I was diagnosed with PA many years ago, it was diagnosed over 30 years ago due to a mini stroke (TIA), put on daily B12 for 5 weeks then every 12 weeks. None of my symptoms went away, some abated a little but, never went away. Over the last 5/6 years things have got worse, however no GP would listen when I told them how I felt and told me I was depressed and put me on anti-depressants, things have got even worse now, as GP states my levels are fine. I finally looked up PA on-line and was shocked, I had every symptom, went back to my GP 3 weeks ago, she questioned if I had PA (did not read any notes) but, and a very big but, she referred me to Neurology, got to wait till next year but, at least someone is listening,
I am now getting absesses in my mouth a lot, fatigue is an understatement, I have had to give up driving due to pain, I have developed heart issues any many more symptoms, I often feel like my life is draining away (bit dramatic I know but, this is how it feels for me). Things feel they are getting worse not better, and now I have left work as it was too exhausting and painful.
Thanks for listening
Written by
outlander28
To view profiles and participate in discussions please or .
If your doctor won't agree to increase, you can buy injectable b12 from reputable German pharmacies and do it yourself, like so many of us here do. We can help if you want to go that route.
I too had to stop working for 4 years and now only work parttime the last 3. B12 deficiency can be so easily treated yet ...
Stick around on the forum and you will find you are not alone.
From what I've learned the last 18 months about PA is you rarely get the correct treatment on the nhs, I was diagnosed last year and now treat myself under the care of a private dr. He thinks I have had PA for many years undiagnosed and like you I felt like I was dying at times. Everything was put down to my under active thyroid or depression. One of my sisters has been inadequetly treated on the nhs with 12 weekly injections and is suffering more as the years go by. I still have balance problems and neuropathy which may never heal as my deficiency was left untreated.I urge you not to wait a year. I'm sure with your symptoms and diagnosis your gp at the very least should increase the frequency of your injections. As advised write the letter.best of luck to you.
I’m so sorry to hear of your symptoms. As you see, everyone on this forum has had very similar experiences with the regulations of B12 deficiency. I’m in Australia and it’s no different here than the UK or the US. The best thing you can do for yourself is to self inject daily until your symptoms improve whoever long that may be. Start to focus on yourself and do what is best for you without delay. This is the only thing you can do. Doctors all around the world lack the full knowledge and expertise of PA. Begin your daily treatment as soon as possible. With time, hopefully you’ll improve and hope you don’t have permanent damage of your spinal cord and your nerves.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Low stomach acid
When will B12 injections help?
B12 advice for a friend 
What can a do to help with a very sore tongue?
