Injections put on hold

[Mozza127]

Doctors are not doing injections. Which I understand. ..put me on cyanocobalamin one tablet a week. 1000 mg are these are good replacement as my toungue is starting to burn and pins and needles in my hands and toes

[Gambit62 Administrator]

they can be effective but unfortunately they don't work for everyone - don't feel constrained to just one a day if that is the prescription

[Mozza127 in reply to Gambit62]

Òne a week.it says on box

[Gambit62 Administrator in reply to Mozza127]

too little - ignore and take one a day at least. You could double check this advice with the dispensing pharmacist and may be they could go back to the prescribing GP

see comments on tablets as a stop gap in this article.

pernicious-anaemia-society....

[fbirder]

Some doctors are still giving injections. See posts by Nackapan and clivealive for example.

Other doctors are using this as an excuse to switch all of their B12 patients over to tablets - permanently. When this is all over in another six to nine months your doctor will say "Well, you survived nine months with just the pills, there's no reason why you can't stick with them."

[nano2 in reply to fbirder]

Totally agree with you on this fbirder some have reported already been told they will have blood tests after this is over to decide if they will stay on tablets or go back on injections.

note: edited by admin

[Nackapan in reply to nano2]

There lays the problem. B12 swirling around in the blood as we know is no indictator of what's actually being used.

All very worrying. Ibe just had a text saying Gp contacting. All I'm thinking is what now?

[Nackapan in reply to fbirder]

Surely though people are going to get very ill.

Another way to prove injections are needed.

To the detriment of our health?

I'm symptomatic daily still having them!

[fbirder in reply to Nackapan]

No. PLenty of people will get depressed because of the lockdown and have psychosomatic symptoms. Half the doctors seem to think that's what we suffer from anyhow.

[Nackapan in reply to fbirder]

So a no win situation !!!

[JanD236]

I think that you have answered your own question. The fact that your tongue is starting to burn and you have pins and needles shows that they are not a good replacement.

I would be pressing for injections.

[fbirder]

Yes, cyanocobalamin does contain cyanide. Indeed, 1000 mcg contains as much cyanide as 7 apple seeds!!!!!!

There is no difference in absorption between cyanocobalamin, hydroxocobalamin or methylcobalamin. Methylcobalamin in no easier to absorb.

You do not need folate to absorb B12.

[snowbird1234]

Hi, I know you are struggling with your B12, research and try the 3 different types or the B Complex. if you listen close to your body you will find what works for you. It might take a little more time than the shots, I do understand, i went back to the pills also during this time.

I take B12 everyday. .. Praying for You

also green leafy Vegetables, the Folate in them can help you absorb B12.

[Sunshine1932]

Please take this as love for you and passion from a women who is B12 deficient.

Take back your POWER, buy some ampoules and needles and self inject.

Dont let ANYONE dictate your health and wellbeing.

You are on injections for a reason and that's because tablets dont work.

There is enough people on here to reach out for help when it comes to buying what you need and how to inject.

Your life is for living, not to be controlled by the masses at the top.

Have a wonderful day.

[Sleepybunny]

Hi.

Some of the info below may be specific to UK.

Injections stopped due to pandemic

Have a look at these two links which both have ideas on what to do if jabs cancelled because they are seen as non essential during pandemic.

From PAS website

pernicious-anaemia-society....

There are lots of comments under the posts as well.

From B12 Deficiency Info website

b12deficiency.info/blog/202...

Blog post below asks for people to leave comments if their injections have been stopped due to impact of pandemic.

b12deficiency.info/blog/202...

Most recent blog post about stopped injections

b12deficiency.info/blog/202...

Some people get injections from private GPs and some find that high strength oral b12 eg tablets, sub lingual lozenges, sprays, drops help a bit. I think most people on here find that injections are more effective than other methods. Some on forum source their own supplies and self inject.

Have you considered joining PAS?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS support groups in UK

pernicious-anaemia-society....

Support group meetings are cancelled during pandemic.

I wrote a detailed reply on another forum thread with links to symptoms lists, causes of b12 deficiency, B12 books, B12 websites, UK B12 documents and other B12 info which you might find helpful.

healthunlocked.com/pasoc/po...

I am not medically trained.

[earthnymph]

Hi, it’s worth speaking to your medical practice further. I tried to persuade mine to give me the prescription and I would self administer it. It was a bit of rigmarole talking to the pharmacist associated with the surgery, lots of arguing about efficacy of tablets and my experience, long story short: they can’t possibly trust or train me to self inject, they would rather I have an appointment after all. I’d rather not as I’m in 3 high risk groups and going to the surgery involves going out etc, but I’m grateful to still have the jabs! It seems that there is some leeway, keep trying 😊

[scnuke]

I'm with Seren1932 on this. If you have have auto-immune atrophic gastritis/PA, tablets of any type will have minimal, if any benefit for you. At this time, it is probably not worth your effort and frustration to engage in a fight with your doctor and staff about it. I understand that self-injection may seem a daunting task for a variety of reasons, but just do it. Do not let the ignorance or absence of caring from your physician risk your health. Order Cyano, Methyl, or Hydroxo from one of the many reliable and trusted sources listed many times on this board and take charge of your health. At the end of the day, only you can be your best advocate. Good Luck.

[crystal54]

if you have pernicious anaemia b12 tablets are useless doctor told me so. your body does not absorb b12 if tablet.Got to be injection

[islandlass]

Why were on im if you can absorb it orally anyway - most full blown PA have absorption issues to be even offered im in the 1st place. I do not wonder you have problems. If surgery cannot offer help with injections then I would ask them just where are you meant to go, They really do seem to thonk we are all nut cases. I si 2 twice weekly, lower than that I start creeping back to square one.

[Mozza127]

My two middle fingers on my right hand get pins and needles. And everyou morning they are painful and sore to close to make a grip