Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,113 members • 23,266 posts

All posts for July 2023

Syringes and needles for B12 I/M injections

Although I have not had a B12 deficiency diagnosis - after a trial of B12 injections which showed some improvements to my neurological symptoms - my GP has...

Although I have not had a B12 deficiency diagnosis - after a trial of B12 inject...

Lemondrizz1

•11 months ago

13 Replies

PA. Side Effect Depression.

Hi Everyone. I was wondering if any other members find they are experiencing any symptoms of Severe Clinical Depression. I appreciate people’s reluctance to...

Hi Everyone. I was wondering if any other members find they are experiencing any...

Varna1968

•11 months ago

36 Replies

Symptoms: what made you go to the GP initially ?

Excuse the length of this post but I think you will see why I'm writing this. I know that I went to the GP first in January 2015 - but didn't keep that diary....

Excuse the length of this post but I think you will see why I'm writing this. I...

Cherylclaire

Forum Support•11 months ago

96 Replies

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Arms aching above elbow

Has anyone experienced this?The top section of my arm muscles aches, sometimes almost painfully, coming and going. Not every day. Sometimes it feels like the...

Has anyone experienced this?The top section of my arm muscles aches, sometimes a...

Sneedle

•11 months ago

16 Replies

paradoxical b12 deficiency - getting injections

hi there I have symptoms of anaemia but b13 comes back high My anxiety is getting the roof and eyesight etc getting very bad Super fatigued all the time...

hi there I have symptoms of anaemia but b13 comes back high My anxiety is gett...

Sarahpoppe232

•11 months ago

4 Replies

B12 Injections stopped as I do not meet crtieria.

Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive...

Good morning I now have information to identify that; 1) the practice update...

b12timbo

•11 months ago

23 Replies

article in the times

One word of caution. A course of high-dose supplements given for at least three months will resolve many deficiencies but, unless diets/medication/underlying...

One word of caution. A course of high-dose supplements given for at least three ...

Hedgehogs15

•11 months ago

1 Reply

found this in todays Times newspaper

Vitamin B12 deficiency is underdiagnosed — here’s what to look for July 17 2023, The Times The last thing a beleaguered NHS needs is more custom, but that’s...

Vitamin B12 deficiency is underdiagnosed — here’s what to look for July 17 2023...

Hedgehogs15

•11 months ago

10 Replies

Temperature sensation

Hi good people! I'm just wondering if any of you have experienced the sensation of cold or hot temperature as part of your reversing out/nerve healing over...

Hi good people! I'm just wondering if any of you have experienced the sensatio...

Cobalt1312

•11 months ago

46 Replies

Private/NHS Haematologist Referral to Access NHS Iron Infusion

Hi Guys Background is that for B12 to work its magic there must be sufficient iron in the body - even being slightly low in iron circa 18% deficient for...

Hi Guys Background is that for B12 to work its magic there must be sufficient i...

Wwwdot

•11 months ago

23 Replies

wondering about lithium orotate

I have recently been told, by a naturopath , that when receving B12 injections it is a good idea to take 5mg of Lithium Orotate daily. They felt it helped...

I have recently been told, by a naturopath , that when receving B12 injections i...

Eowyn1

•11 months ago

8 Replies

Stop B12 Treatment & increase Metformin!

Type 2 diabetes vitamin B12 level 452NG serum folate 4.5 UG. I’ve had anaemia for years and all of the symptoms and more for B12 deficiency/PA . Finally...

Type 2 diabetes vitamin B12 level 452NG serum folate 4.5 UG. I’ve had anaemia f...

Nonameme

•11 months ago

5 Replies

B12 and raised blood pressure

This was recently raised as an issue on the forum. After a little research I found that there is a direct relationship, it seems, between B12d and raised blood...

This was recently raised as an issue on the forum. After a little research I fou...

Orchard33

•11 months ago

1 Reply

retesting blood?

good afternoon All, After being diagnosed P.A and having my loading doses, my symptoms are no better, the dizziness is unbearable and I keep dropping things...

good afternoon All, After being diagnosed P.A and having my loading doses, my s...

Sea_cells

•11 months ago

6 Replies

Daughter starting B12 loading doses- question re supplements

Hello again, I've just got off the phone to GP and she has sanctioned loading doses EOD. She initially offered once every two weeks. I said 'Oh I though they...

Hello again, I've just got off the phone to GP and she has sanctioned loading d...

Sneedle

•11 months ago

26 Replies

Vitamins

I inject sc roughly every other week but am going to try every week. I’ve read that necessary to take folic acid ( various ideas on this re amounts) but do you...

