Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,422 posts

All posts for April 2020

High mcv and high b12. Really worried.

Hey, My B12 in blood is over 1000! and mcv almost on the limit. Am I not absorbing B12 into the cells and it stays in blood? I haven't supplementing for month...

Hey, My B12 in blood is over 1000! and mcv almost on the limit. Am I not absorbi...

IgnoranceSound

•4 years ago

8 Replies

B12 Methlycobalamin injection - will this work?

Hi All Like many, I'm now considering self-injection as my GP surgery is not providing appointments. I wondered about ordering from...

Hi All Like many, I'm now considering self-injection as my GP surgery is not pro...

LizWilsonpa

•4 years ago

17 Replies

New to B12 deficiency - what next?

Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next and wondered if anyone has any suggestions. I am a 29 year old woman and I first...

Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next a...

Alpaca24

•4 years ago

6 Replies

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What size needle to inject????

Hi Everyone I am in a bit of a muddle some post say 1inch needleto inject some say 1.5 needle, does it matter? I am trying to get the courage to inject but I’m...

Hi Everyone I am in a bit of a muddle some post say 1inch needleto inject some s...

Scou

•4 years ago

20 Replies

Sub-q or IM?

I have a hard time tolerating b12 (both orally and in a shot) it makes my neuropsychiatric symptoms worse. For the past 3 weeks, I have found that I can...

I have a hard time tolerating b12 (both orally and in a shot) it makes my neurop...

Brageta

•4 years ago

5 Replies

New post from PAS on injections being stopped.

https://pernicious-anaemia-society.org/pernicious-anaemia-society/statement-on-the-current-covid-19-pandemic-and-treatment-being-stopped/

https://pernicious-anaemia-society.org/pernicious-anaemia-society/statement-on-t...

fbirder

•4 years ago

11 Replies

Exercising and vit b12 injection

Hi, I'm due my vitb12 injection on 20th april, went out for my usual mile walk this morning, got half way round,(its up and down hills) and my legs felt so...

Hi, I'm due my vitb12 injection on 20th april, went out for my usual mile walk t...

Delilahread

•4 years ago

22 Replies

Where best to self inject

Hi all I’ve been watching you tube and watching* doctors injecting apples etc and I saw one woman giving her mum her b12 injection into her upper arm.is this...

Hi all I’ve been watching you tube and watching* doctors injecting apples etc an...

Hidden

•4 years ago

33 Replies

Don't think tablets are working

My injection was due two weeks ago as you know...I can tell when I'm coming up to having it my tougue starts burning. The problem is now my surgery has...

My injection was due two weeks ago as you know...I can tell when I'm coming up t...

Mozza127

•4 years ago

12 Replies

!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?

Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago....

Desperately seeking reassurance, advice etc. I've had on and off heart palpation...

Lilianxious

•4 years ago

32 Replies

B12 deficiency and MND (Motor Neurone Disease)

Hi All, I was reading a news item about a young woman in Scotland who is one of the youngest people in UK to have MND diagnosed. Every time I read a story like...

Hi All, I was reading a news item about a young woman in Scotland who is one of ...

Sleepybunny

•4 years ago

10 Replies

Low blood pressure with B12 injections ???

Hello , I recently was put on B12 injections self administered, no problem doing it except it was excruciatingly painful. Fourth injection I went dizzy on...

Hello , I recently was put on B12 injections self administered, no problem doin...

Ozzyfudge

•4 years ago

15 Replies

My experience during COVID - Uk

I posted earlier about my experience with my surgery and it was suggested I start a new thread in case it helped anyone else - so here is a copy of my previous...

I posted earlier about my experience with my surgery and it was suggested I star...

Pnelancs

•4 years ago

5 Replies

Shingles after Covid

Dear guys, 7 days after my last symptoms of COVID ceased, I developed pain in my left arm. Unusual so after 3 days I went to see Boots pharmacist. She told me...

Dear guys, 7 days after my last symptoms of COVID ceased, I developed pain in my...

GGourmet

•4 years ago

3 Replies

Fed up

I’m so depressed I’m having a really bad time right now, I hate it when I get this feeling cos I wish I wouldn’t wake in the morning but then I do :( I’m sick...

I’m so depressed I’m having a really bad time right now, I hate it when I get th...

Queeniz

•4 years ago

12 Replies

storing Hydroxocobalamin ampoules

Just received my first order of 100 ampoules from Versandapo (easy and painless process). Understand one is supposed to store them below 25 deg C. How do you...

Just received my first order of 100 ampoules from Versandapo (easy and painless ...

bambuko

•4 years ago

6 Replies

Pernicious anemia being stopped

Pernicious anaemia I suffer with and have had b12 jabs for 28 yrs due to this corona outbreak my doctor won't give me mine which is due next week i have mine 8...

