Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2020

FERRITEN iron

FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food...

FERRITEN level 39 Gp says in range I went b12 defiency in March this year had l...

Milley2

•4 years ago

40 Replies

Rexall iron 65mg. Red blood cell production

Went too hospital and I was white as a ghost so my doctor told me keep taking my iron pills everyday I believe theres too much iron in me so I get a blood test...

Went too hospital and I was white as a ghost so my doctor told me keep taking my...

Whitehawkskyer45678

•4 years ago

3 Replies

Not been allowed injection of b12

As like many of you on here, I too have been told (due to Covid ) that i can no longer have injections and to take tablets . I’m booked in for blood tests...

As like many of you on here, I too have been told (due to Covid ) that i can no ...

Spring11

•4 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Frequency of b12 jabs

Hello all you lovely people, I am on self administer subcut b12 injections prescribed by GP.. This has worked well accept for the fact that I have to have very...

Hello all you lovely people, I am on self administer subcut b12 injections presc...

waveylines

•4 years ago

26 Replies

Legs aches

hi all, does anyone else get leg aches? I've been getting really achy legs since sometime after lockdown, and put it down to lack of exersise. However as time...

hi all, does anyone else get leg aches? I've been getting really achy legs sinc...

luckymaria

•4 years ago

6 Replies

Shortness of breath and low B12

Hello, i am new here. For a month now, i have been facing a mild difficulty in taking a satisfactory deep breath at almost all times during the day and no...

Hello, i am new here. For a month now, i have been facing a mild difficulty in t...

Anonymous0130

•4 years ago

18 Replies

Low potassium and B12 deficiency

Hi everyone! I have started Hydrocobalamin injections (1000ug every other day). I ran a blood test prior to injections to verify potassium levels. Potassium...

Hi everyone! I have started Hydrocobalamin injections (1000ug every other day). ...

Dolansan

•4 years ago

6 Replies

b12 spray

Hi everyone. We are having a lot trouble getting more B12 injections for my wife despite her feeling that the injections she has received so far have...

Hi everyone. We are having a lot trouble getting more B12 injections for my wife...

rocketrob01

•4 years ago

12 Replies

Heaviness in Arm

Hello all :) I’m back with my injections again woohoo! :D I know it will take a while to get my levels back up but I’m happy haha! I’ve recently started...

Hello all :) I’m back with my injections again woohoo! :D I know it will take a...

Ellesbells12

•4 years ago

5 Replies

Dry eyes

I've had problems with my vision and eyes and light sensitivity since the start of b12 deficiency being diagnosed. Now a new symptom. My eyes feel sticky but...

I've had problems with my vision and eyes and light sensitivity since the start ...

Nackapan

•4 years ago

42 Replies

Another fight!

What is going on?? My 90 year old mother who had severe mobility problems, arthritis in her hips. IBS to name a few had just been told she either has to go to...

What is going on?? My 90 year old mother who had severe mobility problems, arthr...

Nackapan

•4 years ago

31 Replies

B12 Levels

Hi there, I am new here. I have almost all the PA symptoms and have done for many years since my 20's - I am now 52. I have had many neuro investigations over...

Hi there, I am new here. I have almost all the PA symptoms and have done for man...

Cakebake

•4 years ago

10 Replies

Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.

Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point...

Hiya I have a call booked with the practice nurse who wants to stop my b12 injec...

TFH1

•4 years ago

11 Replies

B12 Injections

Hello, I am in the US and I am thinking about ordering B12 from Oxford Biosciences. I am a bit nervous. I have never self injected and I am also nervous about...

Hello, I am in the US and I am thinking about ordering B12 from Oxford Bioscienc...

Maggiez

•4 years ago

9 Replies

Hydroxocobalamin and Nitric Oxide

Hi everyone! I have started Hydrocobalamin injections of 1000 ug every other day (currently with Neurological symptoms). I’ve read that high amounts of...

Hi everyone! I have started Hydrocobalamin injections of 1000 ug every other day...

Dolansan

•4 years ago

7 Replies

Any advice please

I’m a bit confused, I don’t actually know if I’ve got P.A. or not. In March I got a positive blood result showing I’m gluten intolerant (also lactose and...

I’m a bit confused, I don’t actually know if I’ve got P.A. or not. In March I go...

Narwhal10

•4 years ago

5 Replies

Advice on blood results please

Hello everyone, I was diagnosed B12 deficient in 2016 and have been receiving 3 monthly injections since then but feel around week 8 that symptoms return. I...

