Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,955 members • 23,096 posts

All posts for September 2022

Anyone in Spain?

I’m living in northern Spain. My symptoms were so bad I thought I had MS. After 2 years of telling me it’s just age, arthritis etc and telling to take...

I’m living in northern Spain. My symptoms were so bad I thought I had MS. After ...

Baklava22

•2 years ago

7 Replies

Might bring a smile to you face

A professor's statement today I Quote "If a G.P. allowed an ill person to leave their Surgery without Medication or treatment, that doctor could be sued."...

A professor's statement today I Quote "If a G.P. allowed an ill person to leave...

Hidden

•2 years ago

10 Replies

Worsening symptoms despite injecting 2mg B12 daily

Over the past year I’ve found I’ve been needing increasing amounts of B12 injections in order to continue improvement in symptoms/avoid deterioration- from...

Over the past year I’ve found I’ve been needing increasing amounts of B12 inject...

jeremycat_

•2 years ago

16 Replies

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sourcing from germany

I have in the past used amazon to source my hydrocobalamin but I cant seem to be able to do it anymore … has something changed since my last order? Thank you...

I have in the past used amazon to source my hydrocobalamin but I cant seem to be...

emjayvee

•2 years ago

8 Replies

Very high IgE levels

Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from...

Does anyone else with autoimmune PA have a sky high IgE level as I do? Since dia...

summersj

•2 years ago

2 Replies

Negative MMA test, but ongoing B12 issues?

Hello. I have some questions for those that live with PA. Can PA randomly develop at any point in your life? I’m 25, my issues started around the age of 18....

Hello. I have some questions for those that live with PA. Can PA randomly devel...

kiisa

•2 years ago

42 Replies

Does anyone know a pharmacy that ships to US?

I am looking for the 2ml ampules. They don't have them in N. America. Does anyone know of a pharmacy that ships to US?

I am looking for the 2ml ampules. They don't have them in N. America. Does any...

B12life

•2 years ago

7 Replies

Post surgery symptoms are bad again

just over a week ago I had laparoscopic surgery for a hernia, now my legs and arms are back to stinging and burning worse than before the op and starting B12....

just over a week ago I had laparoscopic surgery for a hernia, now my legs and ar...

Scott-rock

•2 years ago

7 Replies

Symptoms during B12 loading phase?

Just checking that my symptoms flare is usual with B12 loading doses. First dose last Thursday and on Saturday I had nerve pain across my mastectomy scar...

Just checking that my symptoms flare is usual with B12 loading doses. First dose...

MyrtleMac

•2 years ago

20 Replies

It's all in our heads!

Sorry in advance for a completely unhelpful post that will only make people cross but I had to share this with people who understand how frustrated I feel now...

Sorry in advance for a completely unhelpful post that will only make people cros...

Clare184

•2 years ago

57 Replies

Arnika Apotheke have become a nightmare to order from.

They used to be so good. I'd send them an email with what I wanted, they'd send a paypal link the same day, I'd pay and a few days later I'd receive my...

They used to be so good. I'd send them an email with what I wanted, they'd send...

AgeOfCapricorn83

•2 years ago

1 Reply

Stopping B12 and folate supplementation to assist diagnosis??

As a follow up from my first post https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare, I...

As a follow up from my first post https://healthunlocked.com/pasoc/posts/1485435...

Beccy_123

•2 years ago

2 Replies

What is the reason for not injecting with the 2ml daily

I am doing so much better on the day of my injection. The next day I start going downhill with symptoms. Pain in feet, balance issues and sleep issues. I...

I am doing so much better on the day of my injection. The next day I start goin...

birdsforme

•2 years ago

23 Replies

Help with diagnosis (GP) and anyone sought help from private healthcare?

Hi, I recently learned about PA after googling my comprehensive blood test results recently. I joined the PA society this weekend and I have found myself here...

Hi, I recently learned about PA after googling my comprehensive blood test resul...

Beccy_123

•2 years ago

17 Replies

Pernicious Anemia - Self Injecting

I have ordered VB12 from Germany which has just arrived. I’m not sure what size needles to order and wondered if someone could advise me please? I’m 70kgs and...

I have ordered VB12 from Germany which has just arrived. I’m not sure what size ...

Chelsea01

•2 years ago

5 Replies

More information for south west

https://remedy.bnssgccg.nhs.uk.b12def One noticable comment made was that levels over 200 need not be tested again for two years, Stating that it was...

https://remedy.bnssgccg.nhs.uk.b12def One noticable comment made was that level...

Hidden

•2 years ago

14 Replies

B12 ampulles Germany

im trying to order from versandpro its 2 years since last order which was difficult now im finding it impossible i have my previous invoice which you'd think...

im trying to order from versandpro its 2 years since last order which was diffic...

