B12 patches: It’s okay, I know they’re... - Pernicious Anaemi...

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B12 patches

rogergee profile image
35 Replies

It’s okay, I know they’re not popular as a treatment but please bear with me…

I have specific issues underneath my heel and arch that, I firmly believe, are B12 related and that are not appreciably improving even with B12 injections. Particularly the heel one causes me problems.

This is what I was wondering - while continuing as usual with B12 injections, if I stuck patches onto the affected area, is there any chance that whatever may leak through into me might stick around there and improve those specific symptoms?

Thanks.

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rogergee profile image
rogergee
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35 Replies
jade_s profile image
jade_s

I'm not sure it would do much but it can't hurt and it's worth experimenting, you never know! Please report back ;)

As an anecdote, I recently realized that the multiple numb patches on my back have only recently started to heal, after 7 years of SI. They now itch constantly. I only made the connection when replying to someone else's post 😂. Maybe - and I hate to say this! - you just need more time. Unfortunately nerve healing goes sooooo slowwwwwww 😭

How often are you SI'ing at the moment? You might try increasing the frequency for a month or two and see if anything changes.

rogergee profile image
rogergee in reply tojade_s

That's interesting. I have a largish numb patch on my left leg that's probably been there for about 15 years, and I feel it almost normally when I scratch on there now.

The itch under my arch is one of longest-standing issues, about 20 years, and it is a bit less than it was, but the issue under my heel emerged from problems that arose when the GP refused to allow me to continue with 3 injections a week after the loading dose, despite having severe neurological problems in my foot. What and where it now is, is what it ended up as over a few weeks. So I've had it for about 15 months now.

I SI two or three times a week; sometimes I feel that I need more than others.

I've got some decent biomagnets and I'm going to see if I can still walk if I stick one on underneath my heel. I can always stick one on when I go to bed if it's too difficult in the daytime. And I'll see if energy therapy can shift it. But it's very tenacious!

jade_s profile image
jade_s in reply torogergee

That's great the numb patch on your leg is covering! That's promising.

But I'm sorry to hear about your heel. Have you been to a podiatrist? There might be more going on than just B12, and stopping injections may have just been a trigger. Plantar fasciitis is also common in hypothyroidism, so it could be flaring if you're still working on or having issues with thyroid. It sounds painful so I hope you find a solution or at least a workaround soon!

rogergee profile image
rogergee in reply tojade_s

Thanks jade_s. I found out three months ago that my thyroid has been very out (courtesy of the same Gaslighting Prat) so there's been a lot of hard work done on that since, and I'm definitely winning.

But this is not typical of plantar fasciitis. It gets shooting nerve pains in it too. It's not unbearable, more really uncomfortable, but the odd day here or there when it's been dormant has been absolute bliss.

Given my experiences over the B12 and now the thyroid debacle, other than getting repeat prescriptions or if I have a real medical need, I'm now on a trial separation from the NHS.

jade_s profile image
jade_s in reply torogergee

LOL - sorry not laughing at you but with you. I also took a long separation from my G.P. (i like your version!!). Sometimes they are just .... !! Sorry you've had such bad experiences. I'm glad to hear your thyroid journey is progressing now.

I guess I'll get back on my soapbox: frequency injections. I would stick to 3x/week for a while, try to keep it consistent, make sure folate levels are ok. And I would try to keep injections frequent enough that you never feel you need more, if that makes sense.

I hope the biomagnets give some relief in the meantime!

rogergee profile image
rogergee in reply tojade_s

I don't mind of you laugh at me either!Great advice, thanks very much. I'll do that.

Technoid profile image
Technoid

Nanofiber patches show promise in animal models :

pubmed.ncbi.nlm.nih.gov/366...

but outside of a future commercialization of such technology, most likely a waste of your money. It is possible you might feel better via placebo effect from these patches but whether thats worth the money or not is up to you.

rogergee profile image
rogergee in reply toTechnoid

Thanks Technoid. Tbh I wouldn't mind a placebo effect if the pain and discomfort stopped, but I think I'll go along the energy therapy route for now.

