B12 deficiency and MND (Motor Neurone Disease)

[Sleepybunny]

Hi All,

I was reading a news item about a young woman in Scotland who is one of the youngest people in UK to have MND diagnosed.

Every time I read a story like this, I wonder if B12 deficiency could be contributing to the symptoms.

Article about B12 deficiency and MND/ALS

ncbi.nlm.nih.gov/pmc/articl...

Just curious if anyone on the forum has had MND as a suspected diagnosis and then found out they had B12 deficiency.

I think MND is mentioned in Sally Pacholok's book "Could It Be B12.

[Marz]

Also low VitD is linked - Scotland being short of sunshine !

[ellj]

I have always wondered about my diagnosis of MS which came many years before my PA was picked up.

[Sleepybunny in reply to ellj]

There's a chapter in Sally Pacholok's book that mentions misdiagnosis of B12 deficiency as PA.

[Marz in reply to Sleepybunny]

Did you mean MS ? ☆

[ellj in reply to Marz]

Yes, I have among other issues MS.

[Marz in reply to ellj]

My reply was to sleeptbunny ! 🌟

I see you have a Thyroid problem too. Are you bringing g well treated ?

[ellj in reply to Marz]

Ooops sorry Marz, yes my thyroid is stable after getting lots of tests and self treating with t3. My PA is also self treated though I do have a regular injection at my gp surgery because I have decided not to I form the gp that I SI.

I have fibromyalgia diagnosed by Rheumatology dept. RA also diagnosed by Rheumatology.

My MS is RR but I do not take any DMD, s.

[Marz in reply to ellj]

I think you are on the right track with T3. How much do you take ?

[Sleepybunny in reply to Marz]

In my original post I was referring to MND/ALS and in above post I meant MS.

There are so many misdiagnoses of B12 deficiency.

[Marz in reply to Sleepybunny]

Agree !