Need info please

[Andypandy30]

I’m going to a doctors appointment with my daughter and need the latest guidelines from the pa society also something on the diagnosing of children as my membership has ran out and I didn’t realise until now

[Margaret-S]

Hi Andy. Sorry I'm not of any use here really. I hope you get what you need and especially help for your daughter. I'm in the middle of moving house..down sizing..also my 21 year old grandson and 3 year old great-grandson have been very ill. The wee boy was in hospital on a drip last week and now he has chicken pox while my grandson is suffering from a chronic illness which may eventually lead to an operation😢. With all this going on I'm not thinking very clearly at times, but then that's not unusual🤣

How are you getting on yourself? Are you managing better with self injecting? I do hope so. Take care and I sincerely hope and pray that you get the help needed.🌞

[Africangrey]

This video from Dr. Berg may help. youtube.com/watch?v=8Sw61W8...(Not working as expected?)

Also the book: "Could It Be B12?" by Sally Pacholok, RN and Jeffrey Stuart, DO. answers many questions.

[fbirder in reply to Africangrey]

Just some comments on the video:

You don't get gastritis from 'years of consuming junk food'.

You don't have to take methylcobalamin. Any type of B12 is as good, if not better.

It's pronounced bee-tah-een, not bet-ayn. The original chemical comes from beets.

[Africangrey in reply to fbirder]

Good. I agree with that. You should tell Dr. Berg, it is his video.

[Sleepybunny]

Hi,

I hope the GP appointment went well.

UK B12 documents

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

Flowchart from BSH Cobalamin and Folate Guidelines

stichtingb12tekort.nl/weten...

BMJ B12 article

bmj.com/content/349/bmj.g5226

BNF

bnf.nice.org.uk/drug/hydrox...

BNF advice changed recently. GP may not know this as they may be using a BNF that has not been updated.

pernicious-anaemia-society....

There is a separate BNF for children. If your daughter is 16 or above she is likely to be treated as an adult.

BNF for children

bnfc.nice.org.uk/drug/hydro...

NICE CKS

cks.nice.org.uk/anaemia-b12...

Vitamin B12 deficiency in children

stichtingb12tekort.nl/weten...

Article is from Dutch website so units and ranges mentioned may be different to UK.

Children and B12

b12deficiency.info/children...

Children's FAQ from PAS website

pernicious-anaemia-society....

PAS blog posts about children with PA

These may be upsetting to read.

martynhooper.com/2019/06/04...

martynhooper.com/2017/07/21...

I am not medically trained.