Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,955 members • 23,096 posts

All posts for September 2022

extraordinarily tired feel like im going to die

Hi I've posted a lot this week so thanks to all who have been responding. I cleaned a bit yesterday, hoovered - changed my bedding - had a shower - watered...

Hi I've posted a lot this week so thanks to all who have been responding. I c...

ozwald28

•2 years ago

18 Replies

Pg/ml vs Ng/L ? whats the difference ?

Hey guys Sorry if this is a really silly question. Im seeing a lot of different numbers popping up for b12 levels and i am confused by the interchange of...

Hey guys Sorry if this is a really silly question. Im seeing a lot of differe...

ozwald28

•2 years ago

6 Replies

Questions for Hematologist?

Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday, September 7th. I would appreciate suggestions for questions. Background: I...

Good afternoon, I’m scheduled to meet a new oncology hematologist on Wednesday,...

BgpjbA

•2 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Michael J Fox

Michael J fox on b12 and Parkinsons, how he Hope's treatment with B12 will slow down Parkinsons

Michael J fox on b12 and Parkinsons, how he Hope's treatment with B12 will slow...

Hidden

•2 years ago

2 Replies

Getting a PA diagnosis & treatment In Herefordshire & Worcestershire CCG.

I would like to connect with others who are experincing difficulty in diagnosis and treatment in the Herefordshire & Worcestershire Clinical Comissioning...

I would like to connect with others who are experincing difficulty in diagnosis ...

cloudspotting

•2 years ago

5 Replies

Thank you

Just to thank you to all who gave me info on how and what to purchase so I could SI ( self inject). My goodies come this week, it was as easy as everyone said...

Just to thank you to all who gave me info on how and what to purchase so I could...

Ozzy123

•2 years ago

14 Replies

Autoimmune Registry

All, I don't think this is off topic as it does pertain to possible research opportunities for Pernicious Anemia and other autoimmune diseases. I will be...

All, I don't think this is off topic as it does pertain to possible research op...

Rexz

•2 years ago

17 Replies

Can a B12 Deficiency Cause Swelling in my Legs

Another web page on WWW.Livestrong.com Sorry I am useless on computers and linking websites.

Another web page on WWW.Livestrong.com Sorry I am useless on computers and l...

Hidden

•2 years ago

19 Replies

Taking B12 injections daily.

Hi Guys and Girls, This site has been a tremendous help and blessing for me and my GP, who knew little about PA. I am injecting 1ml of methylcobalamin EOD,...

Hi Guys and Girls, This site has been a tremendous help and blessing for me an...

RisingOne

•2 years ago

24 Replies

What tests do I need to ask my GP for to rule out/diagnose PA?

Hello everyone, I apologise in advance as this post will be quite long but I want to give as much info as possible about my situation. I have an autoimmune...

Hello everyone, I apologise in advance as this post will be quite long but I wa...

Hidden

•2 years ago

16 Replies

B12 level 149ng/l equivalent to 109pmol/L. How low ??????

Hello, can anyone advise me please on my B12 level Is my result classed as very low or not too bad? Just to give me an idea really it's not one of my...

Hello, can anyone advise me please on my B12 level Is my result classe...

Lucy5555

•2 years ago

11 Replies

drop in levels 238-201

I had b12 test March this year 238 and again last week 201. In the meantime I packed in alcohol and went on a diet dropped from 22st 7 to 18 so far. I thought...

I had b12 test March this year 238 and again last week 201. In the meantime I p...

Taff178

•2 years ago

10 Replies

connective tissue disease and B12 Deficiency

The many faces of Cobalamin www.ncbi.nim.gov . for those who like to investigate

The many faces of Cobalamin www.ncbi.nim.gov . for those w...

Hidden

•2 years ago

8 Replies

Self treatment for PA symptoms, is it possible?

Hi everybody and TY in advance for any input. So I think I may be low in B12 and with hindsight have been for along time. I dont think its as bad as alot of...

