Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for February 2019

B12 re-test after shots

How many days after taking b12 shots should I re-test for B12?

andy109

•5 years ago

11 Replies

Therapeutic dose of B 12

Wondering if someone can help me. I keep reading on various fb forums that your b12 level needs to be over 1000 to benefit from neurological symptoms . I’ve...

Wondering if someone can help me. I keep reading on various fb forums that your ...

Freezeframe

•5 years ago

2 Replies

Travel insurance

Travel insurer requests number of ml of? Per litre. I don't understand what this is. Can anybody help

Travel insurer requests number of ml of? Per litre. I don't understand what this...

Alsmissus

•5 years ago

1 Reply

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Successful outcome

Hi all I just wanted to update you all on my success to have my injections increased to every eight weeks. As you May or may not know the background to this I...

Hi all I just wanted to update you all on my success to have my injections incre...

Soulsister

•5 years ago

21 Replies

Unco-operative GPs.

Well, I had a terrible day yesterday. My GP informs me - again - that most of us imagine our symptoms and any improvements we feel after injections. He was...

Well, I had a terrible day yesterday. My GP informs me - again - that most of us...

Dragonwalker

•5 years ago

76 Replies

Looking for piece of evidence on falling levels

Hello lovely knowledgeable people, I've been so grateful for the support on this site. I am having one last try at getting my injections reinstated (stopped...

Hello lovely knowledgeable people, I've been so grateful for the support on this...

Vickymoonpixie

•5 years ago

6 Replies

MRI of spine

Hello everyone, I recently had an appt with a rhumotologist due to the pains I suffer from. I have PA with severe digestive issues including chronic gastritis...

Hello everyone, I recently had an appt with a rhumotologist due to the pains I s...

expatkerry

•5 years ago

10 Replies

Help with blood results please

Please can someone help with my latest blood results please, i am awaiting results for instrisic factor and parratel cells tests! I feel awful ive laid on sofa...

Please can someone help with my latest blood results please, i am awaiting resul...

Padeficiant12

•5 years ago

7 Replies

Help

I have not written in awhile. Need some advice. My daughter is 26 years old and is Autistic/ has OCD and panic/anxiety disorder. In 2015 she was diagnosed...

I have not written in awhile. Need some advice. My daughter is 26 years old and ...

Lorstor

•5 years ago

7 Replies

Just joined and starting a new learning process.

Good day to everybody, I'm rather old for this electronic communication stuff, but I'll do my best !! I had a serious fall in September 2017, in which I...

Good day to everybody, I'm rather old for this electronic communication stuff, b...

Oldtroutfisher

•5 years ago

3 Replies

Skin condition

I had injections for b12 def for 2 weeks, this was completed about a month ago. Since having the injections my skin on my face has changed. Skin peeling,...

I had injections for b12 def for 2 weeks, this was completed about a month ago. ...

Lily2013

•5 years ago

6 Replies

Reputable sites for needles etc ship to usa

Hi I have my b12 vials I have brought from the UK. I am staying long term in the USA and I have no idea where to get my needles and syringes from. Some on...

Hi I have my b12 vials I have brought from the UK. I am staying long term in the...

B12inUsa

•5 years ago

8 Replies

Update

I've now seen an eye specialist. The good news is my eyes are healthy . I was worried about optic nerve damage. I do continue to have bad light sensitivity....

I've now seen an eye specialist. The good news is my eyes are healthy . I was w...

Nackapan

•5 years ago

6 Replies

Cold sensation in the chest

Hi At this time I am self diagnosed as B12 deficient and injecting in the process of giving myself loading injections of cyanocobalamin, 5 injections in and so...

Hi At this time I am self diagnosed as B12 deficient and injecting in the proces...

No_fixed_abode

•5 years ago

4 Replies

Leg weakness?

I have had my loading dose and am six months into treatment but I am noticing I have fits and spurts of my legs not quite doing what I want them to do. I have...

I have had my loading dose and am six months into treatment but I am noticing I ...

Creationa

•5 years ago

6 Replies

After a B12 IM injection how long should I leave it before having a blood test that would give a reliable reading for B12.

Having conflicting treatment from different doctors at our GP practice that is seeing lots of changes of personnel. Had 6 loading and 1 maintenance injections...

Having conflicting treatment from different doctors at our GP practice that is s...

wrengh

•5 years ago

1 Reply

B12 deficiency myelin sheath

Hi All Reading the posts on here and reading about b12 deficiency across articles on the internet two consequences of b12 deficiency arise on a regular basis:...

Hi All Reading the posts on here and reading about b12 deficiency across article...

Alfabeta

•5 years ago

26 Replies

Itchy scalp and anxiety

Good morning. Hope everyone is well. Just a quick question, please. I've been SI from the beginning of December every other day. I have noticed improvements...

Good morning. Hope everyone is well. Just a quick question, please. I've been S...

