through a private clinic which specialises in vitamin injections. He has autoimmune thyroiditis, NCGS and psoriasis and is under investigation for Hashimoto’s encephalopathy due to memory and cognitive issues, though the neurologist can find nothing of concern organically. B12 blood levels are moderately high normal on oral supplements. Has previously been folate and vit D deficient so is permanently supplemented
Got fed up of waiting to see a GP and for his next neurology appointment to review his neuropsychological test (which we know showed substantial memory deficit) so booked him in for a course of B12 to see if there was any change at all. So far he’s on one per week which I know may not be enough and 2 injections into the course with another on Monday, where the gap will be only 4 days from the last one.
Reactions so far are he feels very achy so he thought it might be an autoimmune flare but I’m wondering if it’s B12 as it’s only happened since he started the course. Also very tired on the day of the jab, sleeping like a log even earlier than usual. I’m not sure if it’s wishful thinking yet but I may have noticed a very slight improvement in mental sharpness and energy on a few days.
I’m speaking to a GP on the phone on Tuesday which I fully expect to be a waste of time as it’s another random locum who won’t have read the extensive notes. I want an MMA and homocysteine test but I think I’ve got more chance of flying to the moon in this health authority
Wondering about what to look for at these early stages that might indicate if it’s worth increasing the frequency of injections or if we stick with one per week and take it slowly
Written by
Zmalp
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I am pleased to read that your hubby is getting help. It’s tough when those you live are suffering but you sound as though you are on the right path.
The thing about B12 deficiency is that everyone’s deficiency is different and so is their recovery. I can only share my experience.
When I started loading doses mine were 2 a week then a week off over a period of six weeks then every other day. I felt very achy, bad headache, cold, shooting pains - I just felt rubbish! I also was very very tired. My interpretation is that my body was kickstarting - firing up which was painful and exhausting! After a few weeks I started to see improvements.
I am now a year in and I self treat. I keep all my nutrients requirements at above average and I self inject to manage my condition. I feel better than a year ago.
I am confident that with your guidance and the help and support from this group that your hubby will also find his recovery path.
I noticed a big difference in just a couple of days. My healing was very rapid. I estimate I was 85% better within a month. My neurologist it was quite normal to get better so quickly. But I take oral B12 and I was taking a lot. I think one injection every week won't work very well. IMO you need to flood your body with B12 in order to maximise recovery.
Body aches and sleepiness in the beginning are normal, especially in the beginning of B12 treatment. It means the body is using the nutrients to rebuild the neurone. This phase is good and will pass.
For me, increasing frequency from once-a-week did not result in faster recovery. We need to note that recovery from B12 takes time and patience. Just keep on supplementing as per a fixed schedule (i.e. if doing once-a-week, be regular and do not increase or decrease) and keep the B12 high, especially till things stabilize,
Some people experience a drop in potassium (Hypokalaemia) when B12 treatment starts.
Some forum members here try to eat potassium rich foods eg beans, bananas etc.
I would never take potassium supplements unless prescribed by a doctor as too much potassium can cause symptoms.
"I’m speaking to a GP on the phone on Tuesday which I fully expect to be a waste of time as it’s another random locum who won’t have read the extensive notes. I want an MMA and homocysteine test"
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