Hi everybody and TY in advance for any input. So I think I may be low in B12 and...

Worksop1

•2 years ago

21 Replies

May have PA / diagnosis / symptoms

I presented with what i thought was carpal tunnel in both wrists. They said its rare at my age (28) to get that and for it to develop suddenly at the same time...

I presented with what i thought was carpal tunnel in both wrists. They said its ...

ozwald28

•2 years ago

18 Replies

B12 injections & Seizures?

I recently had a seizure which ended up with me spending the evening in hospital and now awaiting an appointment with a neurologist at a regional teaching...

I recently had a seizure which ended up with me spending the evening in hospital...

CyclingDog

•2 years ago

17 Replies

Dealing with PA as well as low iron and ferritin

HI all, I finally got my b12 back on track, but dealing with a serious iron deficiency. I've always been anemic. I guess that goes along with PA. But,...

HI all, I finally got my b12 back on track, but dealing with a serious iron d...

Wowo23

•2 years ago

8 Replies

abnormal MCV - what does it mean? Any ideas please?

I have had an abnormal MCV result after having routine blood tests and have had many abnormal MCV and MCH results in the past. Years ago I asked my GP what it...

I have had an abnormal MCV result after having routine blood tests and have had...

Artemis2

•2 years ago

15 Replies

pernicious anemia

Is any one suffering from severe fatigue like at 10am fatigue and around 3pm daily iam unble to work iam getting must sleep feeling if any one experienced...

Is any one suffering from severe fatigue like at 10am fatigue and around 3pm da...

ack6959

•2 years ago

2 Replies

Expiry Date on Ampoules of B12 Depot (Hydroxocobalaminacetat 1,000 IU)

Hi guys, It's been a long time since posting here but have still been checking on posts, periodically. Have been on sub-cut B12 for many years now, in...

Hi guys, It's been a long time since posting here but have still been checkin...

JMN2017

•2 years ago

21 Replies

Nucleated Red Blood Cell Count Raised

Hiya I was hoping someone can help me to make sense of my blood test. The Nucleated Red Blood Cell Count (NRBC) result was as follows: 0.01 10^9/L It is...

Hiya I was hoping someone can help me to make sense of my blood test. The Nucle...

Sparkle44

•2 years ago

23 Replies

Encouragement…..

After 10 years of neurological complications I finally had an neurologist appointment and yesterday a brain scan. I’m pretty sure everything will be done to...

After 10 years of neurological complications I finally had an neurologist appoin...

RoseFlowerDew

•2 years ago

3 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2022

extraordinarily tired feel like im going to die

Pg/ml vs Ng/L ? whats the difference ?

Questions for Hematologist?

﻿Michael J Fox

Getting a PA diagnosis & treatment In Herefordshire & Worcestershire CCG.

Thank you

Autoimmune Registry

﻿Can a B12 Deficiency Cause Swelling in my Legs

Taking B12 injections daily.

What tests do I need to ask my GP for to rule out/diagnose PA?

﻿B12 level 149ng/l equivalent to 109pmol/L. How low ??????

drop in levels 238-201

﻿connective tissue disease and B12 Deficiency

Self treatment for PA symptoms, is it possible?

May have PA / diagnosis / symptoms

B12 injections & Seizures?

﻿Dealing with PA as well as low iron and ferritin

abnormal MCV - what does it mean? Any ideas please?

﻿pernicious anemia

Expiry Date on Ampoules of B12 Depot (Hydroxocobalaminacetat 1,000 IU)

Nucleated Red Blood Cell Count Raised

Encouragement…..

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

Michael J Fox

Can a B12 Deficiency Cause Swelling in my Legs

B12 level 149ng/l equivalent to 109pmol/L. How low ??????

connective tissue disease and B12 Deficiency

Dealing with PA as well as low iron and ferritin

pernicious anemia