My husband has just had a phone call from his GP saying they can't give him his B12 on Monday as it's not safe.would I be able to give it him,is that allowed.can anyone help please.thanks.
Can I Give it: My husband has just had... - Pernicious Anaemi...
Is the surgery supplying the wherewithal ? ( ampoules , syringes , needles and swabs ) I’ve been self-injecting for 4years . ( because 1 injection every 3months was not sufficient , and I could not get any extra) I must confess that I was very nervous at first . But it becomes second nature in no time . I’m sure that you could do it -it’s not rocket science . I will send you some hopefully helpful tips if you would like that . There are some videos demonstrating self-injection on Utube — some good , some poor . Have a look !
You need to speak to the GP and find out exactly why 'it isn't safe'. B12 is an essential medication and is given to prevent your husband becoming B12 deficient. As one of the symptoms of B12 deficiency is increased susceptibility to infections, failing to treat your husband would actually be risking making him more susceptible to COVID-19.
Advice on dealing with situations in which injections are being denied can be found here
Hi, my Drs this week have taught me how to self inject. They have provided everything I need and I will get a prescription sent in the post that I can take to a chemist just prior to my next one being due. I did my first self injection this week under nurse supervision in to my outer thigh and it was a lot easier that I thought it would be. Take care.
As a Comunity nurse myself I would ask please, if at all possible, that whoever is able, try to do your injections yourself while the pandemic is ongoing. District nurses will be over run helping to manage the overspill from the hospital such as caring for people to prevent admissions and also supporting patients following discharge home (patients will be sent home at the earliest possible time to make more space for new suffers) this is alongside their usual work. If you can’t self inject for some reason then it is more than acceptable for a member of your current household to administer it for you. Yes it takes guts but we all have to step up at the moment to help our NHS.
I agree with you.
Education will be key here:
it also took guts for you when you had to do your first one. Hopefully, good training and confidence-building helped you. Someone to show you, then watch you do it. This is how people without any experience can be helped to feel safe about what they are doing to themselves or loved ones.
What could go wrong ? What can they do to minimise that risk ? What are they most afraid of ? Where is the best area ? Where to steer clear. How to access sufficient B12 ampoules and equipment. That sort of thing.
It is not that difficult - but a lot of conflicting advice and, frankly, some bad practice on youtube videos. Also B12 deficient patients can have shaking hands, jerking legs, cognitive problems, anxiety, memory problems - all of which could make for impeded learning or impaired practical aptitude. Some of these symptoms might also mean partners or family would be reluctant to administer injections without any professional training or advice.
But firstly, practices have to agree that this is the route they are all taking. A united front.
So far, I am not seeing this in the forum posts. A lot of people might really welcome autonomy - but still need teaching.
Advice here on this forum was invaluable to me when none of the practice nurses would show me how to self inject, and watching videos on the library computer either wasn't enough - or was way too much.
I'm not a medical professional, just a teacher who still believes education to be the answer to nearly every question !
Yes i agree.
Even though I've asked several times even before shut down with the virus no teaching or instruction of self help was offered. Even for an IM injection
I am awaiting a prescription to be left for me.
My surgery at present phone on the day or day before to see if you symptom free then the door is unlocked for you to go into a room with a masked gowned nurse.
Which is alot better than some. So I'm pleased on alot if fronts I will be going less and less often for Im. Working with them.
Also so glad I've now got supplies like so many.
One of my daughters is due her b12 Injection had no contact if what to do from surgery and surgery not replying to emails and havent it seems left a line open for incoming calls. It says to phone but a week of trying and being on hold for up to 5o minutes stressful and unacceptable.ive had ti push her ti phone and phone tk no avail. She is poorly and I've urged her to now call 111 .. some like her get too poorly as you say to think straight and push for what she needs. Then could end up in hospital. Not what she needs or the NHS need !! So frustrating so many miles between us
Autonomy is needed with the surgeries as you say.
Would save time for everyone to get that sorted.
That’s such a shame. I know some surgeries are not as progressive as others. I would ask them for the rationale behind their refusal and see if you can work from there. Maybe explain that you are on this forum where many patients do self inject and that you would be happy to be observed doing the first one.
My surgery were more than happy to let me do mine and my mum’s - no questions asked. After all many people have to self inject for various reasons, diabetics, those having IVF etc so I can’t see the difference. Good luck
Yes keep pushing. I had to! The nurses have to be given the go ahead ti cover themselves . It dies happen in many many surgeries .
Diabetics even before injectable pens were taught and expected to do it themselves at home .
B12 issues are just so behind on research, treatment and policies.
Hope you get it sorted
Went for my third loading dose today and the nurse was off sick, so the lady who did it was... I’m not sure... phlebotomist maybe? She said not a full nurse anyway (sorry, I know I should have found out). However, she seems to have dealt with a lot of B12 cases over the years in other practices and has said that she’s used to hearing about people doing their own shots, but it would be down to a nurse to make a decision about whether they would let me or not! I told her the one I saw last week said no, and she suggested to keep trying. I have an appointment. With a different nurse on Wednesday, so will keep asking.
But you are right, if I don’t get anywhere then it’s easier to set out a valid argument in a letter.
At the moment I’m just glad my practice are still doing them as I’ve read about so many of you having problems being told they aren’t immediately important.
I haven’t felt any better yet... maybe a SLIGHT lessoning of the pins and needles and numbness in my hands..
Oh, but since taking the folate tablets which I started a week before the injections, I’ve slept loads better at night and don’t have to keep getting up to go for a pee several times a night.
Hi Cinders70 Order your own stuff - check Wedgwood's posts to find what you need and where to get them. [Think rude thoughts about your surgery] and DIY.
You are halfway there having given injections, I bet a cat was more difficult than you will be.
This is what I did, and you will be safer not going to the surgery.
Thanks beginner1 I have ordered my own stocks from Germany this afternoon as I thought it sounds like a good plan to have spare available anyway.
I will go to the surgery tomorrow as I also need to point out to them that I have bad pins and needles in my hands. I think the GP has recommended doses based on no neuropathic symptoms, despite me mentioning this. I wasn’t asked about any other possible symptoms but have found since reading up that I tick a whole load!
I wrote a detailed reply on another forum thread with links to B12 books, B12 websites, UK B12 documents and other B12 info which you might find helpful.
Thanks so much Sleepybunny! That’s really helpful and a lot of info!
I have bought several books, including vitamin B12 deficiency in clinical practice, which is quite fascinating.
I wish I’d known about all this B12 stuff before, I think I’ve had this for ages! My B12 serum was 85 ng/L a couple of weeks back, and folate low as well (2.8 I think). Looks like I need to push for more injections as I have pins and needles and lots of other symptoms too.
I am 39 year old male living in UK. I have been self injecting for the last two years. 1mg every month. It is very easy to do and almost does not hurt. I do it into my arm. I bought all my gear from Germany at mycare.de/
You need the following:
B12 - Hydroxycomalamine - Rotexmedica,
Terumo Syringe without needle , U-100 , 1ml
Terumo Agani needle 21Gx1
Terumo Agani needle 25Gx1
Hi Dragon2014 I find 200ml syringes easier to deal with, and changed to them so I don't lose part of my B12.
I thought some links could be useful
For Syringes BS-01H( £8.05 for 100) Terumo 1ml Insulin Syringe x 100
For withdrawing needles ... AN- 2138R (£2.35 for 100) - Terumo AGANI Needle 21G Green x 1.5" x 100
For injection needles ... AN- 2525R ( £2.35 for 100) - Terumo AGANI Needle 25G Orange x 1" x 100 - Cutisoft Wipes - Box of 50 x 2 Sachet Injection Swabs