Some useful (?) publicity at last! - Pernicious Anaemi...

Pernicious Anaemia Society

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Some useful (?) publicity at last!

deniseinmilden profile image
8 Replies

Came across this on Twitter

twitter.com/thetimes/status...

It's a link to an article in The Times, written by Dr Mark Porter, which says

"Put simply, B12 deficiency is both common and underdiagnosed and the new Nice guidelines (which are still in draft form) are likely to lead to far more people being tested and treated for the condition. Might you be one of them?"

Unfortunately I don't subscribe to any online newspapers so cannot read the article but I thought it was good to actually have something raising awareness!

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deniseinmilden profile image
deniseinmilden
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8 Replies
JGBH profile image
JGBH

It would be good if doctors’ attitude changed but, somehow, I doubt it! People will need to fight and push to get B12 injections. Let’s hope I am wrong.

deniseinmilden profile image
deniseinmilden in reply to JGBH

I know exactly what you mean. Most of the time they ignore NICE guidelines anyway.But it was good to see it in the mainstream media.

shaws profile image
shaws in reply to JGBH

I have a very knowledgeable GP and when he took up a post in the surgery he told me a little while later that I can have as many B12 injections I felt I needed, so I have one every month now instead of every 3 months.

My Mother had this condition but I'm sure the withdrawal of her B12 injections caused her early demise.

JGBH profile image
JGBH in reply to shaws

Well that’s unusual to have such a a knowledgeable GP who actually understands the importance of B12 and the serious, even fatal, consequences of not treating people who are B12 deficient. Is he a new GP to your surgery? Lucky you and best wishes.

deniseinmilden profile image
deniseinmilden in reply to shaws

I'm so pleased that you are getting the treatment you need, but am very sorry that your mum didn't. It was the same with my dad - he declined rapidly once they withdrew the treatment on the schedule he needed.Thank you for letting us know there are some good GPs!

Sneedle profile image
Sneedle

Thanks deniseinmilden, I don't subscribe either but I looked up Dr Mark Porter who wrote it, he's an NHS GP in Gloucesterhire and Health journalist for various outlets.

His website

drmarkporter.co.uk/

if anyone is interested. Don't think it mentions B12 though - but if he's talking about B12 in the Times that has GOT to be a good thing.

deniseinmilden profile image
deniseinmilden in reply to Sneedle

That's what I thought!Thank you!

3rdNettydoon profile image
3rdNettydoon

My daughter sent this to me a few weeks ago. Neither of us could open it.

But, forgive me if I'm wrong but was it this doctor who didn't see B12 deficiency any differently from our GPs?

Still if he has started to change his opinion, then that is only a good thing.

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