Nackapan profile image
Nackapan

I can't see this working.I agree more time.

I had problems with pains above mg heel at the back .

Never worn high heels ax j know thud csn shorten this tendon.

It went

Don't events know when as so many symptoms and a very gradual improvement

rogergee profile image
rogergee

Thanks.

Divine1990 profile image
Divine1990

I have found Low Dose Naltrexone(LDN) has helped me so much with pain and discomfort in my foot, calf and buttock, as well as with other various aches. I continue to inject B12 si every other day and have done so for approximately 3 years. @ldnresearchtrust.org for more information. I also have Hashimoto's and take NDT together with various recommended supplements.

Prior to LDN I had been to a private Podiatrist who diagnosed arthritis who recommended a bespoke insole which probably cost the same price as a pair of ' Jimmy Choo's'! The insoles helped a little although I often wonder if I should have just bought the designer shoes??

Over the years I have tried a chiropractor, pilates and a reflexologist all of which helped to a certain extent. I have also had surgery for Mortons Neuroma . LDN has been the most effective treatment sofar.

Good Luck

Mixteca profile image
Mixteca in reply toDivine1990

I posted about LDN if you'd like to comment on there too :-)

rogergee profile image
rogergee in reply toMixteca

I didn't see your post Mixteca.

Divine1990, where do you get your patches from please?

rogergee profile image
rogergee

Wow! I'm glad you've had at least some little help from that outlay!

I used to be a patient at the Homeopathic Hospital in London. After around 12 years of being a patient there the NHS strop over complementary treatments meant that we had to pay for our homeopathic treatments prescribed on the NHS script. I was finally being discharged about three years after this and my consultant, who sometimes wore sparkly shows that lit up, said, "Shall I give you this last prescription or would you prefer to keep the £100 and go shopping instead?" Covent Garden it was!

Thanks for the LDN info. I'll look into those patches, they sound good.

After an evening with a magnet stuck to the under side of my heel I can report back that the pain and discomfort when walking was not much different to how it is without the magnet, butI wouldn't be able to go out in shoes and walk around with it there. No shooting nerve pains in that time though. I'm just going to take it off now.

I have Hashimoto's and take NDT as part of my daily cocktail too. Cheers to good health!

PhilAB profile image
PhilAB

Healing is a very long process. I been SI for nearly 3 years, methyl and Hydro daily. I also have gone to an organic (local sourced from a farm I trust). I also avoid gluten, alcohol, gluten. In addition I take many supplements to aid healing, and avoid vaccines and modern pharma.

I have healed so much, but I still have some healing to go.

Patches wont do anything.

rogergee profile image
rogergee in reply toPhilAB

Thanks!

Dee011960 profile image
Dee011960

Hi

So sorry to hear your troubles. Are you sure you don't have Plantar Faciatis? I only say this as a few years ago I had heel pain. I saw an Osteopath, as I couldn't get an appointment with gp, he gave me exercises and also recommended that I use a specific Plantar Faciatis insole! Since then no heel pain, but I'm careful not to wear flip flops as there is no support in them.

I hope you get to the pain sorted out quickly.

Dee

rogergee profile image
rogergee in reply toDee011960

Thanks Dee. I'm pretty sure it's not that.It's a good foot day today following the evening and night of a magnet stuck under it! Long may it continue. I need to get some other stuff thrown at it to conquer it.

phoenix80 profile image
phoenix80

I'd say there's no harm in trying. I've been giving patches a go between my injections for the last couple of months. I didn't think they'd work at all, but on the day I have the patch on I get the same calm chilled out feeling I get after my jab, and I'm pretty sure they improve my energy levels too.

rogergee profile image
rogergee in reply tophoenix80

That's really interesting phoenix80, thanks for letting me know. Maybe I will try it out after all...

wedgewood profile image
wedgewood

I tried patches some years ago , with no result at all . A scientist on the forum said that B12 molecules are too large to be absorbed through the skin .

rogergee profile image
rogergee in reply towedgewood

Thanks for that wedgewood.

