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Pernicious Anaemia Society

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Surprised confirmation of B12 injection appointment

carer999 profile image
6 Replies

Just had a text message confirming my appointment tomorrow with the nurse for B12 injection and review. I was expecting a cancellation message. I will go at the appointed time with my B12 vial and see what happens.

Perhaps it's just an automated system which they haven't switched off. Only time will tell but perhaps I shouldn't build up my hopes.

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carer999
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6 Replies
clivealive profile image
clivealiveForum Support

If (hopefully) the appointment goes ahead and you have your own supplies of B12 ask if the nurse could let yo have a few needles so that you can inject yourself should your surgery close. This happened to me last week

I wish you well

ellj profile image
ellj

Fingers crossed for you.

Ell

Nackapan profile image
Nackapan

I had one and it did happen!

Sleepybunny profile image
Sleepybunny

Hi,

"for B12 injection and review"

The word "review" would make me wary.

Is it an annual medication review?

I'd be surprised if it was as I think this would count as non essential during pandemic.

I suggest being prepared with some useful info/letter to GP in case they announce they are stopping jabs during pandemic or changing them to oral tablets.

Useful links if B12 injections affected by pandemic

From PAS website

pernicious-anaemia-society....

From B12 Deficiency Info website

b12deficiency.info/blog/202...

b12deficiency.info/blog/202...

b12deficiency.info/blog/202...

If they do plan to stop jabs....

You may want to pass on info about

1) Consequences of under treatment

Neurological Consequences of B12 Deficiency

PAS news item

pernicious-anaemia-society....

PAS article about SACD, sub acute combined degeneration of the spinal cord, access to PAS members only.

pernicious-anaemia-society.... See page 2.

Letters to GP about under treatment of B12 deficiency with neuro symptoms

b12deficiency.info/b12-writ...

2) Reliability of oral B12 treatment

Blog post about oral B12 treatment

martynhooper.com/2016/08/02...

B12 article from Mayo Clinic

ncbi.nlm.nih.gov/pmc/articl...

Suggests

a) No proof that oral b12 is a good at treating B12 deficiency as B12 injections

b) Many current diagnostic tests eg serum b12, active B12, MMA, Homocysteine, are not totally reliable

c) Successful treatment should not be stopped

If not already a PAS member, it may be worth joining now.

There is a helpline number for members to ring.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no 01656 769717 answerphone

PAS support groups in UK

pernicious-anaemia-society....

Symptoms Diary

On another thread, I suggested that people who are put onto oral B12 (or have B12 treatment totally stopped) should keep a daily symptoms diary and record if and when their symptoms return and keep GP informed by letter that symptoms are returning.

I am not medically trained.

Of course I hope you get your jab and they continue to be able supply them.

carer999 profile image
carer999 in reply to Sleepybunny

The review is the annual one that has been flagged as due early April on my perscription. Normally it is just a conversation to confirm I am still taking all the items and a blood test for under active thyroid. Normally without a review I can't submit a perscription renewal request.

I made the appointment early March before all the virus issues arise. I don't know what it will entail now.

carer999 profile image
carer999

I got my injection today. But don't know what will happen with the next one especially as they have held off approving my recent repeat request for more B12.

I may have been lucky as I made the appointment nearly a month ago but they could have cancelled it. I did ask about self injecting but the nurse said no, especially as things may be different when the next is due in 10 weeks time.

When I asked about the arrangements for the next one she couldn't answers as she said it all depends on the government directives at the time. She also suggested I try to last a little longer before asking for the next one. I didn't tell her I self inject.

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