Spray: Morning...doctors standing... - Pernicious Anaemi...

Pernicious Anaemia Society

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Spray

Mozza127 profile image
12 Replies

Morning...doctors standing ground told me to take a tablet one every day for a month.to boost my B12

Symtoms worsening after two weeks both hands mostly right one cramps pins and needless. .got that bad bought a splint for right hand also shooting pains in toes .bad tummy and feeling sick..breathlessness is starting to come back and feeling excusted even when just got up...I had a full body scan 8 weeks ago and was fine.. so since goin on tablets cus of outbreak of corona my symtoms are worsening.even bought folic acid and omega 3.and multi vitamins..some one said try b12 spray as it gets in ur system is this true.getting me down

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Mozza127 profile image
Mozza127
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12 Replies
Nackapan profile image
Nackapan

Have you written to Gp stating your symptoms?

Telephone consult? Prescription for sI

Keep pushing

Have you a diagnosis of PA or absorbtion issue?

PAS latest guidance on b12 I jections in the current climate should help. On a recent Sleeotbunny post

Otherwise get your own you know what works for you

Shouldnt be denied treatment

Mozza127 profile image
Mozza127 in reply toNackapan

Yes was on injections for a year..even got them to eveyone 8 weeks to keep symtoms at bay.but all have stopped due to guidelines

Mozza127 profile image
Mozza127 in reply toNackapan

Written to GPS weeks ago they said we advise you to take one a day instead of one a week...I knew it wouldent help

PAS-admin profile image
PAS-adminPartner

Refer to the latest BSH guidance as it clearly states that if patients begin to experience neurological symptoms they should contact their GP. As to the spray, some people benefit from it but others not. It does require careful storage, dark and cool.

Mozza127 profile image
Mozza127 in reply toPAS-admin

Cheers .I will try it for a week if no change in will write to docs again

Mozza127 profile image
Mozza127 in reply toPAS-admin

It is making my anxiety worse to as I lost my mum and my little girl two years ago.I was fit as a fiddle until this crushed me.I told doctors this to.

..they just stick to guide lines..no emotional feeling or understanding

Gambit62 profile image
Gambit62Administrator in reply toMozza127

this is link to the BSH guidance for during COVID-19

pernicious-anaemia-society....

suggest you share with GP

In terms of the tablets - you don't have to limit yourself to 1 a day - so, you could try taking more, you could try combining with the spray. Providing it is only vitamin B12 it won't hurt to use it more frequently.

Mozza127 profile image
Mozza127 in reply toGambit62

Thanks for help

briarhillcat profile image
briarhillcat in reply toMozza127

So sorry for your loss. It must be awful for you and you need all the help and understanding you can get. Take care of yourself.

fbirder profile image
fbirder

Experiments show that about 1% of a 1000 mcg sublingual dose is absorbed.

Experiments also show that about 1% of a 1000 mcg oral dose is absorbed.

But if 99% of the sublingual dose is swallowed then you'd expect 1% of that to be absorbed. So blood levels should rise twice as high with a sublingual dose. They don't.

The sensible explanation is that none of the sublingual dose is actually absorbed from the mouth. Instead it is all swallowed and becomes an oral dose.

briarhillcat profile image
briarhillcat

Hello Mozza127. You definitely need the injections. tablets or anything taken orally. i.e. B12 rich food, will just not be absorbed. So many of us on here are going to self inject (I practised on an orange. Going to do it. My surgery will not give them to me. Do not suffer like you are, you are not alone. We are all here to help each other. Read other peoples posts and see how many of us are the same and are either self injecting already or are going to do it. Good Luck. briarhillcat

Fedup2020 profile image
Fedup2020 in reply tobriarhillcat

Hi this forum is great... can yuu tell me where you will get your b12 injectables from. Cheers.

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