Gumball77

•5 years ago

1 Reply

Different types of B12

My body doesn’t seem to be absorbing the hydroxycobalamin injections I am receiving and I am wondering if methylcobalamin injections would suit me better. The...

My body doesn’t seem to be absorbing the hydroxycobalamin injections I am receiv...

Firefly43

•5 years ago

4 Replies

Vitamin Deficiencies and Peripheral Neuropathy

Hi there! I feel like collapsing writing this. I'm 18 years old. Initially I was on a diet plan to reduce my weight. Then after one month I had pain in my...

Hi there! I feel like collapsing writing this. I'm 18 years old. Initially I wa...

RitikKumar1818

•5 years ago

16 Replies

Active B12 levels

Hi I’ve recently received some blood results and was after some advice. My active B12 says >128 with the reference range being >35. My question is if it says...

Hi I’ve recently received some blood results and was after some advice. My acti...

Teegan86

•5 years ago

3 Replies

I am confused about Methylcobalamin and it’s conversion

I am taking Methylcobalamin and supplementing with adenosylcobalamin . I keep reading that Methylcobalamin converts into adenosylcobalamin but I also see lots...

I am taking Methylcobalamin and supplementing with adenosylcobalamin . I keep re...

Freezeframe

•5 years ago

6 Replies

Hot feet!

Does anyone else have ridiculously hot feet with PA? I find it really hard to sleep. Does anyone have any remedies or know how to stop it. It’s driving me...

Does anyone else have ridiculously hot feet with PA? I find it really hard to sl...

carolinegigg

•5 years ago

10 Replies

Does anybody get dizzy and off balance when trying different medications and supplements for B12 deficiency? Is that normal with PA?

Hello, I notice that i get dizzy and off balance from trying certain supplements and/or medication since this started with the b 12 deficiency or pernicious...

Hello, I notice that i get dizzy and off balance from trying certain supplements...

MelanieV

•5 years ago

4 Replies

SCARED with MRI results

Didn’t really know where to post but here since my other posts are here. Have vitamin D and B12 deficiencies and just got brain MRI results back. The nurse...

Didn’t really know where to post but here since my other posts are here. Have vi...

dingusgirl

•5 years ago

3 Replies

Symptoms or side effects of the injections?

Hi folks. I’m a bit confused as the possible side effects of injections seem very similar to me to the original symptoms of deficiency - e.g. pins and needles,...

Hi folks. I’m a bit confused as the possible side effects of injections seem ver...

Dragonwalker

•5 years ago

4 Replies

I saw this article about folate today and thought it was interesting.

The headline reads: Upper limit for intake of folate is invalid https://www.sciencedaily.com/releases/2018/01/180131085830.htm

The headline reads: Upper limit for intake of folate is invalid https://www.sci...

MoKayD

•5 years ago

1 Reply

Searching for a diagnosis (DESPERATELY) Please helpppp.... Is B12 deficiency / PA possible with these blood tests??? NEW HERE

Hi All, I’m new on here and can’t believe just how brilliant this forum is so thanks for having me!!! (Apologies for the lengthy post). I am a 29-year-old...

Hi All, I’m new on here and can’t believe just how brilliant this forum is so t...

Health1989

•5 years ago

27 Replies

Chronic Fatigue - B12 Injection and IV Iron Infusion

So first of all, here were my latest numbers: Ferritin 14 (Low) Iron 135 Unsaturated IBC 106 (low) Calculated IBC 241 (low) % Iron Sat 56 (High) Homocysteine......

So first of all, here were my latest numbers: Ferritin 14 (Low) Iron 135 Unsatur...

nhostetler

•5 years ago

5 Replies

Pernicious Anaemia ?

Hieveryone,hoping for some sound advice on here as i keep reading conflicting opinions and i'm just totally confused and need direction. I will give you brief...

Hieveryone,hoping for some sound advice on here as i keep reading conflicting op...

Debzeewestmids

•5 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

B12 re-test after shots

Therapeutic dose of B 12

Travel insurance

Successful outcome

Unco-operative GPs.

Looking for piece of evidence on falling levels

MRI of spine

Help with blood results please

Help

Just joined and starting a new learning process.

Skin condition

Reputable sites for needles etc ship to usa

Update

Cold sensation in the chest

Leg weakness?

After a B12 IM injection how long should I leave it before having a blood test that would give a reliable reading for B12.

B12 deficiency myelin sheath

Itchy scalp and anxiety

Different types of B12

Vitamin Deficiencies and Peripheral Neuropathy

Active B12 levels

I am confused about Methylcobalamin and it’s conversion

Hot feet!

Does anybody get dizzy and off balance when trying different medications and supplements for B12 deficiency? Is that normal with PA?

SCARED with MRI results

Symptoms or side effects of the injections?

I saw this article about folate today and thought it was interesting.

Searching for a diagnosis (DESPERATELY) Please helpppp.... Is B12 deficiency / PA possible with these blood tests??? NEW HERE

Chronic Fatigue - B12 Injection and IV Iron Infusion

Pernicious Anaemia ?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive