Evaluating

[WIZARD6787]

When I try different trials evaluation is key. It is much harder to evaluate now that the symptoms are not severe.

That I have been symptomatic my whole life to varying degrees, makes evaluation very difficult.

I know me and using productivity as a measure will result in my pushing too hard and then crashing at some unknowable point in the future. I call that running faster and jumping higher.

So the effectiveness of my self treatment is now very subjective. I have tried different methodologies and the issue I experience is they tend to be influenced situationally. If I am swimming then I am doing well etc.

So for now I am working with the concept of how annoyed Iam. Things like; sometimes going out to my vehicle to get something is a decision if I am annoyed. Other times I just do it without thinking.

I do not get annoyed with other people to any great degree.

[jade_s]

Fascinating! I too now use mood to judge. And how social i feel like being (that's also related to folate for me).

If i go by energy/productivity levels, i too push too hard.

My balance and choking on air issues still remain my 'canary in the coal mine' signals when i've really started tipping into low b12 territory.

[WIZARD6787 in reply to jade_s]

Thanks for the reply. I do use the term mood as for me it leads to me dismissing that there are causes.

Thank you for the "chocking on air. " Very early on I read about difficulty breathing and dismissed it as I was not experiencing it. The reason was I was so fatigued I could not move enough to need more air.

When I was 10 I learned about second wind and thought that was what I was experiencing. When I was 15 I would suddenly not be able to get enough air and found if I laid down and paid attention to my breathing it would go away.

Pretty much I would just push through it and it would go away until three years ago.

Yesterday I was talking to some people on the trail and when we parted I was starved for air. That is when I came to understand that I was used to being starved for air and it went away.

Now that I am aware of it I can work on understanding what is going on. It does seem that methylcobalamin with adenosylcobalamin makes the experiences less intense. I will now include that in my evaluations. Thank you for that.

[jade_s in reply to WIZARD6787]

You're welcome! I think that's often referred to as "air hunger". Some people get the "sighs". I had both.

But by choking on air I mean that literally, sorry 😂 I should have written choking on my own saliva instead. I had the problem that instead of things going down my esophagus, they would go down my windpipe/trachea instead. I once got aspiration pneumonia because water went down the wrong pipe. It was very painful and required strong antibiotics. That was about 8 years prior to developing severe neuropathy. The choking only got more frequent after that. I would wake up at night choking presumably on my own saliva. I would have to be very careful during meals. One of my other relatives had this too. Completely solved by injections.

[WIZARD6787 in reply to jade_s]

Fascinating! I associated the being mucusy with the starving for air. They are two separate things. That is helpful.

Before I entered the hospital I lost 100 pounds due to aspirating. I could only eat oatmeal and pudding and only if I was careful.

Doctors referred me to a nutritionist.

[jade_s in reply to WIZARD6787]

Oh wow! I'm sorry you went through that too! Much more severe than my case. I hope it is better now?

[tomdickharry in reply to jade_s]

Very interesting! I've had so many symptoms all my life that no-one seemed to notice, including foot-drop, gasping for breath, tiredness, poor memory, etc.. It's only since self-injecting that I've seen the improvement in my health. They weren't even there when years ago I was on three-monthly injections.

What drew me to your post was saliva. I have for years had a dry mouth but now I'm injecting weekly I am hyper-salivating with dribbling, leakage from the corners of my mouth day or night. It's a totally new thing that I hadn't even expected and need to see if there's a valid connection.

I'd just like to add a commendation to Amazon.de for superb service and rapid, trouble free delivery. A real bonus is that their Pascoe ampoules at 1500µg that I've been using for a few weeks have reduced my other symptoms so much better than other brands I've tried. Memory loss still remains, however, but living in hope and feel so much more positive. Just angry that I suffered so much all my life with GPs not interested.

[WIZARD6787]

I had dry mouth my whole life that hydration did not alleviate. I had drooling when I first started injecting and that was very distressing. I developed a stone in my saliva gland after injecting.

Physicians by necessity see illnesses having started from the diagnosis. In my case it got so bad I was close to death and they were able to notice it.

The grieving is hard. One might think that having a symptom that has been lifelong disappearing would be wonderful. It is disruptive at first for me.