After 2 months

[Dadvatar]

So my daughter has been on Hydroxy Cobalamin jabs for 2 months. Currently on one a week. The improvement has been good even though we have had trouble distinguishing between symptoms of low B12 and hormonal teenage behaviour.

She is taking all the related supplements and also I got her to finish off the sublingual methyl cobalamin as they were expensive and I don’t like waste (or just tight as my wife says)

She ran out of the methyl cobalamin 3 weeks ago and within a few days she went pale in the face, withdrawn and tired again. This was the only change I can identify. So I got some more and started her on them a few days ago and the improvement is fantastic.

Can this be explained by anyone or is it just a coincidence ?

I’ve tried to do bit of research and the only thing that I can find is something to do with methylation, but the sites that mention this also promote snake oils and voodoo dolls as a cure for everything.

Would it be worth trying methyl cobalamin jabs or methylfolate?

Any help appreciated

[Polaris]

I'm so glad your daughter is improving generally Dadvatar.

Sally Pacholok recommends supplementing as well as injections and I notice a difference when adding a B12 Methylcobalamin sublingual as well as injecting. The other nutritional supplements can be important as these may not be absorbed either.

It could be just a question of getting enough B12 in the system initially, especially as your daughter is athletic. Many of us on th forum find overdoing exercise or feeling stressed can set things back.

Methylfolate is recommended by Dr Isabella Wentz, pharmacist and thyroid specialist, for those with the MTHFR gene though I, personally, prefer to have plenty of leafy greens, etc.

[clivealive Forum Support]

Is your daughter still getting hydroxocobamalin injections every week and was she supplementing with methylcobamalin sublinguals in between at the same time?

From what you describe, how quickly some symptoms recurred after she "ran out" of the tablets, she either needs more frequent injections of to have continued with the tablets.

As to the expense I don't know the costs but I think you might find cyanocobamalin tablets cheaper.

Replacement of B12 is not an overnight cure and it is not uncommon for some symptoms to appear to get worse before they get better as the B12 you are having starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery.

Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

I am not a medically trained person but I've had Pernicious Anaemia (a form of B12 deficiency) for more than 46 years.

I wish you and your daughter well.

[Dadvatar in reply to clivealive]

She is getting hydroxy cobalamin jabs every week. She takes methly cobalamin every day. There is also cyan cobalamin in her multi vit. She also takes folic acid, vitD3, vitK2 iron, a little potassium and fish oil. The only change was the methyl cobalamin which I thought she didn’t need, but she is back on now.

Money isn’t an issue when it comes to her health although I do begrudge paying my national insurance to the cartel.

[fbirder]

I would try the methylfolate. It can’t do any harm and it’s not a lot more expensive than folic acid.