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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2020

How to buy B12 injections.

I have been trying to order B12 from Versandapo. But I cannot find a site in English. I tried to order on the German page but it would not go to the Paypal...

I have been trying to order B12 from Versandapo. But I cannot find a site in Eng...

Moobli

•4 years ago

9 Replies

B12 injections

My friend that lives in Germany sends me 100 ampules at a time they only cost £37

My friend that lives in Germany sends me 100 ampules at a time they only cost £3...

Queeniz

•4 years ago

6 Replies

Exhausted after a shot

Hi there, I have taken my shot on Wednesday, and since then I have been feeling way worse than I did before. After my first 6 shots, it took me around two...

Hi there, I have taken my shot on Wednesday, and since then I have been feelin...

Raqc

•4 years ago

3 Replies

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More injections cancelled

Having been pleased to get my routine B12 injection only last week, today received a letter for my GP practice postponing future ones. Letter contained the...

Having been pleased to get my routine B12 injection only last week, today receiv...

Ghound

•4 years ago

11 Replies

Hydroxocobalamin ampules

Hi all Where can I purchase ampules 1mg/ml in U.K. please? Searching online with no joy. I simply cannot manage the magic “12wkly” my GP insists on!

Hi all Where can I purchase ampules 1mg/ml in U.K. please? Searching online with...

Misty-lady

•4 years ago

12 Replies

Hi this is a first time post

I don't know anything about this condition and I'm posting for my mam she had bloods done back in 2018 and was told all was fine yet we have a print out now...

I don't know anything about this condition and I'm posting for my mam she had bl...

Noodledoodel

•4 years ago

4 Replies

New with a question of 2.

Hi all I have hashimotos and saw an endocrinologist in Dec. Had bloods done and I have parietal cell antibodies and a b12 result of 473 (197-771 pg/ml) was...

Hi all I have hashimotos and saw an endocrinologist in Dec. Had bloods done and ...

bluejoppo

•4 years ago

1 Reply

Anyone in the Fife area received a call from their GP stopping B12 injections.

Hi. Thanks in advance. Diagnosed in 2017 (after private bloods) with B12 deficiency and Periferal Neuropathy by GP. Received loading doses and put on 12 week...

Hi. Thanks in advance. Diagnosed in 2017 (after private bloods) with B12 deficie...

MKitty

•4 years ago

16 Replies

Emla numbing cream

Hi all just thought I’d share some info for the people like me who are scared of self injection. I’ve just been to the chemist you can buy this cream otc no...

Hi all just thought I’d share some info for the people like me who are scared of...

Hidden

•4 years ago

10 Replies

B12 Advice please.

Hi All I am still looking for an answer for aching muscles, which I've had for the last 3+ years now, so I've come on this forum. 90% of the aches are in the...

Hi All I am still looking for an answer for aching muscles, which I've had for t...

Hidden

•4 years ago

3 Replies

B12 availability after leaving EU?

Will B12 ampoules be available after leaving the EU? If so, which is the cheapest/best company to deal with? Can you use PayPal? Or Amazon?

Will B12 ampoules be available after leaving the EU? If so, which is the che...

Oundle

•4 years ago

6 Replies

Anyone know a frontline NHS worker who has B12 deficiency - and would like a portrait?

I heard about the artists who are offering free portraits to frontline NHS workers, as a means of support. This started as an offer from one artist, and has...

I heard about the artists who are offering free portraits to frontline NHS worke...

Cherylclaire

Forum Support•4 years ago

13 Replies

Spray

Morning...doctors standing ground told me to take a tablet one every day for a month.to boost my B12 Symtoms worsening after two weeks both hands mostly right...

Morning...doctors standing ground told me to take a tablet one every day for a m...

Mozza127

•4 years ago

12 Replies

Doctor's appointment coming up

Hello I have a doctor's appointment on Monday, I haven't seen a doctor in about a year and a half. I have a lot of the symptoms listed on here. Shortness of...

Hello I have a doctor's appointment on Monday, I haven't seen a doctor in about...

Autumn11

•4 years ago

7 Replies

New PAS news - BSH treatment advice during pandemic changed

Hi, PAS news item published today 25th which discusses changes BSH have made to their advice to doctors during pandemic....

Hi, PAS news item published today 25th which discusses changes BSH have made to ...

Sleepybunny

•4 years ago

13 Replies

Neurological symptoms: self injecting how long to see some improvement.

Recently Diagnosed ‘low B12’ (165) after one year neurological symptoms (and probable 4 years of symptoms put down to old age by me pains/reflux/...

Recently Diagnosed ‘low B12’ (165) after one year neurological symptoms (and pro...

CoolGilly

•4 years ago

27 Replies

Tablet instead of injection for PA

Hi I was diagnosed with PA August 2016, injections were organised and have continued without fail until now. After my last injection in March I have noticed...

Hi I was diagnosed with PA August 2016, injections were organised and have conti...

Mazza63

•4 years ago

16 Replies

I have weakness ache feeling mainly in both legs and and really feel un balanced fuzzy

I have had weakness ache legs feel un balanced and fuzzy with lack of energy and belly not feel right to been going on for a couple of year just lean to live...

I have had weakness ache legs feel un balanced and fuzzy with lack of energy and...

Gary19610

•4 years ago

3 Replies

Broken

As if I thought nothing else could happen, then it happened...... Saturday 18th April at 1:43pm my cat Isabelle died in my arms :( I feel empty & broken cos...

As if I thought nothing else could happen, then it happened...... Saturday 18th ...

Queeniz

•4 years ago

34 Replies

Methycobalamin

Hi, I have PA diagnosed October 2018 with full blown symptoms . I have started with cyano, Hydroxocobalamin initially which did not work so switched to...

Hi, I have PA diagnosed October 2018 with full blown symptoms . I have started w...

Thulasi1

•4 years ago

4 Replies

Transdermal patches

Has anyone used the b12 transdermal patches and if so are they any good? Thanks.

Has anyone used the b12 transdermal patches and if so are they any good? Thanks...

Fedup2020

•4 years ago

4 Replies

buying needles - learn from my mistake

In preparation for my self injecting at home I have ordered needles etc from Medisave... In my befuddled state I thought I order 10 of everything to try,...

In preparation for my self injecting at home I have ordered needles etc from Med...

bambuko

•4 years ago

14 Replies

Advice on staying asleep

Hello, I'm having trouble staying asleep, I can fall asleep pretty good but wake up in the middle of the night and can't go back to sleep. And plus I have...

Hello, I'm having trouble staying asleep, I can fall asleep pretty good but wake...

Autumn11

•4 years ago

29 Replies

Issues with Methyl B12?

After a lot of physical and mental health (anxiety, panic) issues over the years I started to get my b12 checked monthly with my usual bloodwork. First one...

After a lot of physical and mental health (anxiety, panic) issues over the years...

mustang1982

•4 years ago

3 Replies

Hollow stomach and feeling nauseas

I have been having B12 injections for about 12 years, every 3 months. But I still feel very exhausted much of the time. It comes and goes, but even at my best...

I have been having B12 injections for about 12 years, every 3 months. But I sti...

Wallacestevens

•4 years ago

3 Replies

B12 injections

Reading the posts about gps surgeries not doing our b12 injections with worry. My surgery is one of the ones not doing them but a couple of friends are being...

Reading the posts about gps surgeries not doing our b12 injections with worry. M...

Traceyma

•4 years ago

28 Replies

B12 self injections - how are they done?

I'm new here and thought I posted this query earlier but it appears to have disappeared so I'll try again! I am not able, along with everyone else I guess, to...

I'm new here and thought I posted this query earlier but it appears to have disa...

Loobs39

•4 years ago

4 Replies

PA and Clammy

Hello, I got diagnosed with PA around 6 months ago and Ive been doing weekly injections and almost all of my symptoms have gone away. However, I do sometimes...

Hello, I got diagnosed with PA around 6 months ago and Ive been doing weekly inj...

Dakota17777

•4 years ago

3 Replies

Mixing types of b12

Hi can i have my 3 month methylcobalmin injection at surgery and self inject with hydroxycobalmin in between. Just not sure if i can use two different sorts...

Hi can i have my 3 month methylcobalmin injection at surgery and self inject wit...

Linmareth

•4 years ago

4 Replies

Auto Injector

FAO ChronicHealthWarrior This is mine & worth every penny. As Wedgewood said, they're from Union Medico. Be careful when ordering as you have to use BD Luer...

FAO ChronicHealthWarrior This is mine & worth every penny. As Wedgewood said, t...

Ritchie1268

•4 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2020

How to buy B12 injections.

B12 injections

Exhausted after a shot

More injections cancelled

Hydroxocobalamin ampules

Hi this is a first time post

New with a question of 2.

Anyone in the Fife area received a call from their GP stopping B12 injections.

Emla numbing cream

B12 Advice please.

B12 availability after leaving EU?

Anyone know a frontline NHS worker who has B12 deficiency - and would like a portrait?

Spray

Doctor's appointment coming up

New PAS news - BSH treatment advice during pandemic changed

Neurological symptoms: self injecting how long to see some improvement.

Tablet instead of injection for PA

I have weakness ache feeling mainly in both legs and and really feel un balanced fuzzy

Broken

Methycobalamin

Transdermal patches

buying needles - learn from my mistake

Advice on staying asleep

Issues with Methyl B12?

Hollow stomach and feeling nauseas

B12 injections

B12 self injections - how are they done?

PA and Clammy

Mixing types of b12

Auto Injector

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive