supplements b12 jab: Hi All, Is there... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

supplements b12 jab

Spick profile image
11 Replies

Hi All,

Is there any daily additional supplement that could be taken with 3 monthly b12 jab ?

Written by
Spick profile image
Spick
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Technoid profile image
Technoid

A good diet beats any amount of supplements and provides benefits you can't get from a supplement.

hsph.harvard.edu/nutritions...

But supplement for anything you can/won't get via diet or if approaching deficiency/deficient. Everyone normally suggests folate, 400mcg - sensible for "standard american diet" or with absorption issues, not needed if you're eating lots of legumes/grains/leafy greens. Many won't (or can't) eat this way so a folate supplement makes sense in that case.

Spick profile image
Spick in reply to Technoid

Thanks for reply

jade_s profile image
jade_s

Do you still have low b12 symptoms?

Spick profile image
Spick in reply to jade_s

Thanks for reply

Sleepybunny profile image
Sleepybunny

Hi,

If you have or had neurological symptoms , I would expect you to be on the treatment pattern for those with "neurological involvement" outlined in link below which is

a B12 loading injection every other day for as long as symptoms continue to improve then a maintenance B12 injection every 2 months.

cks.nice.org.uk/topics/anae...

How many loading injections did you get at the start of your treatment?

Examples of neurological symptoms associated with B12 deficiency can be found in lists below

Symptoms of B12 Deficiency (folate deficiency also mentioned)

pernicious-anaemia-society....

b12deficiency.info/signs-an...

cks.nice.org.uk/topics/anae...

b12-institute.nl/en/symptom... (from B12 Institute Netherlands)

Symptoms of Peripheral Neuropathy (damage to peripheral nerves)

nhs.uk/conditions/periphera...

Peripheral neuropathy can be associated with B12 deficiency and sometimes with folate deficiency.

Unhappy with your treatment (UK info)?

How to write letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

Link to thread about Patient Safety. Has useful links for those having difficult health experiences in UK.

healthunlocked.com/pasoc/po...

Some UK forum members resort to treating themselves if NHS treatment is not enough.

Some get extra injections from private GPs or beauty salons, some try high dose oral B12 but this doesn't work for some people and some as a last resort turn to self injection.

I tried high dose oral B12 which for me was not effective although it did help a little bit.

I can post a lot more info that might be useful, just let me know if you'd like that.

Spick profile image
Spick in reply to Sleepybunny

Thanks for reply

PaintLadie profile image
PaintLadie

Metyhl-folate and B-6

Spick profile image
Spick in reply to PaintLadie

Thanks for reply

HeartyGilly profile image
HeartyGilly

sounds like you need injections more frequently, like most of us do,

Spick profile image
Spick in reply to HeartyGilly

Thanks for reply

Midnight_Voice profile image
Midnight_Voice

SI in the intervening months. If you have PA, no B12 that you can take orally is likely to be effective 😢

Not what you're looking for?

You may also like...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

seeing neurologist, advice on b12 injections welcomed…

hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70....

Has anyone had insomnia from B12 injections?

I have not been able to sleep since my B12 loading injections (EOD for 6 weeks) - has this happened...

About German online Pharmacies. — If they follow pharmaceutical rules rules,they are not allowed to supply U.K. with B12 ampoules!

I was pleased the other day to find a newly discovered German online Pharmacy ,which would ship to...