Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for July 2023

A case study post bariatric surgery

For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case....

For anyone who has access to twitter, this case study posted yesterday might be ...

helvella

•1 year ago

2 Replies

Excellent explanation about B12 and malabsorption: may be due to other things besides pernicious anaemia

https://www.easy-immune-health.com/b12-malabsorption.html This article explains so well about B12 being malabsorbed; may not always be PA; could be H Pylori...

https://www.easy-immune-health.com/b12-malabsorption.html This article explains...

Hidden

•1 year ago

33 Replies

Gp agreed to levo dose increase -and talked about B12 injections!

Hello all, I'm still a bit in shock as twice in the last week I've spoken to the same GP who was insisting my bloods were normal and not wanting to look...

Hello all, I'm still a bit in shock as twice in the last week I've spoken to th...

Sneedle

•1 year ago

15 Replies

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Posting etiquette / reminder about not hijacking people's posts

A reminder that we should all be very mindful not to hijack people's posts with irrelevant stuff and/or our own questions/comments that sideline the original...

A reminder that we should all be very mindful not to hijack people's posts with ...

jade_s

•1 year ago

13 Replies

Hydroxocobalamine

Does anyone have any website addresses for the above in ampoule form Thsnk you

Does anyone have any website addresses for the above in ampoule form Ths...

Helliborous

•1 year ago

7 Replies

I noticed something.

I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when...

I have done many trials of different amounts and forms of B12. I went over my no...

WIZARD6787

•1 year ago

4 Replies

Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you

I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year....

I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP w...

Helliborous

•1 year ago

4 Replies

Small update for my daughter

Hi everyone, I posted about a month ago for my daughter. Thank you to everyone who replied....

Hi everyone, I posted about a month ago for my daughter. Thank you to everyone...

Sneedle

•1 year ago

5 Replies

B12 doses

Hi, I'm after some advice I've not been here for a while and this is the only place I find people understand. I have been having B12 every 10week but as most...

Hi, I'm after some advice I've not been here for a while and this is the only pl...

Green4me

•1 year ago

15 Replies

Mrjustatip

Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic....

Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then ...

MrJustatip

•1 year ago

13 Replies

Burning feet

Hi, Just checking as I assume that B12 deficiency is the culprit. I have pretty severe burning on the bottom of my feet that starts in the evening and lasts...

Hi, Just checking as I assume that B12 deficiency is the culprit. I have pretty...

EiCa

•1 year ago

23 Replies

Can symptoms come and go?

Hello everyone, At the moment I'm waiting to see the gp tomorrow about thyroid and b12. I'm having various symptoms but they are coming and going. They may...

Hello everyone, At the moment I'm waiting to see the gp tomorrow about thyroid ...

Sneedle

•1 year ago

16 Replies

My evaluation of which form of B12 is best.

The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc....

The best form of B12 is not known. What is in fashion is different in different ...

WIZARD6787

•1 year ago

14 Replies

A fun result

I love to swim and do it a lot. I do know now it may be about body temperature regulation. I get to swim in a spring fed lake and I am never more than 100...

I love to swim and do it a lot. I do know now it may be about body temperature r...

WIZARD6787

•1 year ago

14 Replies

Body Temperature Regulation.

Although it is often mentioned as a symptom it seems to be not addressed. I experienced life long B12 deficiency and have mitigated the body temperature...

Although it is often mentioned as a symptom it seems to be not addressed. I ex...

WIZARD6787

•1 year ago

1 Reply

Finally taken seriously

I was diagnosed with PA many years ago, it was diagnosed over 30 years ago due to a mini stroke (TIA), put on daily B12 for 5 weeks then every 12 weeks. None...

I was diagnosed with PA many years ago, it was diagnosed over 30 years ago due t...

outlander28

•1 year ago

5 Replies

Surprise discovery of PA

I’m a 64-year-old female and I recently discovered my PA by accident. I had major back surgery a year ago and my recovery has been waaayyyy longer than it...

I’m a 64-year-old female and I recently discovered my PA by accident. I had majo...

nnigma

•1 year ago

7 Replies

B12 telegraph article.

Good to see an B12 awareness article by Henry Bodkin (senior reporter health and science) in the telegraph. Maybe there is some benefit to influential people...

Good to see an B12 awareness article by Henry Bodkin (senior reporter health an...

