Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for September 2022

Serum Folate Level Help Please!

Any thoughts please lovely people as I'm getting in a bit of a pickle again. Had to have FBC before I see Memory Clinic man. my latest folate result is...

Any thoughts please lovely people as I'm getting in a bit of a pickle again. ...

Sallybones

•2 years ago

10 Replies

New interloper from a neighbouring forum - advice please

I’ve put a very potted history in my bio. My question is- of the recent blood results, which would be the most useful to post seeking guidance from you...

I’ve put a very potted history in my bio. My question is- of the recent blood re...

Daisywhoopsa

•2 years ago

12 Replies

Symptoms and reactions after B12 injections

Hi all, Im new to this group and its been quite encouraging to read all the info and support on here. Im a fairly healthy 35 yr old male in Canada. Very active...

Hi all, Im new to this group and its been quite encouraging to read all the info...

Hidden

•2 years ago

6 Replies

Want to take advantage of all our features? Just log in!

High Intensity Exercise with b12

Does anyone have any experience with extensive and sometimes intense daily exercising and the impact on the b12? Have you had to increase the dose and if so...

Does anyone have any experience with extensive and sometimes intense daily exerc...

B12life

•2 years ago

11 Replies

hydroxycobalamin and light exposure

Hello all, I am careful to store my hydroxy ampoules in a dark, temperature controlled place. How critical is it that the serum is temporarily exposed to...

Hello all, I am careful to store my hydroxy ampoules in a dark, temperature con...

EiCa

•2 years ago

13 Replies

Dr sarah myhill

there are many websites Dr Sarah Myhill writes on B12 and supplements For neuropathy.

there are many websites Dr Sarah Myhill writes on B12 and supplements For neur...

Hidden

•2 years ago

2 Replies

”normal no action needed”?

Good evening I hope you are all well. I have had my bloods done recently as I have been feeling “off” dizzy/off balance, exhausted, twitchy eye lids, burning...

Good evening I hope you are all well. I have had my bloods done recently as I h...

Shazy-B

•2 years ago

14 Replies

Criticized for frequency of b12 injections

How to respond to the criticism about your b12 shot regimine or how often you get it (from people thinking it’s a waste of $ since your body pees out the extra...

How to respond to the criticism about your b12 shot regimine or how often you ge...

Purplegirl2

•2 years ago

7 Replies

I despair

Just back from the surgery. Arrived for an overdue IM B12 injection booked. Terrible trouble gettibg an appointment. Still 'reeling ' from' letter recieved'...

Just back from the surgery. Arrived for an overdue IM B12 injection booked. Te...

Nackapan

•2 years ago

47 Replies

Storage of B12

In the recent UK hot weather I completely forgot about moving my b12 supply and it was on and off in a hot room. The colour looks the same but I wondered if...

In the recent UK hot weather I completely forgot about moving my b12 supply and ...

Cakebake

•2 years ago

9 Replies

Have just been refused B12 injection

Hi, I'm due to have a B12 injection this Friday. I went to pick up the prescription from my GPs and they said I don't need them any more (I've been having...

Hi, I'm due to have a B12 injection this Friday. I went to pick up the prescri...

Liz0808

•2 years ago

21 Replies

self injection question

morning For those that self administer, where do you purchase from ? Also, for those that inject daily, what mg do you use? Thanks

morning For those that self administer, where do you purchase from ? Also, ...

Mammaelf

•2 years ago

8 Replies

Methylcobalamine spray or lozenges?

Good morning, I read that some of you use methyl lozenges or spray. Does that help get you through the times that you start to crash? Can we absorb it with PA?...

Good morning, I read that some of you use methyl lozenges or spray. Does that he...

EllaNore

•2 years ago

18 Replies

is there a good time of day to take your b12 shot

So we have been given permission to do B12 shots at home combined with 200 mg ferrous sulphate and 20,000 of Vit D by our GP who will be doing further...

So we have been given permission to do B12 shots at home combined with 200 mg fe...

Worksop1

•2 years ago

55 Replies

Homocysteine levels after injecting

Homocysteine Your Value 8.1 umol/L Standard Range <15 umol/L Good morning all. My homocysteine levels look pretty good. Right? I'm wondering if that is...

Homocysteine Your Value 8.1 umol/L Standard Range <15 umol/L Good morning a...

EllaNore

•2 years ago

21 Replies

Deeply concerned for my health

Hey guys its me again oops I am growing increasingly and genuinely worried. I have never felt so insidiously exhausted. Its tiring to raise a cup to my mouth....

Hey guys its me again oops I am growing increasingly and genuinely worried. I h...

ozwald28

•2 years ago

46 Replies

Got to take the wins!

I’m over the moon and I feel the need to share as it’s you lovely people that have encouraged me not to give up and to fight for my health. I went to see a...

