Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2020

Piriton, safe to take of I have PA?

Three months in to my injections, 2 months twice per week but now daily. I have been sleeping so much better, but still tired all the time. I stopped taking...

Three months in to my injections, 2 months twice per week but now daily. I have ...

PhilAB

•4 years ago

9 Replies

I need advise!!

Hello! I’m so happy to have found this website as I have been left alone to deal with what I highly suspect as neurological symptoms and nerve damage cause by...

Hello! I’m so happy to have found this website as I have been left alone to deal...

Hidden

•4 years ago

41 Replies

Where do you get b12 hydroxycobalamin patches please?

I read that some of you are using hydroxycobalamin b12 patches where do you get? I can’t find any except cyno or methyl and with my gene mutations and poor...

I read that some of you are using hydroxycobalamin b12 patches where do you get?...

Financegal50

•4 years ago

4 Replies

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Injections during Covid

Hi Everyone, I'm sure this has already been discussed but I've just joined this group and wanted to know if anyone is still battling with their GP about...

Hi Everyone, I'm sure this has already been discussed but I've just joined this ...

Time2Run

•4 years ago

18 Replies

Anyone gets sick from taking vitamins/minerals?

Hello. I know many will find this question silly, but this is something I have observed for over 10 years now. Its almost like I'm allergic to vitamins....

Hello. I know many will find this question silly, but this is something I have o...

Patient001

•4 years ago

19 Replies

UPDATE: Burning mouth????

Hi everyone, just an update from me on this one - I asked for details of my test results (as told all satisfactory)and it turned out that they’d never had the...

Hi everyone, just an update from me on this one - I asked for details of my test...

Colb53

•4 years ago

22 Replies

2nd load of b12 loading dose

So i have been suffering with pins and needles in my R hand and R Foot for 3 years now. This last year i now seem to get pain in my hand and foot after ive had...

So i have been suffering with pins and needles in my R hand and R Foot for 3 yea...

Ch3ll33

•4 years ago

11 Replies

Hi All, does anyone feel heightened sensitivity to sounds? Almost like a fear of sounds .

I’ve been diagnosed with B12 deficiency for 15 months. I’ve developed heightened sensitivity to sounds light and smell much more for sounds.. Is this B12...

I’ve been diagnosed with B12 deficiency for 15 months. I’ve developed heightened...

peace1234

•4 years ago

16 Replies

Spoke to doctors about b12 and P.A. but feels like it was pointless!

Hi! So I’ve spoken to my doctor today as my symptoms came back this week after having my b12 injection 4 weeks ago. I’m normally quite ok and last at least 10...

Hi! So I’ve spoken to my doctor today as my symptoms came back this week after h...

B182

•4 years ago

4 Replies

Newly diagnosed as B12 deficient after suffering symptoms for at least 30+ years & possibly since childhood!

***Warning - Long post alert! I really appreciate anybody who makes it to the end & doubly appreciate anybody who replies! ;-) I have just been diagnosed as...

***Warning - Long post alert! I really appreciate anybody who makes it to the en...

CupCake5

•4 years ago

31 Replies

Bedtime injection

Hello, I am self injecting, so can choose when to take the b12. Would it be crazy to take it before bed. I get so many weird annoying side effects, so thought...

Hello, I am self injecting, so can choose when to take the b12. Would it be craz...

frufru11

•4 years ago

17 Replies

B12 Levels How quick can they fall?

Some quick info... I was diagnosed with severe B12 deficiency last year with a test reading of 94. I really was quite ill and close to collapse. I had a...

Some quick info... I was diagnosed with severe B12 deficiency last year with a t...

cfc_b12

•4 years ago

12 Replies

Yesterday: a day to forget

It started with running a bath and forgetting it- which is quite usual for me, except that it had clearly been running for hours ! Well, no need to wash the...

It started with running a bath and forgetting it- which is quite usual for me, e...

Cherylclaire

Forum Support•4 years ago

10 Replies

help with results

I am new to this group and would like to ask if someone could help me with my results folate is 5.7 ferritin 47 but says normal how do I top up folate

I am new to this group and would like to ask if someone could help me with my re...

blazey

•4 years ago

4 Replies

Another brand!!

I've just collected my prescription of b12 . It's different. Cobalin-H(Amdipharm) I've had. Accord and Glenoch and Lannoch from the NHS Rotexmedica from...

I've just collected my prescription of b12 . It's different. Cobalin-H(Amdiphar...

Nackapan

•4 years ago

10 Replies

Ferritin

Does anyone know the optimal level of ferritin. The range is 15 to 200 which is a large range.mine runs around 20. Been feeling scrappy for 2 years which co...

Does anyone know the optimal level of ferritin. The range is 15 to 200 which is ...

Quigley2005

•4 years ago

5 Replies

B12 injections nausea

The last few injections I have had give me nausea after. Is this normal? What does it mean? And any ideas on how to deal with it?

The last few injections I have had give me nausea after. Is this normal? What do...

frufru11

•4 years ago

5 Replies

Recovering from Covid-19!

Whelp. As if the b12 deficiency wasn’t enough, my husband caught Covid at work and then I got it! After 2 weeks of hell (he ended up w/pneumonia and I ended...

Whelp. As if the b12 deficiency wasn’t enough, my husband caught Covid at work a...

HopetoB12better

•4 years ago

11 Replies

Does too much coffee and/or alcohol reduce success of my b12 injection qrtly? I notice last inj hasn't been useful. Can I take supplements

I have PA.

JayneHampton

•4 years ago

6 Replies

Too chicken to self inject

So having efficiently managed to obtain all the necessary, turns out I shake like a jelly at the prospect of sticking a needle in myself. Just can’t do it. Any...

So having efficiently managed to obtain all the necessary, turns out I shake lik...

Mag999

•4 years ago

19 Replies

The Medical Detective

I've actually nor been able to view it but I'm going to try and listen. It was recommended on here. Ladt night my daughter said it could've been her . A...

I've actually nor been able to view it but I'm going to try and listen. It was ...

Nackapan

•4 years ago

2 Replies

Earthing

Has anyone heard of earthing? Of all the claims made, the majority seem to fit with B12d. Thinking of giving it a go as anything bypassing drugs, if it works,...

Has anyone heard of earthing? Of all the claims made, the majority seem to fit w...

Lurcher-lady

•4 years ago

2 Replies

Hello all, im totally fatigued all the time even though ive had my injections dropped to every 8 weeks. I have P.A.

I am really hoping someone will understand my PA blood results more than anything as im really down lately, sleeping pattern is everywhere, i can fall sleep on...

I am really hoping someone will understand my PA blood results more than anythin...

jonnylongton

•4 years ago

23 Replies

si purchasing needs

Hi, me again, apologies. I just want to be sure on what I need to order to self inject into the muscle, if anyone could could confirm please? I'm feeling a...

Hi, me again, apologies. I just want to be sure on what I need to order to self...

luckymaria

•4 years ago

6 Replies

Blood test results

I've got my blood test results back, my b12 levels are fine. Serum b12: 579ng/L range is (191 - 663) Serum Folate: 3.7ug/L range is (3.3 - 19.3) Serum TSH...

I've got my blood test results back, my b12 levels are fine. Serum b12: 579ng/L ...

Nathan12345

•4 years ago

17 Replies

Endoscopy results

I was diagnosed with PA about 5 years ago. Have had pre cancerous polyp removed and SI weekly but I have real tummy troubles with a fair amount of pain and...

I was diagnosed with PA about 5 years ago. Have had pre cancerous polyp removed ...

lifegems

•4 years ago

11 Replies

Best instructional video for self injecting please?

Hello - I am starting to self inject this week. I'm looking for a good instructional video that I can learn from - one that others have thought is good....

Hello - I am starting to self inject this week. I'm looking for a good instructi...

Jennygal

•4 years ago

8 Replies

Safe to supplement on b vitamins while treating b12 deficiency?

Would it be advised to supplement on additional b vitamins (ex. Thorne Research- basic b-complex) to support b12 supplementation for neural repair? I realize...

Would it be advised to supplement on additional b vitamins (ex. Thorne Research-...

Dolansan

•4 years ago

12 Replies

Do any of you inject subcutaneously in the stomach?

I was scared to do an IM injection in the thigh as it seems like the needle would go straight through to the bone! So instead I tried injecting in the fat in...

I was scared to do an IM injection in the thigh as it seems like the needle woul...

Ctb567

•4 years ago

5 Replies

Lost post

I need to find a post of mine with my folate and b12 markers. I cant seem to find it. Just remember showing it so someone could help me with what it meant

I need to find a post of mine with my folate and b12 markers. I cant seem to fin...

Noahsmummsy

•4 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

Piriton, safe to take of I have PA?

I need advise!!

Where do you get b12 hydroxycobalamin patches please?

Injections during Covid

Anyone gets sick from taking vitamins/minerals?

UPDATE: Burning mouth????

2nd load of b12 loading dose

Hi All, does anyone feel heightened sensitivity to sounds? Almost like a fear of sounds .

Spoke to doctors about b12 and P.A. but feels like it was pointless!

Newly diagnosed as B12 deficient after suffering symptoms for at least 30+ years & possibly since childhood!

Bedtime injection

B12 Levels How quick can they fall?

Yesterday: a day to forget

help with results

Another brand!!

Ferritin

B12 injections nausea

Recovering from Covid-19!

Does too much coffee and/or alcohol reduce success of my b12 injection qrtly? I notice last inj hasn't been useful. Can I take supplements

Too chicken to self inject

The Medical Detective

Earthing

Hello all, im totally fatigued all the time even though ive had my injections dropped to every 8 weeks. I have P.A.

si purchasing needs

Blood test results

Endoscopy results

Best instructional video for self injecting please?

Safe to supplement on b vitamins while treating b12 deficiency?

Do any of you inject subcutaneously in the stomach?

Lost post

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