EBV protocol: I’ve mentioned in... - Pernicious Anaemi...

Pernicious Anaemia Society
22,400 members15,816 posts

EBV protocol

JennaShi
JennaShi

I’ve mentioned in previous posts about having issues with paranoia and irritation and ocd I believe as well. Some other symptoms are being highly emotional and sensitive (breaking down crying) thinking that people’s emotions or emotional response towards me are fake as well as my own emotional response and both deemed un trust worthy.

These things are extremely private to me andvery sensitve information so please kind if you plan on writing a response or please keep scrolling. I write these things because I know I am not alone in what I am going theough or perhaps it might bring relief to someone else or shed some light for me or them for present or past experience. I am also writing this because this past Friday I actually felt normal and it was amazing! I didnt feel all anxious, paranoid, depressed and overly emotional with distorted cognitive thinking and today seems to so far to be the same. I actually feel joy and human and feel like I can/ desire to be near people again.

But somehow my monthly period got heavy again (sorry for too much info) and usually the maca helps slow it down or had in the past so I’m not sure what is doing this. I eat meat and veggies every day for iron.

What changed: I am not sure, but I started doing a Epstein Barr Protocol with quite a few things as well as drink almond milk with collagen protein powder and small amount of maca and carob. So yet again its hards to know which one thing (or more) is making a difference but it brings up the question: are my symptoms due to a chemical in balance in which the maca is helping or is it due to the EBV? I think i could probably eliminate the maca and find out if things change. I havent taken the maca yet or the supplements but I have been taking the supplements for two or 3 days now so I am wondering but thankful!

Has anyone heard of this? Having psychiatric symptoms due to EBV or perhaps corrected when ebv was corrected/ or healing by maca?

I feel like could be across the board and not just in PA group but I can only choose one forum to share it in.

Also for those that commented on my last one thank you for sharing, for some reason I couldnt comment back and wasnt sure why.

#infectious disease #maca #hashimotos #Autoimmunegastritis

12 Replies
oldestnewest

Sorry you are so uo and down. Perhaps keep a diary of all you eating. How well you sleep. The stage of your menstrual cycle. Any more details you feel relevant to your day.

Hope this will help to see if any patterns emerging.

I wish you a peaceful Christmas

JennaShi
JennaShi
in reply to Nackapan

Thats a great idea thank you and Merry Christmas to you as well!

Hi JennaShi

I don't know if this will be any help but . . . . .

When I was having to miss my B12 injections I used to cry for no reason (it wasn't for attention as I never cried in front of anyone.) Now I never miss any injections and am my usual fairly cheerful self.. . . . . Do you need more B12. If you are only supplementing do you need injections.

Re "paranoia and irritation" . . . . .I was given a different antibiotic recently, and had a bad reaction. While waiting to see the GP to ask him to stop it I shouted at two children who were behaving badly (and very nearly shouted at the mother to get off her ruddy phone and see to her children. They weren't tiny tots, but 8/9 year olds) I also told/shouted at the GP that I had been at his ruddy surgery for 45 years. It took a week or so, when the antibiotic was changed, to get back to normal.

. . . . . . Could a medicine or supplement you are taking cause your reaction, as did mine. Sometimes, I'm told, the fillers in tablets can cause bad reactions.

Good luck with sorting it out and I hope you have a happy holiday.

JennaShi
JennaShi
in reply to beginner1

Wow, thank you for sharing, i found this to be helpful! I cant imagine how you must’ve felt at that time what was your b12 level at then, do you remember? When you get your b12 blood test, what level have you found to be your optimal spot? I do have crying spells as welI and have wondered why, perhaps this could be why for me as well. I have been in the 400s and last few showed 600s but havent recently tested and was supplementing with a whole food gluten free supplement.

beginner1
beginner1
in reply to JennaShi

When I was first diagnosed B12 103 < 180-1000 GP said " It's not very low" ! Thank goodness I found this site.

I think the crying is a symptom of not enough B12

I don't know what the numbers were when it was tested recently, just a lot of red numbers. I don't really care even if in the millions she should not have tested me and I did tell the GP that. But I see a very good private one for B12 and also self inject so the NHS GP can't do anything about it.

One way or another I get an injection every day apart from a few odd days when I rebel. I am hoping that the sub acute degeneration of the cord will heal if it gets enough B12 thrown at it.

JennaShi
JennaShi
in reply to beginner1

Wow, that was really low! I am also glad that you found this sight and are injecting yourself as well. Why shouldnt she have tested you? Dont you want to know if its helping? Are you feeling any different or better? I hope to get B12 tested again soon (i had stopped b12 supplement for ebv supplements) to see where I am at. Have you tested for IF?

beginner1
beginner1
in reply to JennaShi

The test won't show if it is helping, only the symptoms will show if it is helping. Hence "go by the symptoms , not by the numbers. The numbers only show what is in the blood not what is in the cells where it is needed.

Re the IF test - if it tests positive for PA, - you have PA - but it also misses 40% - 50% of people with PA. Martyn Hooper was tested 3 times before testing positive. Unfortunately neither test is very good.

JennaShi
JennaShi
in reply to beginner1

That makes sense, and I’ve heard that being said before, however I wonder though, how do you get a doctors approval on month b12 injections if he or she doesnt have enough proof (if they dont understand you can be deficient while range) to prove that you have PA or b12 deficiency? Can they diagnose you on symptoms alone?

beginner1
beginner1
in reply to JennaShi

I was well below range and had severe neurological symptoms and couldn't get treatment after the 5 loading injections. Heaven help the poor victims who are in range but also ill.

JennaShi
JennaShi
in reply to beginner1

This is why I ask as I am in the second position you have mentioned with previous lab tests. Do you know if one can obtain injectible b12 without a prescription?

beginner1
beginner1
in reply to JennaShi

In the UK those of us who can't get enough treatment self inject, many of us getting our B12 supplies from Germany.

There are several knowledgeable people from the USA ,on here, who could advise you. I suggest you start a new post putting USA in the title and I'm sure will get the information you need.

Have you had any B12 injections yet, the first one needs to be somewhere where medical help can be given if you have a bad reaction (very rare.)

JennaShi
JennaShi
in reply to beginner1

Thats good that you are able to get a steady supply from a reliable source. I will do this thank you and no, not yet. i have just started looking into this issue and so it might be a while before I get my first injection. I get the impression my primary isnt too fond of me so I may need to start elsewhere with a new primary doctor.. ☹️

You may also like...