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Pernicious Anaemia Society

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Shellbes profile image
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Hi can anyone tell me when I can bye my own b12 injections . I have them at my gps every 12weeks but still feel awful tried, moody , ? Please can anyone help x

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Shellbes
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fbirder profile image
fbirder

Try this thread...

healthunlocked.com/pasoc/po...

kat902 profile image
kat902

Hey, I don't know where you can buy them but when they were determining if my depression was linked to my B12 deficiency they upped my doses to every 8 weeks and it really helped with the tiredness and irritation. You can ask them to do that for a while - it's a legitimate request.

Sleepybunny profile image
Sleepybunny

Hi,

In UK, people with B12 deficiency with neurological symptoms are supposed to have B12 jabs every 2 months.

Do you have any neurological symptoms?

B12 Deficiency Symptoms

pernicious-anaemia-society....

b12deficiency.info/signs-an...

UK B12 documents

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

Flowchart from BSH Cobalamin and Folate Guidelines

stichtingb12tekort.nl/weten...

BMJ B12 article

bmj.com/content/349/bmj.g5226

BNF

bnf.nice.org.uk/drug/hydrox...

NICE CKS

cks.nice.org.uk/anaemia-b12...

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

You mentioned on your other thread that you have a diagnosis of PA (Pernicious Anaemia).

Have you considered joining and talking to PAS? Costs £20 for a year's basic membership. There may be a PAS support group close to you.

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Offers support and info about PA.

pernicious-anaemia-society....

PAS tel no +44 (0)1656 769717 answerphone

PAS support groups in UK

pernicious-anaemia-society....

B12 Deficiency Info website

b12deficiency.info/

B12d.org

b12d.org/

UK B12 Blogs

Martyn Hooper's blog about PA

martynhooper.com/

B12 Deficiency Info blog

b12deficiency.info/blog/

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

CAB NHS Complaints

citizensadvice.org.uk/healt...

HDA patient care trust

UK charity that offers free second opinions on medical diagnoses and medical treatment.

hdapatientcaretrust.com/

I am not medically trained.

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