Pasjc

•2 years ago

9 Replies

Dry mouth

Im on levothyroxine, zoloft, vitamin D. I was taking magnesium oxide and it seemed to help my depression and sleeping issues but worsens my dry mouth so much....

Im on levothyroxine, zoloft, vitamin D. I was taking magnesium oxide and it seem...

Experiment1982739903

•2 years ago

4 Replies

How B12 affects newborns

Are there any women here who were injecting themselves a lot before pregnancy and how did it affect their newborns?

Are there any women here who were injecting themselves a lot before pregnancy an...

oyatek

•2 years ago

5 Replies

Self injecting and tests

I would be interested to hear about the experience of people who self treat without their gp knowing. How do you deal with a doctor’s disapproval at high test...

I would be interested to hear about the experience of people who self treat with...

MorningMist

•2 years ago

32 Replies

How much Vitamin B12 is too Much

interesting website from healthline.

Hidden

•2 years ago

5 Replies

Arnika Apotheke say their ampoulles don't need to be chilled?

They sell methylcobalamin and adenosylcobalamin, and say they should not be refrigerated. I asked them about this and they said they autoclave them - heat...

They sell methylcobalamin and adenosylcobalamin, and say they should not be refr...

AgeOfCapricorn83

•2 years ago

14 Replies

B12 Ampoules

I ordered B12 ampoules through Amazon (German site) which were quite expensive (if you add on the Export Duty after Brexit). I ordered quite a large quantity...

I ordered B12 ampoules through Amazon (German site) which were quite expensive (...

Silvershine

•2 years ago

14 Replies

B12 & folate

What’s the relationship between B12 &folate? I am self injecting more regularly due to recent illness & I need to keep both levels optimal as I’m on...

What’s the relationship between B12 &folate? I am self injecting more regularly ...

Agapanthus1

•2 years ago

22 Replies

New guidelines on astrazeneca covid vaccinations

new guidelines. 7 september 2022 U.k. government released document regarding astrazeneca vaccination. It is in boxes and advice to doctors and pharmacies....

new guidelines. 7 september 2022 U.k. government released document regarding as...

Hidden

•2 years ago

19 Replies

anxiety

hi guys, i was diagnosed with pernicious anaemia last may- prior to that i had some anxiety issues and also went through separation from my wife during...

hi guys, i was diagnosed with pernicious anaemia last may- prior to that i had...

dolphin66stag

•2 years ago

19 Replies

Recently diagnosed with Low B12 / Folic acid levels

Hello Everyone, I would just like to post my story on here and get some advice from like-minded people with more knowledge than myself. For some context on...

Hello Everyone, I would just like to post my story on here and get some advice ...

Jackwalker0799

•2 years ago

16 Replies

Is 'functional B12 deficiency' present from birth?

Hi all, Or can it unfold later in life please? Every best wish, G.

Gillybean1

•2 years ago

22 Replies

NHS Scotland guidelines?

hello, I found a GP willing to implement the neurologist's advice of seven years ago, repeated last October to get me onto B12 injections. But only every other...

hello, I found a GP willing to implement the neurologist's advice of seven years...

MyrtleMac

•2 years ago

16 Replies

Advice for SI (self injecting)

i’ve begun self injection (yay) but I’ve had trouble getting the hang of it. It seems to hurt more than I’d expect and I thought subcutaneous wasn’t supposed...

i’ve begun self injection (yay) but I’ve had trouble getting the hang of it. It ...

Purplegirl2

•2 years ago

22 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2022

Anyone in Spain?

Might bring a smile to you face

Worsening symptoms despite injecting 2mg B12 daily

sourcing from germany

Very high IgE levels

Negative MMA test, but ongoing B12 issues?

Does anyone know a pharmacy that ships to US?

Post surgery symptoms are bad again

Symptoms during B12 loading phase?

It's all in our heads!

Arnika Apotheke have become a nightmare to order from.

Stopping B12 and folate supplementation to assist diagnosis??

What is the reason for not injecting with the 2ml daily

Help with diagnosis (GP) and anyone sought help from private healthcare?

Pernicious Anemia - Self Injecting

More information for south west

B12 ampulles Germany

Dry mouth

How B12 affects newborns

Self injecting and tests

How much Vitamin B12 is too Much

Arnika Apotheke say their ampoulles don't need to be chilled?

B12 Ampoules

B12 & folate

New guidelines on astrazeneca covid vaccinations

anxiety

Recently diagnosed with Low B12 / Folic acid levels

Is 'functional B12 deficiency' present from birth?

NHS Scotland guidelines?

Advice for SI (self injecting)

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive