Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for July 2023

Can you do subcut injection without pinching up skin?

Hello everyone! Previously, I have performed IM self injections. This has largely been fine and unproblematic, but a painful incident on the most recent...

Hello everyone! Previously, I have performed IM self injections. This has larg...

Mereri

•1 year ago

27 Replies

Review of Betine

Betaine -- also called betaine anhydrous, or trimethylglycine (TMG) -- is a substance that's made in the body. It's involved in liver function, cellular...

Betaine -- also called betaine anhydrous, or trimethylglycine (TMG) -- is a subs...

WIZARD6787

•1 year ago

15 Replies

Antibiotics

Got antibiotics for water infection: INTROFURANTOIN, four daily for three days.Are these OK for my B12 levels which, incidentally, I have just recently begun...

Got antibiotics for water infection: INTROFURANTOIN, four daily for three days.A...

3rdNettydoon

•1 year ago

21 Replies

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Evaluating Success

See profile for current understanding of my life long B12 deficiency and self designed supplementation regiment. July 2023 Over time I changed by...

See profile for current understanding of my life long B12 deficiency and self de...

WIZARD6787

•1 year ago

6 Replies

Why di feel tired a lot?

Hi everyone. I've joined the group as recently been diagnosed with pernicious anaemia. Would be really interested in hearing about others experiences with...

Hi everyone. I've joined the group as recently been diagnosed with pernicious an...

Kleptojake

•1 year ago

4 Replies

Would B complex show on blood test?

Hi, please can someone explain? If you are PA, then would Vitamin B complex supplements still show up on blood test results? I had been feeling VERY unwell...

Hi, please can someone explain? If you are PA, then would Vitamin B complex sup...

Ian232

•1 year ago

6 Replies

My Personal Story

My thanks to the Pernicious Society Trustees for including "My personal story" in the Summer 2023 edition of "Cobalamin News" I'm pleased to say that after...

My thanks to the Pernicious Society Trustees for including "My personal story" ...

clivealive

Forum Support•1 year ago

34 Replies

Golfer's vasculitis anyone?

Golfer's vasculitis, or exercise induced vasculities, is a rash around the ankles and lower legs that usually appears after prolonged exercise in hot weather...

Golfer's vasculitis, or exercise induced vasculities, is a rash around the ankle...

WhyAmISoTired

•1 year ago

13 Replies

B12 sub lingual brand and dosage for my daughter

Hello, My daughter is due to get her IFAB result next week and should start injections then too. In the meantime I would like to try out high dose sub-lingual...

Hello, My daughter is due to get her IFAB result next week and should start inj...

Sneedle

•1 year ago

34 Replies

Chronic PA

I was diagnosed with chronic PA in January 2018. Had to go on disability because I have short term memory loss. I was taking a nasal spray which really helped...

I was diagnosed with chronic PA in January 2018. Had to go on disability because...

mm5577

•1 year ago

10 Replies

Hasimotos and B12

HiWas advised to post here instead of Thyroid forum for hopefully better info. I was diagnosed with Hasimotos October 2021. My question revolves around B12....

HiWas advised to post here instead of Thyroid forum for hopefully better info. I...

Jutokids

•1 year ago

6 Replies

Can I take methyl and cyano shots?

I started on cyano shots eod sometime last year but since this year switched to methyl. I have some cyano left over and I would hate to waste it. Is it ok to...

I started on cyano shots eod sometime last year but since this year switched to ...

Blackbeauty876

•1 year ago

3 Replies

Please will you guide me, I'm new to this?

About 4 weeks ago, having felt increasingly tired for some time, I suddenly realised I had many of the symptoms of B12 deficiency. I contacted my GP surgery...

About 4 weeks ago, having felt increasingly tired for some time, I suddenly real...

thyr01d

•1 year ago

14 Replies

Antibody to transcobalamin ii causing functional B12 deficiency?

Summary: I require very high dose/frequency B12 injections just to avoid neurological deterioration; some thoughts about what might be wrong with me...

Summary: I require very high dose/frequency B12 injections just to avoid neurolo...

jeremycat_

•1 year ago

33 Replies

Prayers, good vibes, etc., please!

I travel long-haul tomorrow for the first time since my legs were damaged by B12D. If you can spare and prayer or send some good vibes I’d be so grateful...

I travel long-haul tomorrow for the first time since my legs were damaged by B1...

MrsTuft

•1 year ago

25 Replies

new hematologist questions to ask

any specific questions I should ask the new hematologist I am seeing? Any ideas on responses if they mention anything inaccurate or untrue. I’m hoping to get a...

any specific questions I should ask the new hematologist I am seeing? Any ideas ...

Purplegirl2

•1 year ago

7 Replies

My Life not using up B12

With my current regiment 30 days + I feel I no longer experience using up my B12. I also only experience minor pain. It feels like with administering enough...