I inject sc roughly every other week but am going to try every week. I’ve read t...

smg1950

•11 months ago

13 Replies

Bit confused and overwhelmed

Hello, Thanks for being there! Recently given advice from GP to start B12 tablets over the counter but told I may need injections in 3 months time after...

Hello, Thanks for being there! Recently given advice from GP to start B12 ta...

Bequia

•11 months ago

20 Replies

B12 / PA roller-coaster and further tests

Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while...

Hi all - I'd really appreciate any support and advice you can all offer please a...

TheSunshineSanctuary

•11 months ago

8 Replies

Which form of B12 is best. My conclusion.

I have concluded to my satisfaction that the best form of B12 is not known. The information I reviewed was based on conclusions based on inductive reasoning...

I have concluded to my satisfaction that the best form of B12 is not known. Th...

WIZARD6787

•11 months ago

8 Replies

Research - support

Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I see from their communications that they are working on a lot of things at the...

Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I ...

LadyBothwell

•11 months ago

7 Replies

burning feet is a lot worse sense getting 7 b12 injections.

Feet were hurting slightly like prickly feelings and now after getting 7 b12 injections the symptoms are now severe burning sensation. Is this expected? Hoping...

Feet were hurting slightly like prickly feelings and now after getting 7 b12 inj...

84withb12d

•11 months ago

14 Replies

"Heterogeneous group of anemias"

This appears to be a chapter from a book. It's an organization of "a heterogeneous group of anemias characterized by the presence of large red blood cell...

This appears to be a chapter from a book. It's an organization of "a heterogene...

WiscGuy

•11 months ago

2 Replies

New to this group

Hi all,I have hashimotos and hypothyroidism and have been a member on the thyroid forum for a while. It's been suggested I post on here for some interpretation...

Hi all,I have hashimotos and hypothyroidism and have been a member on the thyroi...

PurpleChez

•11 months ago

23 Replies

I make my self treatment decisions with the understanding I am working towards a biochemical solution.

Changing one thing at a time is often touted as some strict and novel approach. This does not make sense to me when supplementing. Simplistic example; If you...

Changing one thing at a time is often touted as some strict and novel approach. ...

WIZARD6787

•11 months ago

4 Replies

Bile acid malabsorption

Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having bad stomach issues for a while and with back log seeing consultant took ages ....

Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having...

andepande

•11 months ago

21 Replies

Guardian Article about B12 from algae

An article in the Guardian today about how certain algae harvest b12 and that this could be exploited to create a natural source of B12 for vegans. I was a...

An article in the Guardian today about how certain algae harvest b12 and that th...

Budsa

•11 months ago

7 Replies

B12 injections and Ferritin

Can anyone please answer this question. Will B12 injections increase ferritin levels. My Hematologist says not, but since I started on the B12 injections my...

Can anyone please answer this question. Will B12 injections increase ferritin le...

B52s

•11 months ago

11 Replies

b12 levels

Hi what level should b12 be kept at to repair damage and keep you well?

Hollygray

•11 months ago

6 Replies

Taking Ferrous Sulphate Exhausts Me, Any Alternatives?

Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness,...

Hi All, In February 2023 I requested a blood test from my GP as I felt generall...

Sparklymacarons

•11 months ago

3 Replies

Holiday heat on B12 storage

Hi everyone I’m planning to store B12 in the fridge on holiday as it’s 35 degrees C heat. is that ok to do ? And I wait to warm up ampoule a bit before...

Hi everyone I’m planning to store B12 in the fridge on holiday as it’s 35 degre...

PAapr22

•11 months ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2023

Syringes and needles for B12 I/M injections

PA. Side Effect Depression.

Symptoms: what made you go to the GP initially ?

Arms aching above elbow

paradoxical b12 deficiency - getting injections

B12 Injections stopped as I do not meet crtieria.

article in the times

found this in todays Times newspaper

Temperature sensation

Private/NHS Haematologist Referral to Access NHS Iron Infusion

wondering about lithium orotate

Stop B12 Treatment & increase Metformin!

B12 and raised blood pressure

retesting blood?

Daughter starting B12 loading doses- question re supplements

Vitamins

Bit confused and overwhelmed

B12 / PA roller-coaster and further tests

Which form of B12 is best. My conclusion.

Research - support

burning feet is a lot worse sense getting 7 b12 injections.

"Heterogeneous group of anemias"

New to this group

I make my self treatment decisions with the understanding I am working towards a biochemical solution.

Bile acid malabsorption

Guardian Article about B12 from algae

B12 injections and Ferritin

b12 levels

Taking Ferrous Sulphate Exhausts Me, Any Alternatives?

Holiday heat on B12 storage

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