I’m over the moon and I feel the need to share as it’s you lovely people that ha...

Sparklyjenson

•2 years ago

19 Replies

Shingles Vaccination - any pointers please?

As I'm in my early 70's I qualify in the optimum age group to receive the Shingles Vaccination, but on looking at info about the vaccination I found there are...

As I'm in my early 70's I qualify in the optimum age group to receive the Shingl...

JanCymru

•2 years ago

38 Replies

My condolences 🇬🇧

Like many others, I would like to offer my condolences here, too. I have friends in the UK and a big family in Canada, although I didn’t speak to them yet, I...

Like many others, I would like to offer my condolences here, too. I have friends...

Lunario

•2 years ago

3 Replies

The Queen’s passing

Condolences to everyone in the Great Britain and The Commonwealth on the passing of the Queen. Union Jack at half-mast here in West Virginia. Long live the...

Condolences to everyone in the Great Britain and The Commonwealth on the passing...

pvanderaa

•2 years ago

5 Replies

To my British Friends...

My heart is broken for the loss of your beloved Queen Elizabeth. While I am an American, I feel as if she was my Queen as well and will miss her so very much....

My heart is broken for the loss of your beloved Queen Elizabeth. While I am an ...

Hidden

•2 years ago

10 Replies

all good for now

afternoon everyone. I went to the nurse yesterday morning and had my yearly bloods taken, then had my B12 injection. I managed to get them in this order. I...

afternoon everyone. I went to the nurse yesterday morning and had my yearly bloo...

Hedgehogs15

•2 years ago

8 Replies

B12 and low neutrophils follow up

hello everyone Here's a follow up on my previous post. I saw the GP who had originally ordered the B12 tests yesterday. I think it was the best GP...

hello everyone Here's a follow up on my previous post. I saw the GP who had or...

Hidden

•2 years ago

14 Replies

Any Side Effects from Methylcobalamin injection?

Any side effects to look out for? I’m finally getting methyl injections twice a week (along with a cyano injection once a week). The reason why is because I...

Any side effects to look out for? I’m finally getting methyl injections twice a ...

Purplegirl2

•2 years ago

8 Replies

ACTIVE B12 results of 98.2 pmol/L does that 100% def exlude PA

As per title really, thinking the symptoms must be more to do with low iron levels but just want to be 100% sure before we should stop persuing GP for...

As per title really, thinking the symptoms must be more to do with low iron leve...

Worksop1

•2 years ago

7 Replies

Constantly high white blood cells and raised CRP

hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs...

hi everyone, please could someone help me with this question, I have for the pa...

Steph0077

•2 years ago

4 Replies

Locate hydroxocobalamin injections

I am having weekly visits with my doctor for blood tests for very low hemoglobin the doctors have said that they can't find anywhere i am loosing blood. I have...

I am having weekly visits with my doctor for blood tests for very low hemoglobin...

Tankbuck

•2 years ago

2 Replies

Drugs that deplete B Vitamins

A good website might help people what to avoid hhtps://drperlmutter.com Titled Drugs that deplete B. VItamins

A good website might help people what to avoid hhtps://drperlmutter.com Titled ...

Hidden

•2 years ago

8 Replies

Neurologists & hematologists in London for B12 neurological symptoms - recs pls?

Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been...

Hi all - Can anyone recommend a good neurologist & hematologist in London to con...

PA_newbie

•2 years ago

7 Replies

pain killers for severe sciatica

If I have PA can I take Ibuprofen or any other anti inflammatories for severe sciatica & back pain? I have been using paracetamol but it’s not really helping....

If I have PA can I take Ibuprofen or any other anti inflammatories for severe sc...

Agapanthus1

•2 years ago

25 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2022

Serum Folate Level Help Please!

New interloper from a neighbouring forum - advice please

Symptoms and reactions after B12 injections

High Intensity Exercise with b12

hydroxycobalamin and light exposure

Dr sarah myhill

”normal no action needed”?

Criticized for frequency of b12 injections

I despair

Storage of B12

Have just been refused B12 injection

self injection question

Methylcobalamine spray or lozenges?

is there a good time of day to take your b12 shot

Homocysteine levels after injecting

Deeply concerned for my health

Got to take the wins!

Shingles Vaccination - any pointers please?

My condolences 🇬🇧

The Queen’s passing

To my British Friends...

all good for now

B12 and low neutrophils follow up

Any Side Effects from Methylcobalamin injection?

ACTIVE B12 results of 98.2 pmol/L does that 100% def exlude PA

Constantly high white blood cells and raised CRP

Locate hydroxocobalamin injections

Drugs that deplete B Vitamins

Neurologists & hematologists in London for B12 neurological symptoms - recs pls?

pain killers for severe sciatica

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive