I am having a very bad day. I just read about Guillain Barre syndrome and am now worried that I may have that. I have had tons of blood tests, do have iron deficiency anemia, feel that I have a B12 deficiency because I had been supplementing with B12 orally for years and I still came up with a 472 B12 (200-900).
I have had MRIs of my entire spinal cord and two of my brain. Have had CTs of my neck, brain and abdominal area. I have tested negative for autoimmune disorders on blood tests, but persist with peripheral neuropathy and weakness in my legs, sometimes arms, vision problems, bowel and bladder lack of sensation, balance problems, fatigue, shortness of breath, periodic heart palpitations, nausea and gagging, brain fog, anxiety. I have self injected cyanocobalamin every other day for about nine months now, but am just blindly struggling to try to figure out supplementing with iron and Folate. My doctors don't deal with nutrition at all.
Because I have iron deficiency anemia and have had several stomach surgeries, PA seems like a realistic diagnosis, but when I hear of other possible diagnoses, I panic.
Because of the body wise lack of sensation that I experience, it is hard to tell if I am getting better or worse. I have just started using HCL with Pepsin and digestive enzymes. I thought that B12 injections would immediately cure me and they have not. Any assurances would be most welcome.
Many thanks, Sita