With my current regiment 30 days + I feel I no longer experience using up my B12...

WIZARD6787

•1 year ago

2 Replies

Help with getting help please

I had bloods done recently as I'm experiencing extreme fatigue, shortness of breath, difficulty concentrating, generally bring uncoordinated and...

I had bloods done recently as I'm experiencing extreme fatigue, shortness of bre...

Friedeggsontoast

•1 year ago

4 Replies

Am I really lacking B12?

I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic...

I was diagnosed with PA around 2018, I had the camera down which confirmed atrop...

expatkerry

•1 year ago

13 Replies

How does a new member join the thyroid group?

I have a friend with thyroid issues who isn’t in a community help group. Does anyone have a link I can give her to join the thyroid group please? Thank...

I have a friend with thyroid issues who isn’t in a community help group. Doe...

Wwwdot

•1 year ago

1 Reply

Active B12 Tests in the United States

I've had a very difficult time finding any lab in the US that offers active b12 tests, it seems to be rare here. Does anyone know of any? I found a home test...

I've had a very difficult time finding any lab in the US that offers active b12 ...

Lilbrahms

•1 year ago

12 Replies

Happy 4th of July fellow US Americans, and Good Day to my friends elsewhere in the world! I have questions for all:

Refresher: I have b12D Pernicious Anemia with autoimmune metaplasia atrophic gastritis. Recently diagnosed with deficiencies in zinc and copper as well and am...

Refresher: I have b12D Pernicious Anemia with autoimmune metaplasia atrophic ga...

LynetteinUSA

•1 year ago

36 Replies

Vitamin B12 levels

Hello, I am new to the group. My elderly mum has recently had first course of six Vitamin B12 injections and I have recently started back on prescription...

Hello, I am new to the group. My elderly mum has recently had first course of si...

SNOW_DROP

•1 year ago

16 Replies

Medichecks PA test

Hi allJust wonder if anyone has had this complete PA test done. It is expensive at £280. Does it help to give me a definitive diagnosis? ( Something I'm...

Hi allJust wonder if anyone has had this complete PA test done. It is expensive ...

Hollybushroad

•1 year ago

47 Replies

Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test

Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other...

Hello, I recently tested positive for intrinsic factor blocking antibody but th...

mcg-woo

•1 year ago

20 Replies

Border High RDW, Low MCV, High TIBC...what could it be?

Hi everyone, Can someone help in understanding my blood test results? Symptoms I suffer from are fatigue, chest tightness, loss of sensation in legs & arms,...

Hi everyone, Can someone help in understanding my blood test results? Symptoms...

gotbaya

•1 year ago

9 Replies

B vitamin absorbtion

Given that individuals with PA cannot absorb B12 via tablet form are we able to absorb the other B vitamins this way? I'm unclear as to whether IF is needed...

Given that individuals with PA cannot absorb B12 via tablet form are we able to ...

doityourself

•1 year ago

6 Replies

extreme pain

hi, I ve finished all my b12 loading doses 2 weeks ago, I’m still in extreme pain the seems to be getting worse day by day, my skin on my arms hands fingers...

hi, I ve finished all my b12 loading doses 2 weeks ago, I’m still in extreme pai...

Flowerspink

•1 year ago

13 Replies

Does nerve damage show up on an MRI?

Making a new post here to take the subject out of a different thread.Does anyone know if PA/B12 deficiency nerve damage would show on an MRI? I had a clear...

Making a new post here to take the subject out of a different thread.Does anyone...

Sneedle

•1 year ago

7 Replies

Results support please

Hi, I'm a 45 yr old female and I went to the GP last week with a range of symptoms, including onset of pins and needles, limb weakness, tired, mouth sores....

Hi, I'm a 45 yr old female and I went to the GP last week with a range of sympto...

Lampy66

•1 year ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2023

Can you do subcut injection without pinching up skin?

Review of Betine

Antibiotics

Evaluating Success

Why di feel tired a lot?

Would B complex show on blood test?

My Personal Story

Golfer's vasculitis anyone?

B12 sub lingual brand and dosage for my daughter

Chronic PA

Hasimotos and B12

Can I take methyl and cyano shots?

Please will you guide me, I'm new to this?

Antibody to transcobalamin ii causing functional B12 deficiency?

Prayers, good vibes, etc., please!

new hematologist questions to ask

My Life not using up B12

Help with getting help please

Am I really lacking B12?

How does a new member join the thyroid group?

Active B12 Tests in the United States

Happy 4th of July fellow US Americans, and Good Day to my friends elsewhere in the world! I have questions for all:

Vitamin B12 levels

Medichecks PA test

Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test

Border High RDW, Low MCV, High TIBC...what could it be?

B vitamin absorbtion

extreme pain

Does nerve damage show up on an MRI?

Results support please

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