A fun result: I love to swim and do it... - Pernicious Anaemi...

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A fun result

WIZARD6787 profile image
WIZARD6787
β€’14 Replies

I love to swim and do it a lot. I do know now it may be about body temperature regulation.

I get to swim in a spring fed lake and I am never more than 100 yards from the shore which makes it safer than swimming out in the middle of the lake.

It is a no wake lake so boats are not much of an issue and most often there are none.

I have a habit where I end each swim by doing a handstand in the water. (The key is to find the right depth to do the handstand in. I have taught many people over the years.)

My balance was so bad 2 years eight months ago I could not bend over without the risk of falling. I probably could have done a handstand last summer but did not want to take the risk of failing which would mean going through the winter not knowing if I ever would be able to do a handstand in the water again. (I have given up doing handstands on land due to the risk of injuring if I fall over when doing one. Same with cartwheels.)

So last evening after a most wonderful swim I decided to go for it.

Piece of cake!!!!!!!!!!!!!!!!! A result of my self treatment.

Here is the thing with open water swimming. You can only swim too far once. πŸ™‚ I swim a little bit further until I am tired at the end of my swim then back off then swim a bit further. Does not look like I will be swimming my typical 1/2 mile minimum. I expect to exceed last year's maximum.

I do take a break and hike instead. Swimming is helpful to me as there is a built in danger of drowning which keeps me from pushing too hard. Hiking I will push to hard. Not to th point of injury but when I need to recover. Overtraining is the bane of my training.

Well that is cool! I see what I am doing as leading to training and not simply healing.

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WIZARD6787 profile image
WIZARD6787
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14 Replies
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jade_s profile image
jade_s

πŸ₯³πŸ₯³ πŸ€ΈπŸ€Έβ€β™‚οΈπŸ€Έβ€β™€οΈ congrats!! Amazing what a little bit of b12 can do, right?!

WIZARD6787 profile image
WIZARD6787β€’ in reply tojade_s

In my case, it's a whole lot of B12. A little bit and I never would have experienced that.πŸ™‚

jade_s profile image
jade_sβ€’ in reply toWIZARD6787

πŸ˜‚πŸ˜‚ same. I'm in the 4mg / day club myself.

Btw I'll let you know next year if i continue recovering past 8 years. I suspect the answer will be 'yes'. I still have the hurdle of not being able to work fulltime but i'm getting there. :) oops that was in your other thread...

WIZARD6787 profile image
WIZARD6787β€’ in reply tojade_s

Good on you! How long have you been doing 4 mg?

jade_s profile image
jade_sβ€’ in reply toWIZARD6787

A bit over 6 years!

WIZARD6787 profile image
WIZARD6787β€’ in reply tojade_s

Thank you for replying. It is appreciated. What form? How many injections a day?.

I feel like an inquisitor. Where were you on the night have the 23rd?

jade_s profile image
jade_sβ€’ in reply toWIZARD6787

πŸ˜‚πŸ˜‚

Panpharma hydroxy, 2 ampoules of 1mg/ml in the morning and 2 at night. Folic acid/folinic with each one. I do SC. I tried IM for a while but noticed zero difference, and SC is easier. 27G x 1/2" needle. Let's see what else would you want to know πŸ˜‚

I did actually start out on daily but after a crash 4 months in, went to 2 daily, then 3, then eventually settled on 4. I had surgery a few years ago and missed 1 day, and was a bumbling idiot with burning everywhere.

Recently tried to go to 3 x day. Was fine for 1 day, the next day felt bad so back to 4. Tried again the following week, felt bad the next day. πŸ€·β€β™€οΈ Swaying, tingling, moody. Ah well. It's just expensive. Other than that I don't mind. Gave me my LIFE back, literally 😊

WIZARD6787 profile image
WIZARD6787β€’ in reply tojade_s

Thank you! Until recently, when the others have been expressing they take up to 5 mg a day. I felt like I was a long ranger.

jade_s profile image
jade_sβ€’ in reply toWIZARD6787

I really should put this on my profile but when I started, on both arms, the lower nerve was numb from my elbow to my pinky and ring finger. Zero feeling and no muscle strength either - literally paralyzed. I lost the ability to grip things properly. Sqeezing a bottle of ketchup was impossible.

