B12 doses

[Green4me]

Hi, I'm after some advice I've not been here for a while and this is the only place I find people understand. I have been having B12 every 10week but as most know it isn't enough for some of us, I've been SI every 2-3 day in between but still feel very tired all the time got no go in me at all so on two occasions ive doubled my does of b12 and both times have helped boost me I have managed for up to 5- 6 days but I'm worried is there a risk upping the dose to two injections instead of one.

[jade_s]

Hi Green4me Plenty of us inject more than that. It's not a race to inject as little as you can, so you can increase to whatever frequency helps.

Instead of doubling up, it might be better to just go daily. That way you get a steady stream rather than a surge every few days.

Make sure folate is ok, b12 needs folate do its job and can use it up. Some people take a B complex to keep the other Bs in balance (avoid those with more than 10mg B6), and/or extra folate.

Low Vit D and iron are two other things that can cause fatigue.

[EiCa in reply to jade_s]

So many deficiencies, viruses/other things can cause fatigue. Have you exhausted the other possibilities? I think there is a danger when on has vitamin B12 deficiency to stop looking for other causes when supplementing doesn't do the job. Of course, increasing the supplementation may help but make sure you (better yet, your doctor) haven't over-looked other causes.

[wedgewood]

I agree with jade_s .

Lately i’ve started to inject by the sub-cutaneous method, after using I.M.for 9 years !

This uses a very fine ( 30 G ) short ( 8 mm ) needle Injecting into the fat layer of the stomach or the front of the thigh. ( I find the thigh best !) This method apparently releases the B12 slowly into the blood , whereas I.M, method releases the B12 more quickly . Optimum amount of liquid is 1ml . I’m using a combined syringe and needle . Less invasive -no pain at all , and working well after 6 weeks . Thought I would just throw that in !

But I think that I.M. would be the best method when starting injections , and newly diagnosed with P.A./ B12 deficiency,

No danger of overdosing as you probably now know .

I think it better to inject less more often , till you improve . Then you can experiment to find the optimal regularity . Best wishes .

[rogergee in reply to wedgewood]

Welcome to the other side wedgewood.

[MrsTuft in reply to wedgewood]

How do you draw up with an all in one insulin needle/syringe? I’d be touching everything with the needle and blunting it? I’d like to try SI C again - last time it REALLY hurt and bruised my tummy so I did something wrong.

[jade_s in reply to MrsTuft]

You can get them separately, just look for a shorter needle. They 8mm ones are sometimes called an insulin needle but you can get them separate from the syringe.

[MrsTuft in reply to jade_s]

Right I’m going to try it. Thank you!

[WIZARD6787]

I suffer more when I inject less and less when I inject more.

I am still working out by guesswork as that is the only way to determine how much to inject and what to inject.

.75 mg three times a day is my current guess.

[Wheat]

hello, I agree with jade and others. Plus your symptoms suggest you need to inject more frequently. I sc inject every day. Best wishes.

[Green4me]

Thank you I was googling to see if there would be side affect or risk from doubling my my B12 injection but getting different view in everything I read like can cause liver or kidney probs increase risk of cancer then a recent study said B12 has never shown any risk at all. So then I thought check with you guys . I think the more often sounds better than double dose then. Thanks again xx

[B12life in reply to Green4me]

Actually the truth is b12 can only be toxic if you have an existing live or kidney function problem. By existing, it was there before b12.

Another fact, B12 injections will never cause. Liver or kidney problems.

So unless you had a preexisting issue already, you can inject all you want as b12 will not be toxic at any level. And no it won't cause cancer. Also in your case, not injecting is more harmful as b12 is responsible for. Cell generation. Our cells regenerate every 120 days. Those cells are vital to life. This if you have a malabsorption problem, you die a slow painful death. This affects brain cells, nerve cells and more! Those are the affects you are experiencing. If left untreated some of the symptoms may become permanent.

The doctors don't understand or recognize these facts. This they undertreat. Many of us have to advocate for ourselves by getting our own supplies and doing the daily injections. This saved me and my career. I went from severe brain fog, intolerable back pain, bed ridden with fatigue, sciatica, heart palpitations to climbing mountains and working normal days. All by doing the things others mentioned here.

docs have to base frequency of injections based on symptoms because the b12 tests are skewed by injections and inaccurate once injections are started. You have to stop injections for several months before the tests will be accurate. There is no point in doing this, just increase the frequency of your injections.

Read this it's medical docs stating all these things I've mentioned.

ncbi.nlm.nih.gov/pmc/articl...

Ironically when I was first diagnosed I had a doc from Mayo Clinic tell me vehemently that b12 wasn't my issue. Then later on I came across this article. Not even their own physicals read their own articles! This goes to show the absolute ignorance of the problem in the medical field.

[BleekerStreet]

I'm absolutely not a doctor, and like many PA sufferers my memory is extremely poor...but I do recall being told that you can't have too much B12 and the body just gets rid of any excess. However, definitely worth checking with your GP I would say.

[B12life in reply to BleekerStreet]

well the problem with deferring to the GO is that the docs misunderstood this issue and take people off the b12 which is the solution. We posted about the same time. Give that medical journal I listed a read. It states that there is gross misunderstanding and underestimation of b12 deficiency in the medical world. I can't even tell docs I inject or they panic and try to convince me erroneously to get off the injections.

I scoured every medical journal and found definitive documentation to back up the facts I stated. I also had my brother an ENT tell me it's not toxic and I could inject. I asked why the other docs think different. He said they just don't pay attention. He ends up treating b12 patients even though it doesn't fall into his fifid because they get neglected. the other problem is docs will state facts that aren't facts.

Bless you for your response. I just want to make clear that asking a doc about whether b12 is toxic doesn't work. It is better they read the articles themselves. That article and the ones that sleepybunny lists backs up these facts.

[BleekerStreet in reply to B12life]

Fair enough. I am just making it clear I am not medically qualified to give advice hence the suggestion to contact your doctor. I agree, mine are pretty useless. It was my cardiologist believe it or not who spotted that there may be a problem with me because of the amount of lanzaprozole I had been prescribed.

[B12life in reply to BleekerStreet]

Right on BleekerStreet. I get it. any contribution on this forum is absolutely appreciated by me.