Apologies for the long post! I was diagnosed with B12 deficiency about a year ago as a result of wide ranging blood tests for something else. At the time I knew nothing about B12 deficiency and didn’t think I had symptoms. However, I had suffered from tiredness for quite a while and this improved after the loading doses although it’s never been quite as good since then and when I asked for more frequent injections they just ran more blood tests and said vitamin D was deficient and folate was low. I have had an injection during lockdown but it was delayed by a month and it’s now 3 months since I had it. I am tired but have also noticed some occasional pins and needles and odd sensations in the soles of my feet. Bizarre as this might sound it has reminded me that I was getting this before and then it stopped and I forgot about it. I now think that I was getting it before the B12 loading doses but can’t be precise on the time. Now that I know more about the effects of B12 deficiency I’m wondering if that’s what’s causing it and whether I need to tell the GP. I’m assuming that after delayed injections my B12 will now be the lowest it has been since treatment started. Has anyone else had these kind of symptoms? I’ve got an annual review at doctor’s next week with a nurse which I assume is B12 although I’m not certain because I also have sarcoidosis and the receptionist just said it was blood tests and blood pressure.🙄
Pins and needles/odd sensation in sol... - Pernicious Anaemi...
Pins and needles/odd sensation in soles of feet - B12?
Sounds like because of under treatment symptoms returning . Also if an injection late there is catch up time.
Do mention it ti doctor to get more regular Injections.
Sounds like tiy doing okay given the right regime tc
Thanks, hadn’t thought about catch up time after a late injection. To be honest, after the experiences of others in here, I was just glad they did it - particularly as they tried to cancel. I’be been taking oral supplements as well during lockdown but they don’t appear to have had any effect. I don’t have a diagnosis of PA but since I wasn’t vegan or vegetarian or taking any medication I can’t see why it would be anything other than an absorption issue.
Sounds to me like Peripheral Neuropathy. This can be a side effect of PA and a neurological one. Which means you should be getting your B12 injections every 2 months. Please make sure you are once your treatment is established.
Hi,
I wrote very detailed replies on another forum thread with links to B12 deficiency symptoms lists, B12 books, B12 websites, UK B12 documents and other B12 info including some hints on dealing with GPs which might be helpful.
healthunlocked.com/pasoc/po...
If you're in UK, be aware that the pandemic is impacting patients' B12 treatment.
Many UK forum members have reported injections being stopped/delayed
/frequency reduced or swapped for oral tablets.
I left a detailed reply about impact of pandemic on B12 treatment in UK in next link.
healthunlocked.com/pasoc/po.....
I am not medically trained.