Can I get an accurate b12 level - Pernicious Anaemi...

Pernicious Anaemia Society

32,669 members24,064 posts

Can I get an accurate b12 level

Mag999 profile image
2 Replies

Does active b12 measure accurately once you have been self injecting? My gp has offered more blood tests but can’t seem to get that ordinary serum b12 will be super high. Is it still worth measuring ? Can I buy any extra tests that will be useful ? Continuing symptoms so still looking for co morbidities have started getting swollen joints so now they are thinking RA could that just be nutrient deficiency? I have global low levels which I supplement all the time but is there any way to check if I’m actually using the vitamins and minerals? Lots of questions still! Just very disheartening 2 years on and still no better.

Written by
Mag999 profile image
Mag999
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Heididog20 profile image
Heididog20

Hi Mag999,Do not test blood levels for b12 whhile supplementing. Need to be 4 months without supplements before retesting . Refer too book, Could it be b12. By sally Palochuk. Her videos are on utube. Worth watching, thebn get book. Highly recommended. Easily reading.

FlipperTD profile image
FlipperTD

Scientist, not medic.

Active, or total B12? Well, neither will be of much help. Save your time and your money. They'll both be raised because that's what supplementing does. Are you supplementing orally, or by injection?

Go by your symptoms. If you start out with a macrocytic anaemia and that resolves on supplementing, then that shows the supplements are working.

Some symptoms take much longer to resolve, but it's a marathon, not a sprint. Stick with it!

If your GP thinks it could be RA, there are tests they can do, but I'd leave the B12 alone for now.

Good luck.

Not what you're looking for?

You may also like...

B12 level 217

Hello, my b12 level is 217, in February is was 351, that was when i had just had my last injection,...

Too high b12 level!?

I had a b12 level of 182 three years ago. Had lots of b12 deficiency symptoms. Had injections for...
Nrxx1234 profile image

Would blood tests 3months after last b12 injection be accurate?

Hi all I don't have PA but had very low b12 this time last year and many neurological symptoms gP...
Saya85 profile image

"Normal b12 level"

Reference ranges aside, does anyone know of any studies that have shown what a normal b12 level...
Steap profile image

Extremely low B12 level

Hi All I am new to this page and have myself today just been for second blood test to check for...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.