I had a blind spot in my vision and very large scotoma that blocked everything, like a burning yellow sun.

I had burning everywhere that wasn't numb. Head & face & ears felt like bugs crawling.

I was dropping things constantly and swaying when I walked, going up stairs, showering. I always thought I was just tired!

I couldnt' do any basic math. I had to count on my hands to add 2+3. If I saw some number, e.g. the number 3 or "three", written, I had to really think what quantity that represented. (I am an engineer and could normally do calculus in my sleep!). Forgot how to spell things. What was the difference between "to", "too", and "two", my brain couldn't remember. I used to switch which/witch and write/right around frequently.

Lost the ability to recognize people's faces and remember their names (that dates back to even earlier than most of these symptoms). I still have trouble remembering people's and celebrity names sometimes. We did a quiz a few months ago and I couldn't think of the movie(s) "Lethal Weapon" , one of my favorities πŸ˜‚

I'd watch those 30 minute sitcoms with hubby and by minute 5 would have forgotten the plot. I couldn't retain any information. Lost the ability (patience) to read because nothing I read made sense. Amazing I managed to figure out the B12 stuff - I did more or less remember what I read on B12D, but I took copious notes too.

Let's not even mention the mood/mental issues.

Probably a lot more that I'm not remembering now. Thyroid medication intolerance, for example. Exhausted to the bone. Pain.

About the only things I didn't have from the symptoms list was incontinence, and I still had the ability to walk. But a few more months without treatment and who knows. I was desperate to start treatment because I was afraid of it all becoming permanent.

Some symptoms date back years. The numbness came on literally overnight in 2016 and I started SI about 1 ? month after. I first got kicked out of my GP's office when asking for a B12 test, then did private testing, and then tried 10,000 sublingual B12 for a month while waiting for my B12 to arrive and getting the courage to inject it.

Would loved to have gotten an MRI back then. Doc wouldn't even test IFAB.

I slept for 3 days straight after the 2nd SI and needed frequent, long, naps for months after. I am not a napper normally.

So I'm really ok doing 4x day if it means I don't have to go back to all that πŸ€ͺπŸ˜‚πŸ˜‚

jade_s profile image
jade_sβ€’ in reply tojade_s

Should have calculated this earlier but I had 37 of the 42 symptoms on the list (assuming I counted correctly) pernicious-anaemia-society....

Actually I do remember printing out 2 different PA symptoms checklists and showing them to my doctor, and almost every symptom was checked. Right before she yelled at me "did you go to 7 years of medical school". I had to stop driving halfway home because I was so upset. That's when I decided to SI.

Anyhoo I should go to the gym πŸ’ͺ now instead of whining about spilled milk 😜

WIZARD6787 profile image
WIZARD6787β€’ in reply tojade_s

Thank you for that! Although I have only been on enough B12 for 3 to 4 months, I was getting discouraged.

I would characterize that as expressing and processing trauma, not crying over spilled milk. Hard work that.

jade_s profile image
jade_sβ€’ in reply toWIZARD6787

Thank you for those kind words!! I agree :)

Absolutely do not get discouraged. It takes time. I hit a plateau right at about the 3 month period, and then had my crash at 4 months or so. I had many, many other pleateaus, regressions, up and downs, for several years. But you can see my journey was long. For those with fewer symptoms, it should all go more quickly. But even then, healing from B12 is slowwwwwww so don't lose hope! :)

EiCa profile image
EiCa

Sounds wonderful Wizard. Congratulation on your perseverance. A handstand in water...I can't begin to imagine. I get dizzy standing up!

B12life profile image
B12life

congrats wizard!!!! I revel in your success! I wish I was over there to celebrate with you and everyone here!

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