PAapr22

•1 year ago

1 Reply

B12 and Serum Folate

Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and...

Hi, My bloods come back low on B12 and Folate again this has been the case eve...

Mumof3z

•1 year ago

5 Replies

Times online article about B12

The Times has an article today about B12 deficiency. The readers comments at the end are interesting. The article is called ‘Brain fog in elderly and vegans...

The Times has an article today about B12 deficiency. The readers comments at the...

JanD236

•1 year ago

4 Replies

Mystery Illness

You guys will definitely enjoy this one. I can't say anything else yet until you watch it to avoid spoilers. https://m.youtube.com/watch?v=kXvgYZeTcAg

You guys will definitely enjoy this one. I can't say anything else yet until you...

Technoid

•1 year ago

30 Replies

Can too much B12 via injection be harmful?

I am very thankful to those who have been responding to my posts regarding my left side pain, including calf and ankle issues. I am contemplating "reloading"...

I am very thankful to those who have been responding to my posts regarding my le...

Greeneyecolor

•1 year ago

4 Replies

how long does nerve pain last?

hi, I’m still experiencing bad nerve pain in my hands , feet and arms from b12 deficiency, had all loading doses and all my levels are now fine. the pain is...

hi, I’m still experiencing bad nerve pain in my hands , feet and arms from b12 d...

Flowerspink

•1 year ago

17 Replies

Where do I find my previous posts

trying to remember where I find previous posts, wanted to check on past blood test results. Thanks have been told but keep forgetting

trying to remember where I find previous posts, wanted to check on past blood t...

Polo22

•1 year ago

1 Reply

'Brain fog' sufferers to be tested for lack of B12

'Brain fog' sufferers to be tested for lack of B12 By Henry Bodkin OLDER people experiencing "brain fog" should be tested for...

'Brain fog' sufferers to be tested for lack of B12 By Henry Bodkin OLDER peo...

helvella

•1 year ago

35 Replies

advice please b12/folate

Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was...

Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, une...

Emmy1991

•1 year ago

12 Replies

Leg Cramping, Ankle Neuropathy...Help!

Hello all! When I last posted 2 months ago, I had questions regarding the possibility that my daily 1,000 mcg sublingual might no longer be adequate to address...

Hello all! When I last posted 2 months ago, I had questions regarding the possib...

Greeneyecolor

•1 year ago

13 Replies

NICE Draft Guidelines - separate thread

putting as a separate discussion thread There are several evidence reviews, but the one below has the evidence/trials they reviewed and conclusions they...

putting as a separate discussion thread There are several evidence reviews, but...

dot-dash

•1 year ago

2 Replies

Test for Transcobalamin

The test is: Test code 928 CPT Code 82608 I was excited when I discovered such a test existed. I can not get it without a prescription and there is little...

The test is: Test code 928 CPT Code 82608 I was excited when I discovered su...

WIZARD6787

•1 year ago

2 Replies

Where did the maximum 1 mg a day of Hydroxocobalamin come from.

I lived by the 1mg of Hydroxocobalamin every other day until no further improvement for 2 years with some success. I then questioned why only 1mg every other...

I lived by the 1mg of Hydroxocobalamin every other day until no further improvem...

WIZARD6787

•1 year ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2023

A case study post bariatric surgery

Excellent explanation about B12 and malabsorption: may be due to other things besides pernicious anaemia

Gp agreed to levo dose increase -and talked about B12 injections!

Posting etiquette / reminder about not hijacking people's posts

Hydroxocobalamine

I noticed something.

Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you

Small update for my daughter

B12 doses

Mrjustatip

Burning feet

Can symptoms come and go?

My evaluation of which form of B12 is best.

A fun result

Body Temperature Regulation.

Finally taken seriously

Surprise discovery of PA

B12 telegraph article.

B12 and Serum Folate

Times online article about B12

Mystery Illness

Can too much B12 via injection be harmful?

how long does nerve pain last?

Where do I find my previous posts

'Brain fog' sufferers to be tested for lack of B12

advice please b12/folate

Leg Cramping, Ankle Neuropathy...Help!

NICE Draft Guidelines - separate thread

Test for Transcobalamin

Where did the maximum 1 mg a day of Hydroxocobalamin come from.

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How Often do you feel you actually need your B12 injection?

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