Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for April 2020

The first of my flag irises has bloomed!

It really cheered me up, I hope it does the same for you x

Showgem

•4 years ago

8 Replies

Test results and needing some help

Hi, i am looking for some advice regarding my recent test results. I am new to all of this but have been poorly for almost 3 years. I have tried so hard to get...

Hi, i am looking for some advice regarding my recent test results. I am new to a...

Belalf

•4 years ago

3 Replies

Symptoms appear after starting B12?

Hi everyone. I'm new here and was recently diagnosed with B12 deficiency (161 is my result, 200-914 normal). I haven't been diagnosed with Anaemia as of yet,...

Hi everyone. I'm new here and was recently diagnosed with B12 deficiency (161 i...

connorg3

•4 years ago

5 Replies

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IBS Diagnoses

Hi, My gp has diagnosed IBS, is there any connection with this and B12 deficiency? I just wondered as it seems it has many symptoms.

Hi, My gp has diagnosed IBS, is there any connection with this and B12 deficienc...

Brookey

•4 years ago

37 Replies

B12 Duration!

How many months on an average can it take to fully recover from b12 deficiency with injections? I know it matters on how much you are deficient and for how...

How many months on an average can it take to fully recover from b12 deficiency w...

Shipra33

•4 years ago

3 Replies

Hope ........................

Hi just wanted to update everyone, diagnosed with PA 20 years ago and been on 8 weekly injections for past 6 years. Seems to have been a constant battle with...

Hi just wanted to update everyone, diagnosed with PA 20 years ago and been on 8 ...

JanineRockChick

•4 years ago

5 Replies

Multi vitamins

Hi All I’ve read on here numerous times from people who know that high doses of b12 in tablet form are pointless as the body only absorbs a small proportion of...

Hi All I’ve read on here numerous times from people who know that high doses of ...

Alfabeta

•4 years ago

5 Replies

Auto-injector?

Hello, I wondered if this thread already exists somewhere on here, but has anyone found a good auto-injector device to help make self-injecting easier? I think...

Hello, I wondered if this thread already exists somewhere on here, but has anyon...

ChronicHealthWarrior

•4 years ago

6 Replies

B12 injections online

Hi all, I am desperate for Hydroxocobalmin injections (unable to get via GP as not deemed an emergency) I have tried ordering from Amazon germany as previous...

Hi all, I am desperate for Hydroxocobalmin injections (unable to get via GP as n...

NSummer

•4 years ago

11 Replies

Feeling Really Ill

I’ve been feeling a lot better for the last few months, however 3 days ago I noticed I would suddenly go extremely tired and can’t function after eating. Head...

I’ve been feeling a lot better for the last few months, however 3 days ago I not...

Hayley31

•4 years ago

8 Replies

B12 Injections or lack of!

I'm due my 8 week B12 injection on Thursday and I cannot get my GP to give me the injection even though I have Pernicious Anaemia. Can I buy the injection and...

I'm due my 8 week B12 injection on Thursday and I cannot get my GP to give me th...

Bobs4803

•4 years ago

19 Replies

Sharps bin collection

Hi all hope you can help. I’ve had to move onto self injecting due to my GP stopping injections because of coronavirus. They wanted to put me on lozenges that...

Hi all hope you can help. I’ve had to move onto self injecting due to my GP stop...

Kaceysimo

•4 years ago

16 Replies

mthfr mutation, what kind of B12 injections?

If I have mthfr mutation can I use cyanocobalamin injections? I never saw methylocobalamin injections in Poland. What do I do?

If I have mthfr mutation can I use cyanocobalamin injections? I never saw methyl...

IgnoranceSound

•4 years ago

3 Replies

How to get diagnosis?

My B12 is over the roof but I have most of the symptoms of B12 deficiency. My red blood platelets are within top of the range. Waking up with anxiety lately. I...

My B12 is over the roof but I have most of the symptoms of B12 deficiency. My re...

IgnoranceSound

•4 years ago

16 Replies

Help with needle sizes please.

Hi could somebody who currently self injects intramuscularly, please advise what needles are required.

Hi could somebody who currently self injects intramuscularly, please advise what...

Gudge66

•4 years ago

9 Replies

"Self" injecting

My wife Gill successfully gave me the first "at home with doctor's permission" B12 injection since we went into self isolation. She was shown how to do it by...

My wife Gill successfully gave me the first "at home with doctor's permission" B...

clivealive

Forum Support•4 years ago

35 Replies

B12 injections unavailable

I spoke to my practice nurse 2 wks ago cos my b12 was due but she informed me that due to covid-19 they would not be doing them. She then said the body can...