Pernicious anaemia I suffer with and have had b12 jabs for 28 yrs due to this co...

Kmt3

•4 years ago

12 Replies

B12 injection positive experience

I know it’s only natural to come here and vent frustration and disappointment and seek help or empathy. I have also had many negative experiences with my GP...

I know it’s only natural to come here and vent frustration and disappointment an...

LadyBothwell

•4 years ago

3 Replies

It's Called "Pernicious" For A Reason

Doctors should know that B12 Injections are anything but non-urgent.Explaining what the word "pernicious" means may be a start.My injection is due the end of...

Doctors should know that B12 Injections are anything but non-urgent.Explaining w...

dvanian22

•4 years ago

4 Replies

Don't want to moan but...

After fighting to get regular b12 injections I hate to moan but both of my upper arms (where injected) are SO painful. Can I ask if injections could be given...

After fighting to get regular b12 injections I hate to moan but both of my upper...

jillc39

•4 years ago

14 Replies

B12 and d3 absorption issues

Hi,, I am alka... I have b12 and d3 absorption problem. In july2019 my b12, d3, was low so Dr told me to take supplements and I took and in Nov 2019 it came to...

Hi,, I am alka... I have b12 and d3 absorption problem. In july2019 my b12, d3, ...

tcj190

•4 years ago

14 Replies

B12 Tablets

Hi, I've been prescribed the tablets from my doctor as they are not doing the injections at the minute. However I'm a bit nervous to take them as they are 50mg...

Hi, I've been prescribed the tablets from my doctor as they are not doing the in...

Muddy1980

•4 years ago

12 Replies

Some hope for those who have had cancelled appointments.

Hi all, I believe this is my first post on here so I hope I'm doing this correctly. My B12 jab was cancelled like so many others on the 27th of March, and 2...

Hi all, I believe this is my first post on here so I hope I'm doing this corre...

filmfanatic33

•4 years ago

15 Replies

B12 injections swapped for tablets!!

I recently received a text from my GP saying they had cancelled my next B12 injection and were switching me to tablets to avoid unnecessary trips to the...

I recently received a text from my GP saying they had cancelled my next B12 inje...

lpmsjrb

•4 years ago

14 Replies

Does anyone know if there’s a connection between B12 deficiency and Raynaud’s phenomenon. I have both but wondering if they are connected?

B12 and Raynaud’s

Hidden

•4 years ago

11 Replies

Surprised confirmation of B12 injection appointment

Just had a text message confirming my appointment tomorrow with the nurse for B12 injection and review. I was expecting a cancellation message. I will go at...

Just had a text message confirming my appointment tomorrow with the nurse for B1...

carer999

•4 years ago

6 Replies

Injections put on hold

Doctors are not doing injections. Which I understand. ..put me on cyanocobalamin one tablet a week. 1000 mg are these are good replacement as my toungue is...

Doctors are not doing injections. Which I understand. ..put me on cyanocobalamin...

Mozza127

•4 years ago

19 Replies

PA and b12 storage

Hello, so I was diagnosed with pernicious anemia and I have been getting weekly injections of b12. I was wondering if I still have the ability to store b12...

Hello, so I was diagnosed with pernicious anemia and I have been getting weekly ...

Dakota17777

•4 years ago

4 Replies

B12 and Folate

I just realized that my low B12 159ng/L score was accompanied by Folate level of 23.7ug/L. Which is high Ive no idea what significance this has? Whats the...

I just realized that my low B12 159ng/L score was accompanied by Folate leve...

Ny7C

•4 years ago

6 Replies

Eczema Cure

My daughter was recently diagnosed with pernicious anemia and just finished her loading doses. For the past several years she has had some pretty bad eczema...

My daughter was recently diagnosed with pernicious anemia and just finished her ...

MoKayD

•4 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2020

High mcv and high b12. Really worried.

B12 Methlycobalamin injection - will this work?

New to B12 deficiency - what next?

What size needle to inject????

Sub-q or IM?

New post from PAS on injections being stopped.

Exercising and vit b12 injection

Where best to self inject

Don't think tablets are working

!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?

B12 deficiency and MND (Motor Neurone Disease)

Low blood pressure with B12 injections ???

My experience during COVID - Uk

Shingles after Covid

Fed up

storing Hydroxocobalamin ampoules

Pernicious anemia being stopped

B12 injection positive experience

It's Called "Pernicious" For A Reason

Don't want to moan but...

B12 and d3 absorption issues

B12 Tablets

Some hope for those who have had cancelled appointments.

B12 injections swapped for tablets!!

Does anyone know if there’s a connection between B12 deficiency and Raynaud’s phenomenon. I have both but wondering if they are connected?

Surprised confirmation of B12 injection appointment

Injections put on hold

PA and b12 storage

B12 and Folate

Eczema Cure

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