I'm sure this has already been discussed but I've just joined this group and wanted to know if anyone is still battling with their GP about getting their injections? My surgery still refuses to give me mine, I have spoken to several members of staff there who all give me the same answers. I told them about the advice on the PAS website with option 1 being if I have a friend/family member who can administer the injections that should go ahead. I was told the clinic's insurance does not cover this. So I suggested option 2 that I administer it myself, I was told I would need to go in for training with a nurse which I'm not allowed to do at the moment. I think it's a bit ridiculous that they don't seem to be willing to help. One of the nurses told me I was being dramatic as it's only a vitamin supplement!! I'm sick of constantly arguing with them, does anyone know if there is anyone I can contact regarding this matter? Is it worth mentioning to my local councillor for my area? Hope you are well well. TIA
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Write to the GP saying that you cannot absorb B12 orally and that your symptoms are getting worse without your injections. Say that you are worried that continued refusal to treat you properly will lead to irreversible nerve damage.
Make sure you cc: the practice manager, your MP, the local press, radio and television. Add those addresses so that the GP can see who has received copies.
Thank you for your reply it is appreciated. I did go down that route last time, not writing a letter but asking to speak to a docrtor/practice manager as I was only getting the nurse and pharmacist. I spoke of all the things you mentioned and even emailed links from the PAS website. However today I have finally spoke to a doctor at my practice who has said things have changed and anyone who suffers from PA can now get an appointment. I suggested self administering and I have a training appointment next week. I am so relieved!
Did your letter actually request some actions by the GP?
Did you cc: a lot of people? That way, when your letter gets ignored you can send another copy of the same letter, to the same people, saying, at the start,
“I can only assume my first letter to you was lost in the post”.
That's really good. It means less reliance in future on a nurse who clearly has no idea how difficult it is to live with this condition - particularly when being either undertreated or not treated at all !
Best of luck - let's hope that her injection training skills are better than her patient care skills !
I can only second fbirder’s suggestion . If that does not succeed , then I would consider buying B12 ampoules from a German online pharmacy and self-injecting , like many of us are forced to do if the“ one size fits all“ treatment is not sufficient to keep us well and free from B12 deficiency symptoms , and possible irreversible nerve damage .( which I have after having undiagnosed P.A. for many years ) Best of luck.👍🍀.
Perhaps that nurse would like to go on a vitamin-free diet?
Perhaps that nurse doesn't appreciate the origin of the word "vitamin" - vital amine? While the "amine" part was shown to be not based in reality (not all vitamins are amines), the vital bit is as true as ever.
Clearly that nurse needs further training.
Wow. I cannot believe you were actually told you were being dramatic. By a nurse of all people. You need those jabs to be well and being well has never been more important than now. You can write a complaint to the practice manager. Possibly even consider the CQC of you don’t get anywhere with that.
Write to the practice manager and make a complaint. You can phone them and ask who it is or if you know your surgery has a website there will be the information on there.
In your letter state
- information about your b12 injection
- what symptoms you having not having it
- what your quality of life is like
- you will take action if this is not dealt with by going further to the Health Service Ombudsman and your local MP
I had problems with my GP before all this virus kicked off, they would not budge with my injections being more frequent and with the letter I wrote I got them part way for 2 and a half months.
I wrote a letter with these points, if all else fails you can go to the healths ombudsman if your surgery manager doesn’t do anything but I stated I didn’t want to do this but I will have to for my health and quality of life.
It’s your health, condition and your quality of life. You can’t absorb standard tablets for PA, by denying your injections they are causing your quality of life to suffer because you have a a life long health condition.
Unfortunately there will be times when we all have to fight for our health, hope this information helps and you get your injections.
I just discussed with my GP the neurological symptoms I was having, and unless they are up to date with the PA treatment, understanding of needing to deal with each patient as a specific individual as we all having dif symptoms, neurological/physical .. and reactions to medication .. I was not going to keep repeating myself Or continue conversation .. I mentioned guidelines they are meant to follow & address and that I respected the fact that they are under constant pressure with medical changes Adaptations etc.. gotta feed their egos .. I since June have injections every 2 months rather than 3 diagnosis’s was Juneish 2019 But originally had positive antibodies test in 2017 .. I know major mess .. by the way I am a sickle cell carrier, ibs, fibromalagia, fibroids, ptsd, bulging disk, Osteoarthritis,
Yes.. it has so far been a great positive outcome, felt obligated to comment and show that we can get to a positive Solution. Just never give up keep Hope in your hearts.
The guidance changed in May. That is appalling that you have been refused treatment, I despair when I hear situations like this. I am glad you are now getting your injection, But the nurse’s comments are unacceptable. I wish you well.
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