I spoke to my practice nurse 2 wks ago cos my b12 was due but she informed me th...

Claire1966

•4 years ago

38 Replies

APP RECOMMENDATIONS

Looking for app recommendations. Want a place to sync symptoms ie fatigue, dizziness, the whole ball of wax. But also has a place for notes/journalling....

Looking for app recommendations. Want a place to sync symptoms ie fatigue, dizz...

KimD66

•4 years ago

4 Replies

Plea from B12 Deficiency Info about OTC B12 injections

Hi, Tracy Witty of B12 Deficiency Info is asking people to join in an e-mail campaign to get OTC B12. OTC (Over the counter)...

Hi, Tracy Witty of B12 Deficiency Info is asking people to join in an e-mail cam...

Sleepybunny

•4 years ago

3 Replies

Gp stopped my b12 injection and Iv had pernicious anemia 11 years , is this allowed apparently due to new research says my gp

I was refused my b12 injection for PA 18 month ago by my gp apparently new research came to light ,antibodies was negative so I do not require lifelong...

I was refused my b12 injection for PA 18 month ago by my gp apparently new res...

Ashp24

•4 years ago

30 Replies

New blog post about Covid crisis and effect on B12 patients

Hi, B12 Deficiency Info website has another new blog post about how B12 deficient patients are being left traumatised by changes in treatment brought on by...

Hi, B12 Deficiency Info website has another new blog post about how B12 deficien...

Sleepybunny

•4 years ago

1 Reply

Bladder issues?

Does anybody experience any bladder problems? If so...why?

Autumn11

•4 years ago

19 Replies

Did anyone experience any side effects 24 hours after receiving an iron infusion?

Lilianxious

•4 years ago

13 Replies

Cost of b12 ampules from Germany

Can anyone let me know how much it costs to buy B12 ampules from Germany for self-injecting. Many thanks Saramt

Can anyone let me know how much it costs to buy B12 ampules from Germany for sel...

saramt

•4 years ago

10 Replies

Reminder - Petition - Injectable B12 over the counter UK

Hi, I know this petition has been posted many times before but I feel it is especially urgent at the moment. 90,513 have signed so far....

Hi, I know this petition has been posted many times before but I feel it is espe...

Sleepybunny

•4 years ago

3 Replies

Hope

Reading of members anziety, why don't nhs have a drive through for b12 injections for people who have been told they need them for life.

Reading of members anziety, why don't nhs have a drive through for b12 injection...

Wllliam

•4 years ago

3 Replies

Struggling as tired. Always

Hi I'm angie have had underactive thyroid since I was 25 get pills for it and had gastric bypass in 2006 and get B12 but I'm still exhasuted

Hi I'm angie have had underactive thyroid since I was 25 get pills for it and ha...

Shaharazad

•4 years ago

2 Replies

Cyanocobalamin Tablets

Hi I have been having B12 injections for many years now and have them every 10 weeks. Obviously with the Covid19 virus they have been stopped and I have been...

Hi I have been having B12 injections for many years now and have them every 10 w...

SusanMargaret47

•4 years ago

24 Replies

Chili Cream??

My Neurologist rang me yesterday to check how my painful feet have been since my last appointment with her a few months ago. Even though they still hurt when I...

My Neurologist rang me yesterday to check how my painful feet have been since my...

Ritchie1268

•4 years ago

20 Replies

Help with b12 shots

I was getting help with my b12 for every 2 months and all of a sudden my gp has changed her mind and I’m due my shot in 3 weeks but I’m bearly living at the...

I was getting help with my b12 for every 2 months and all of a sudden my gp has ...

LittleA

•4 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2020

The first of my flag irises has bloomed!

Test results and needing some help

Symptoms appear after starting B12?

IBS Diagnoses

B12 Duration!

Hope ........................

Multi vitamins

Auto-injector?

B12 injections online

Feeling Really Ill

B12 Injections or lack of!

Sharps bin collection

mthfr mutation, what kind of B12 injections?

How to get diagnosis?

Help with needle sizes please.

"Self" injecting

B12 injections unavailable

APP RECOMMENDATIONS

Plea from B12 Deficiency Info about OTC B12 injections

Gp stopped my b12 injection and Iv had pernicious anemia 11 years , is this allowed apparently due to new research says my gp

New blog post about Covid crisis and effect on B12 patients

Bladder issues?

Did anyone experience any side effects 24 hours after receiving an iron infusion?

Cost of b12 ampules from Germany

Reminder - Petition - Injectable B12 over the counter UK

Hope

Struggling as tired. Always

Cyanocobalamin Tablets

Chili Cream??

Help with b12 shots

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