Hello everyone, I was diagnosed B12 deficient in 2016 and have been receiving 3...

MCkit

•4 years ago

31 Replies

b12 deficiency and menopause

HI...is anyone on here trying to cope with b12 deficiency and menopause symptoms ....hard to tell what symptoms are what at times .....im so miserable and...

HI...is anyone on here trying to cope with b12 deficiency and menopause symptoms...

Woodyscooby

•4 years ago

12 Replies

No side effects

I've been self injecting for 3 years. No side effects whatsoever. It's much better than needing to sleep 14 hours & the damage done to your stomach if you need...

I've been self injecting for 3 years. No side effects whatsoever. It's much bett...

2561

•4 years ago

2 Replies

No more injections for 3 months

hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of...

hello, Just wanted to get the thoughts of forum members on this... My b13 levels...

katamarang

•4 years ago

5 Replies

Vitaming B12

Hello, lately i have been having a lot of tingling, itching, skin crawling, it started with the legs and now this tingling it seems it's all over like a itch,...

Hello, lately i have been having a lot of tingling, itching, skin crawling, it s...

damiante

•4 years ago

6 Replies

Advice needed.

Hello all. I’m sorry to barge in here as have not been diagnosed with PA but am trying to take my health into my own hands. I’ve been to so many specialists...

Hello all. I’m sorry to barge in here as have not been diagnosed with PA but am ...

Evane7

•4 years ago

14 Replies

Bit extra

And total knackeredness.

jaybirdxNHM

•4 years ago

2 Replies

Storage of B12 ampules.

I have been self injecting for yr. Settled at every other day. Since lockdown until last week, fine. Now feeling as if symptoms are returning. More foggy head,...

I have been self injecting for yr. Settled at every other day. Since lockdown un...

jaybirdxNHM

•4 years ago

4 Replies

GP surgery wanting to remove my B12 injections after 2-3 years ??

Hi guys, I have been on B12 injections since 2017... Doctors surgery phoned today to say they are going to run a blood test for antibodies as it’s not been...

Hi guys, I have been on B12 injections since 2017... Doctors surgery phoned tod...

Harhun

•4 years ago

11 Replies

B12

Does any one do daily b12 injections ? Any adverse effects ? Is it safe ? Ear ringing more head vibration ? Weird feeling on face like a coldness Or is it...

Does any one do daily b12 injections ? Any adverse effects ? Is it safe ? Ear r...

Milley2

•4 years ago

9 Replies

B12 Tablets because of Lockdown?

I have recently been told I have low b12 and iron levels after suffering from heart palliations and tingling hands and feet for about 6 weeks. I have...

I have recently been told I have low b12 and iron levels after suffering from he...

Max1990

•4 years ago

4 Replies

B12 help

Hi everyone! So 4 years ago i started having 3 monthly b12 injections. Wasn’t told if I was deficient or not. I was pregnant at the time and was told to book...

Hi everyone! So 4 years ago i started having 3 monthly b12 injections. Wasn’t to...

B182

•4 years ago

2 Replies

B12

How do i know if it's PA or just deficiency. I had loading doses every 2nd day for 2 weeks and now every 12 weeks for life. I haven't spoke to a doctor since...

How do i know if it's PA or just deficiency. I had loading doses every 2nd day f...

Dmth

•4 years ago

7 Replies

Degradation of B12 shots after opening new box

Hi everyone, My need for methylcobalamin is straightforward. When I inject a fresh and potent vial of B12, 90 to 100 % of my symptoms resolve. Five hours...

Hi everyone, My need for methylcobalamin is straightforward. When I inject a fre...

nilsoskaraxel

•4 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

FERRITEN iron

Rexall iron 65mg. Red blood cell production

Not been allowed injection of b12

Frequency of b12 jabs

Legs aches

Shortness of breath and low B12

Low potassium and B12 deficiency

b12 spray

Heaviness in Arm

Dry eyes

Another fight!

B12 Levels

Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.

B12 Injections

Hydroxocobalamin and Nitric Oxide

Any advice please

Advice on blood results please

b12 deficiency and menopause

No side effects

No more injections for 3 months

Vitaming B12

Advice needed.

Bit extra

Storage of B12 ampules.

GP surgery wanting to remove my B12 injections after 2-3 years ??

B12

B12 Tablets because of Lockdown?

B12 help

B12

Degradation of B12 shots after opening new box

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive