My experience during COVID - Uk

[Pnelancs]

I posted earlier about my experience with my surgery and it was suggested I start a new thread in case it helped anyone else - so here is a copy of my previous post.

I posted a couple of weeks ago that my surgery was willing to do the injections but had absolutely no PPE, so after discussion with the nurse I decided not to have it. We said I’d contact them in two weeks or so.

When I rang them back, the reception told me the surgery was now closed and they weren’t doing any procedures - she told me there was ‘this coronavirus thing going on’ to which I replied I had heard something about it! Anyway, I asked for my nurse to ring me back, which she did and she explained that because my levels were so low they’d do it in the car park. I turned up later, sat in the car whilst she injected me and drove away. Surprisingly very easy.

I’m a little concerned that they made an exception for me because of my low levels and I’ll have to investigate that when things return to normal. I have previously been told that my levels don’t sky rocket after an injection like most people’s do, so I presume it’s linked to that but obviously that’s for another day at the moment.

[Nackapan]

Not heard of having your injection on the carpark before . My surgery are also triaging not good that most ate not getting their I jection o agree

[Ryaan in reply to Nackapan]

”Not heard of having your injection on the carpark before”

The plague wasn’t around before.

It’s hit hard around the globe.

[Bookworm70]

I’m lucky my surgery is still doing them, you have to call on the day for an appointment. When I first called they asked me to wait as I was just over a week out of self-isolation due to having symptoms of COVID-19 and they wanted me to wait until I had been out of it for 2 weeks. Because I’m working from home that wasn’t an issue for me as when I felt my energy levels dropping I just napped and worked a bit later in the evening. I finally got it done this week but if I’m being honest I still feel like I have no energy. I’ve been in them now since beginning of October and although they make a slight difference initially it’s not as much as I was expecting from seeing the difference in family members who also get them after their injections.

[Cherylclaire Forum Support in reply to Bookworm70]

I also started feeling a bit "left behind" when injections did not seem to do much for me, but couldn't function without them. It has taken me a very long time to get better. I sometimes go back over old diaries just so that I can acknowledge quite how far I have come.

It helped me to self-inject every other day for 2 years, it also took 2 years to get folate and ferritin levels stable. I sometimes wondered if anything would ever change, but very, very gradually it did -and I have now reduced the frequency to about 2 a week. We are all different, with many symptoms that vary wildly, and different reactions to treatment - you can see why GPs get so confused/panicked by this.

It's been about 5 years since I first went to the GP about daily joint pain, diarrhoea, fatigue. I got much worse after loading stopped and having to wait 3 months - I was unable to work at all for over a year.

For some people, it takes a long time to notice symptoms are diminishing.

[Ryaan]

Most surgeries are closed, not seeing patients at all as the corona.....what ?......Lol.....I think I’ve heard something about it also !!!.....The world is in lockdown.

It’s great you had the injection in the car park.

Self inject is best way rather than going through all the trouble.

Wishing you well.