Technoid profile image
Technoid in reply torogergee

yep, I think thats why these nanofiber patches (if they were available) would be needed to get the B12 through. Anything currently available without such technology or similar is likely bunk with no effect beyond placebo.

rogergee profile image
rogergee

Thanks Technoid.

I've started putting a decent homeopathic cream for aches and pains on it this afternoon and I'm going to treat it to some different complementary therapies to see if anything does the trick.

Technoid profile image
Technoid in reply torogergee

Homeopathy stuff should be pretty harmless as there would be no active ingredients - similar to patches, could help via placebo.

rogergee profile image
rogergee in reply toTechnoid

Its always interesting to read your posts Technoid.

Homeopathic and traditional remedies are by no means all placebo effect only. However, medical doctors' opinions, plus my open mind and lived experiences, are more than happy to agree to differ with you.

Have a lovely day. It's sweltering here.

Technoid profile image
Technoid in reply torogergee

blistering! 😅🌞

MoKayD profile image
MoKayD

You might want to try red light therapy for your feet. I know it sounds crazy but I bought a red light foot therapy device which I try to use it every day. I think it's helping to bring some feeling back to my toes. I'll try pretty much anything (as long as it can't do more harm) to fix the issues B12 deficiency has caused. I keep throwing different therapies at the wall hoping something will stick.

rogergee profile image
rogergee in reply toMoKayD

Oh bless! I've not heard of red light therapy. I'll look it up. Thanks.

Do you mind me asking what else you've tried?

Hope you get the feeling back in your toes soon.

MoKayD profile image
MoKayD in reply torogergee

I started receiving acupuncture treatments last year. This is helping but nothing has completely reversed the damage to my nerves. When I first started receiving these treatments I couldn't feel when the needles were being inserted into and between my toes. Now I do feel it and it hurts, a lot.

rogergee profile image
rogergee

Ooh, I feel your pain! I'm really pleased that the acupuncture is helping improve things for you - hopefully it will continue to make more improvements.

Wwwdot profile image
Wwwdot

Rogeree

Wow! What a diverse spectrum of replies!

I personally would try injecting every day - probably cheaper and quicker than patches and time is of the essence to see if your arches can be revived - nothing to lose.

I have long standing numbness (45 years ) around an appendix scar and this area has changed in sensitivity in the last few months since I upped to every day injections. It’s hard to explain the change but it doesn’t feel quite so “not a part of me” - if that makes sense ?

I would also try reflexology - I go every couple of weeks and all kinds of good weird things are happening - I have had a tummy gurgle (🤪) first in years! some hiccups too again first in a long time 😂 and my cramps have lessened so I am not afraid to flex my feet now. I chose a very experienced reflexologist and I cannot feel her do the massage - it’s as if she takes my feet off!

Good luck with your experiments. Please keep us informed! 🤗🤗🤗

rogergee profile image
rogergee in reply toWwwdot

Hi Wwwdot. Thanks for your reply and your interest. Sorry for the tardy response but I treated myself to a necessary leave of absence.

You sound like you’re having amazing results. I hope you get even more.

I’m having some success with a combo of magnets, Reiki, the fantastic pain cream, plus some therapies that are a bit more out there. I’ve upped my jabs to a definite three times a week for now. The itching underneath my arch has reduced, both in intensity and in frequency. Phew. The pain under my heel has gone wandering from the left side over to the right, and back again to settle in a slightly different spot on the left. It’s not out of the norm for it to move around like that . The intensity of the pain is less overall, but the neurological episodes that go on inside there are a bit more intensified.

I know I will be able to conquer these things with the combo of things that I’m able to access easily.

Wwwdot profile image
Wwwdot in reply torogergee

Rogergee sounds like you too are making progress it’s all trial and error! Well done 🤗🤗🤗

rogergee profile image
rogergee in reply toWwwdot

Thank you!

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