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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2018

GP Success: 12 weekly injections now 8 weekly

Following the excellent guidance on this site and the link to the revised guidance from the British National Formulary [BNF] recommending a change from 'every...

Following the excellent guidance on this site and the link to the revised guidan...

swimfitswim

•5 years ago

4 Replies

Hi has anyone had optic nerve damage with there B12 defiency? Thanks

First time poster all new to me , having B12 neuro symptoms and need some advice thanks

First time poster all new to me , having B12 neuro symptoms and need some advice...

Antstarr

•5 years ago

33 Replies

Methylcalibin

Where can we buy bonafidi methylcalibin injection files from?

Jillbaby

•5 years ago

2 Replies

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Loss of b12 after dental surgery

I read a medical journal over dental surgery due to me having the whole top teeth took and found cysts during time i was given the anathstetic wer ur not...

I read a medical journal over dental surgery due to me having the whole top teet...

Leigh6873

•5 years ago

1 Reply

Central nervous system

Can B12 deficiency cause demyelination of the central nervous system or is it isolated to your peripheral nerves?

Can B12 deficiency cause demyelination of the central nervous system or is it is...

toph

•5 years ago

4 Replies

Got the shots down to 10 weeks from 12 with GP, still massively struggling! Should I self-inject?

Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intrinsic factor over a year ago and was given the loading shots and then put on a...

Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intr...

trevthedog

•5 years ago

4 Replies

Light sensitivity

Still a big problem. Can't tolerate artificial full lighting products any TV. Also noise sensitive too. I've had my eyes checked (previous post) so assume...

Still a big problem. Can't tolerate artificial full lighting products any TV. A...

Nackapan

•5 years ago

4 Replies

More symptoms after B-vitamin injections (Intestinal noises and rumbling)

Hello everyone. I have a few new symptoms after the injections, the weirdest one being intestinal. I am experiencing a lot of rumbling and noise. I do...

Hello everyone. I have a few new symptoms after the injections, the weirdest one...

Hidden

•5 years ago

13 Replies

Private GP for B12 in West Mids

Hi, I am looking for a private GP who can provide treatment for B12 and folate deficiency and investigate the underlying cause. I'm in the West Midlands. Any...

Hi, I am looking for a private GP who can provide treatment for B12 and folate d...

Sherbet_Lemon

•5 years ago

1 Reply

PA and B1 deficiency?

Hi. I have been diagnosed with PA. I self IM with B12, but it does not seem to be working as well as I had hoped? Does anyone know the association with PA also...

Hi. I have been diagnosed with PA. I self IM with B12, but it does not seem to b...

patez

•5 years ago

13 Replies

Festive Greetings

🔔🎄My best wishes to all you of you,where ever you are! Thank you for being supportive and sharing good advice. I had my jab 2 days ago and start feeling the...

🔔🎄My best wishes to all you of you,where ever you are! Thank you for being sup...

ACritical

•5 years ago

2 Replies

Where can I get B12 injection or shots from please

I do get B12 injections only once every 6 months but the change in memory behaviour etc is considerable so I would like to get them more often. GP not...

I do get B12 injections only once every 6 months but the change in memory behavi...

Susiejayne

•5 years ago

3 Replies

Why you get worse before getting better after B12 shot.

Many people on this forum have said that B12 injections made their symptoms worse. Neuropathy became exacerbated. To understand why this happens, we have to go...

Many people on this forum have said that B12 injections made their symptoms wors...

Hidden

•5 years ago

12 Replies

Christmas

Hi Everybody Just wanted to wish you all a very Happy Christmas and hopefully a healthy New Year Thank you to everyone on here for their help and support over...

Hi Everybody Just wanted to wish you all a very Happy Christmas and hopefully a ...

pitney

•5 years ago

9 Replies

Good news

Optician says my eyes are healthy. ...phew. since B12 deficiency my brain just doesn't /can't do the extra work. I used to always have to wear 3 steps below my...

Optician says my eyes are healthy. ...phew. since B12 deficiency my brain just d...

Nackapan

•5 years ago

3 Replies

EBV protocol

I’ve mentioned in previous posts about having issues with paranoia and irritation and ocd I believe as well. Some other symptoms are being highly emotional and...

I’ve mentioned in previous posts about having issues with paranoia and irritatio...

JennaShi

•5 years ago

7 Replies

Could B12 be my problem? Please help

Hi everyone, I haven’t had tests for PA but after a lot of research, doctors visits and tests, Im thinking b12 could be why I feel so terrible. I’ve felt...

Hi everyone, I haven’t had tests for PA but after a lot of research, doctors v...

Amber83

•5 years ago

4 Replies

Letter in New Scientist

A letter in New Scientist correcting some misinformation about B12. It’s probably for subscribers only - Writing about diet supplements, Linda Geddes says...

A letter in New Scientist correcting some misinformation about B12. It’s probabl...

fbirder

•5 years ago

6 Replies

Alcohol and b12?

Hello all. I have had b12 symptoms for the past few months and I have finally ordered an active b12 test from Medichecks which I will do in the new year. I...

Hello all. I have had b12 symptoms for the past few months and I have finally or...

WilfriedZaha

•5 years ago

4 Replies

B12 shots frequency

I am b12 deficient. Is there a limit on the number of b12 shits that can be taken? Its been a month since I have been taking B12 shots twice a week. The...

I am b12 deficient. Is there a limit on the number of b12 shits that can be take...

andy109

•5 years ago

1 Reply

Gastritis confusion

I was diagnosed with gastritis via endoscopy a week ago. Waiting for biopsy results but dr said it didnt look too bad in there. He prescribed me omeperazole...

I was diagnosed with gastritis via endoscopy a week ago. Waiting for biopsy res...

shaylynn

•5 years ago

8 Replies

Worn out

Hi So today I have been feeling so sick. While waiting on my time to get Reflexology. My abdominal started girlgiling (making noise) along with my lower back...

Hi So today I have been feeling so sick. While waiting on my time to get Reflexo...

SufferOne

•5 years ago

2 Replies

Guillain Barre syndrome

Hi all I am having a very bad day. I just read about Guillain Barre syndrome and am now worried that I may have that. I have had tons of blood tests, do have...

Hi all I am having a very bad day. I just read about Guillain Barre syndrome an...

Sita505USA

•5 years ago

41 Replies

Malabsorption

What to do if my body is not absorbing nutrients from food. I'm taking nutrients shakes but haven't seen any turning point.I'm feeling so depressed with all...

What to do if my body is not absorbing nutrients from food. I'm taking nutrients...

SufferOne

•5 years ago

18 Replies

B12 my kind organics

Bought some of this that is 500mcg. Do you just spray it on or under your tongue? Doesn't actually say Have brought forward first maintenence b12 injection to...

Bought some of this that is 500mcg. Do you just spray it on or under your tongue...

Nackapan

•5 years ago

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thyroid and b12 and folate

Has anyone seen a positive effect on their b12 and folate since first staring thyroxine meds’. i’ve bee deficient in both for years on injections and daily...

Has anyone seen a positive effect on their b12 and folate since first staring th...

WeeB

•5 years ago

1 Reply

Blood tests advice please

Hi I recently had blood tests repeated after dr has withdrew my injections (last one was in September) and went back complaining symptoms returning although...

Hi I recently had blood tests repeated after dr has withdrew my injections (last...

joleen19832

•5 years ago

5 Replies

Pentoprazole 40mg oral enteric coated tablet

Hi everyone, So I have Pentoprazole 40mg prescribed. Has anyone been on this medication and does it helps? What's the side effect?

Hi everyone, So I have Pentoprazole 40mg prescribed. Has anyone been on this med...

SufferOne

•5 years ago

8 Replies

B12 shots

Is it safe to take B12 shots twice a week? My deficiency symptoms seems to reappear a few days after I have taken a shot.

Is it safe to take B12 shots twice a week? My deficiency symptoms seems to reapp...

andy109

•5 years ago

10 Replies

Eyes

Has anyone tried taking lutin and zeaxanthin for light sensitivity. Or other vits?

Has anyone tried taking lutin and zeaxanthin for light sensitivity. Or other vi...

Nackapan

•5 years ago

13 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2018

GP Success: 12 weekly injections now 8 weekly

Hi has anyone had optic nerve damage with there B12 defiency? Thanks

Methylcalibin

Loss of b12 after dental surgery

Central nervous system

Got the shots down to 10 weeks from 12 with GP, still massively struggling! Should I self-inject?

Light sensitivity

More symptoms after B-vitamin injections (Intestinal noises and rumbling)

Private GP for B12 in West Mids

PA and B1 deficiency?

Festive Greetings

Where can I get B12 injection or shots from please

Why you get worse before getting better after B12 shot.

Christmas

Good news

EBV protocol

Could B12 be my problem? Please help

Letter in New Scientist

Alcohol and b12?

B12 shots frequency

Gastritis confusion

Worn out

Guillain Barre syndrome

Malabsorption

B12 my kind organics

thyroid and b12 and folate

Blood tests advice please

Pentoprazole 40mg oral enteric coated tablet

B12 shots

Eyes

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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