First time order for B12: Hi, After a... - Pernicious Anaemi...

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First time order for B12

8 Replies

Hi,

After a nerve conduction study last week (following a clear MRI) the doctor said my neuro symptoms couldn't be B12 related as I don't have any nerve damage. Considering I've had the symptoms (continuously) for only a year, I know it can take a long time for any damage to occur.

This is just one example of questionable information I've received from so called 'professionals' over the years...

Luckily, a very helpful person here sent me lots of information regarding self treating and I'm wanting to take the plunge and order everything I need today. I can't take another sleepless night with tingling feet and numb hands. But with the current situation around the world, I'm not sure whether all the suppliers are currently shipping to the UK.

Please could anyone let me know which ones are still operational and I can rely on to receive my B12 and needles etc? I know the needles, wipes and so on can be purchased from UK suupliers, but that many people get their ampoules from Germany. I live in the Hebrides, so Royal Mail and Amazon are great but some courier services won't deliver here - or they charge more for delivery than the cost of the actual goods.

Many thanks.

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8 Replies
wedgewood profile image
wedgewood

Just been online for you — versandapo.de is out of stock of Rotexmedica B12 depot ( Hydroxocobalamin) but bodfeld-apotheke.de has it in stock . I recently ordered some for a member of the forum who lived somewhere remote on a Scottish Island , because their address could not be processed . I would do that for you if you have problems .

in reply towedgewood

Thank you so much! I'll give it try and let you know how it goes. Fingers crossed!

Miss-guineapig profile image
Miss-guineapig in reply towedgewood

I ordered about a week ago, I must have just made it, as no word re supply, I'll check though. Thanks for this x

Miss-guineapig profile image
Miss-guineapig in reply towedgewood

Arrived today, I self inject every 4 weeks but get an 8 weekly prescription from GP, so I just need a box of 10 at a time....it's a great service from versandApo x

ellj profile image
ellj

Have you had any b12 injection at all previously to know if you are OK with it.? Very rarely someone might have a reaction to the injection.

So if you will be injecting for first time it is really important that someone else is around when you inject. Not wanting to frighten you but want you to be safe.

in reply toellj

Hi, I was receiving quarterly injections after loading doses up until 2012 when they stopped them because I was pregnant, and refused to resume them once I'd had my baby.

I now can't get GPs or specialists to consider B12 as a cause for my symptoms although I also have psoriasis (mild, thankfully) and Hashimotos disease with very low iron levels. All typical stuff with these autoimmune conditions. My medical records, from 2010 when I was first diagnosed as B12 deficient and requiring injections, have disappeared despite my writing to my current and previous surgeries.

My partner will be with me when I self inject for the first time, but hopefully I should be fine as I've had injections previously... fingers crossed!

ellj profile image
ellj in reply to

Sounds good. Also sounds familiar re the records disappearing when they are the very ones you might challenge, been there though not over my Pernicious anaemia and Hashimotos thyroid disease.

Best wishes Ellj

in reply toellj

It's so frustrating! At least we have Healthunlocked to help us!

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