Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2020

Confused about Folate

I’m halfway through having B12 loading shots (6 over three weeks, it’s the only way they could fit me in). Then have been told I will need shots every 12...

I’m halfway through having B12 loading shots (6 over three weeks, it’s the only ...

Cinders70

•4 years ago

8 Replies

More battles with GP

Hi everyone, GP has now stopped continuing loading doses ( after 6 + 10 ) ‘whilst improvement’ continued. Now he’s backtracking on ‘PA’ verbally conceded 3...

Hi everyone, GP has now stopped continuing loading doses ( after 6 + 10 ) ‘whils...

CarlaEP

•4 years ago

5 Replies

Help please I'm PREGNANT

Good afternoon. I have had this text message this afternoon from my GP. 'Thank you for your enquiry about B12 injection. Your records show that immunological...

Good afternoon. I have had this text message this afternoon from my GP. 'Thank...

Yoshi12

•4 years ago

20 Replies

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Hope

I Have injections for b12defichency do they work i have low thyioride and ereguler heartbeat

I Have injections for b12defichency do they work i have low thyioride and eregul...

Wllliam

•4 years ago

6 Replies

Does anyone out there have itch symptoms?

I develop increasingly severe itching especially at night about 3 weeks before my 8 weekly injection which subsides around a week after B12 injection. Doctor...

I develop increasingly severe itching especially at night about 3 weeks before m...

newlandvale

•4 years ago

7 Replies

Public Petition?

Any thoughts on creating a petition on Change.org to Public Health England to recognise and restore B12 injections as an essential treatment during COVID-19?

Any thoughts on creating a petition on Change.org to Public Health England to re...

tessanw

•4 years ago

6 Replies

Essential Supplies for the coming weeks

Sainsbury’s have no delivery slots for the next three weeks, but fortunately other suppliers are not so constrained, and a couple of orders made late last week...

Sainsbury’s have no delivery slots for the next three weeks, but fortunately oth...

Midnight_Voice

•4 years ago

5 Replies

Slowly deteriorating

I got diagnosed with PA in 2012, had the loading doses and was started on 12 weekly jabs. Going well, felt pretty good. In 2015 I started to notice that the...

I got diagnosed with PA in 2012, had the loading doses and was started on 12 wee...

ExploringWonderland

•4 years ago

2 Replies

Delay due to Covid 19

Due for B12 injection 3.04 20 told to wait until surgery is out of lockdown. Eating a banana each day what else can I do ?

Due for B12 injection 3.04 20 told to wait until surgery is out of lockdown. Eat...

Bampa2

•4 years ago

2 Replies

UPDATE Help my elderly mum - please

Just an update, but unfortunately not good :-( In terms of history, a GP stopped my mum's B12 injections for 2 years when she asked for more B12 because of...

Just an update, but unfortunately not good :-( In terms of history, a GP stopp...

Colb53

•4 years ago

5 Replies

B12 shots.

So my doctor after seeing my symptoms told me to get 5 shots at the gap of 3 days then 6 weekly and finally 4 monthly of 1000mcg I've had 5 so far. But for...

So my doctor after seeing my symptoms told me to get 5 shots at the gap of 3 day...

Shipra33

•4 years ago

2 Replies

Self injecting

I finally took the plunge - literally - earlier and injected B12 myself for the first time. I was quite nervous but having had some great advice here, and...

I finally took the plunge - literally - earlier and injected B12 myself for the ...

Hidden

•4 years ago

11 Replies

B12 injections PA

Hi, I was recently diagnosed with PA and had my first 6 injections, my next one is due at the end of May, however over the past few days, I've noticed that...

Hi, I was recently diagnosed with PA and had my first 6 injections, my next one ...

Eric69

•4 years ago

6 Replies

B12 deficient or PA?

Hi All I was diagnosed as b12 deficient over 6 years ago and put on injections every 12 weeks. I now have injections every 8 weeks. My doctors never bothered...

Hi All I was diagnosed as b12 deficient over 6 years ago and put on injections e...

Alfabeta

•4 years ago

7 Replies

Hard hitting blog post about stopped injections

Hi, Another new blog post on B12 Deficiency Info website https://www.b12deficiency.info/blog/2020/04/01/b12-cancelled-see-you-in-six-months-if-you-make-it/

Hi, Another new blog post on B12 Deficiency Info website https://www.b12deficien...

Sleepybunny

•4 years ago

4 Replies

B12 injections not happen ing

Hi i have pa and recently just been diagnosed with severe anaemia I have shots every 8 weeks and just been told doctors are not doing b12 injections I really...

Hi i have pa and recently just been diagnosed with severe anaemia I have shots e...

Valerieelsie

•4 years ago

6 Replies

B12 and Periods!!!

Okay so I've had 5 weekly shots of b12 and after the 3rd one I actually started to see some improvements in my energy levels, mood and partially some fog had...

Okay so I've had 5 weekly shots of b12 and after the 3rd one I actually started ...

Shipra33

•4 years ago

7 Replies

A couple questions regarding blood work/lab results.

Hi, I’ll quickly just give some context and then get straight to the point. I was diagnosed with a very low b12 level 6 years ago at a level of 130 or so...

Hi, I’ll quickly just give some context and then get straight to the point. I wa...

trying2figureitout

•4 years ago

3 Replies

Autoimmune atrophic gastritis , pernicious anaemia and Hashimoto’s thyroiditis

Hi , New to this community and great to have this forum Recently diagnosed with AAG with high Gastrin level and pernicious anaemia. I have Hashimoto’s...

Hi , New to this community and great to have this forum Recently diagnosed with ...

Knittingcat123

•4 years ago

3 Replies

Aluminium in Hydroxocobalamin?

Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It...

Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalam...

indywindy

•4 years ago

12 Replies

What do you think about this PAS article?

PAS advice to GPs on how to manage PA during pandemic......

Sleepybunny

•4 years ago

3 Replies

PAS Developments on Stopped Injections

Hi Everyone, Apologies if already posted. PAS news item from 29th March....

Sleepybunny

•4 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2020

Confused about Folate

More battles with GP

Help please I'm PREGNANT

Hope

Does anyone out there have itch symptoms?

Public Petition?

Essential Supplies for the coming weeks

Slowly deteriorating

Delay due to Covid 19

UPDATE Help my elderly mum - please

B12 shots.

Self injecting

B12 injections PA

B12 deficient or PA?

Hard hitting blog post about stopped injections

B12 injections not happen ing

B12 and Periods!!!

A couple questions regarding blood work/lab results.

Autoimmune atrophic gastritis , pernicious anaemia and Hashimoto’s thyroiditis

Aluminium in Hydroxocobalamin?

What do you think about this PAS article?

PAS Developments on Stopped Injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive