Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2018

Low ferritin

hi just to give a brief background, i have suffered from several terrible symptoms since my son was born 20 months ago. he is the youngest of 4 children i have...

hi just to give a brief background, i have suffered from several terrible sympto...

OnePlusThree

•6 years ago

2 Replies

GP tomorrow re blood results

I have an appt with my GP tomorrow to discuss my blood results. Would anyone have any advice regarding my results that I could bring up with the GP that might...

I have an appt with my GP tomorrow to discuss my blood results. Would anyone hav...

Maggie333

•6 years ago

1 Reply

Anaesthetic & Antibiotics

I was diagnosed with b12 deficiency 2.5 years ago and after the initial loading shots I have been getting monthly shots privately. During this time I have had...

I was diagnosed with b12 deficiency 2.5 years ago and after the initial loading ...

LWhelan

•6 years ago

3 Replies

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How often do I inject?

Did 10 ml yesterday, symptoms flaring up again. 1 ml every other day, until they're under control? * Now know 1 ml is standard Thank you.

Did 10 ml yesterday, symptoms flaring up again. 1 ml every other day, until they...

Fl17

•6 years ago

13 Replies

How much B12 supplements?

Just brought some b12 supplements today as my b12 levels go up & way down low yet still feel tired, aching & generally feel like crap ever since I went to the...

Just brought some b12 supplements today as my b12 levels go up & way down low ye...

mand82

•6 years ago

2 Replies

I now don’t know where to turn !!

In short, I’ve had low b12 for over two year, yesterday I had a meeting with my gp re them refusing to giving me b12 injections, I pointed out that by refusing...

In short, I’ve had low b12 for over two year, yesterday I had a meeting with my ...

Hidden

•6 years ago

14 Replies

Emotional problems

Hallo Does anyone has gotcemotional problems? I'm getting very irritated at people and things and read that it is also a symptom. Little people tram here wrote...

Hallo Does anyone has gotcemotional problems? I'm getting very irritated at peop...

Ela1

•6 years ago

6 Replies

Large bottles of B12 to make injections easier

Does anybody know where I can buy larger quantities of B12 whilst looking on YouTube to discover where to inject I saw there were lots of Americans with videos...

Does anybody know where I can buy larger quantities of B12 whilst looking on You...

toph

•6 years ago

2 Replies

Newly diagnosed - should there be referral to haematologist?

Hi all, my sister is newly diagnosed with B12 deficiency and had the antibody testing for PA which she was told was a 'weak positive' (unsure what this means)...

Hi all, my sister is newly diagnosed with B12 deficiency and had the antibody te...

Stumpyaura

•6 years ago

5 Replies

Feel amazing! Had my first B12 injection. Took whole 10 ml bottle, also had 20000 mcg of sublinguals, folate, mct oil,+ cardamom beforehand.

Guess I got excited? Took whole bottle. Guess if your symptoms are bad, injections are the way to go. Came across PA Society post about injections vs other...

Guess I got excited? Took whole bottle. Guess if your symptoms are bad, injecti...

Fl17

•6 years ago

13 Replies

Could it be low B12 again?

Background info: 20, F, 167cm, ~65kg, citalopram 40mg for anxiety and Clenil modulite 2x daily for asthma, Nexplanon implant, non-smoker, occasional alcohol,...

Background info: 20, F, 167cm, ~65kg, citalopram 40mg for anxiety and Clenil mod...

x_dancer_x

•6 years ago

6 Replies

How much can I inject? The whole vile? 10 000 mcg.

Thank you ox

Fl17

•6 years ago

19 Replies

Does anyone here self- inject? Is it easy, dangerous? Ty.

Can you?

Fl17

•6 years ago

7 Replies

Unpleasant reaction to B12 spray?

Last night I tried the Better You B12 Spray – I used the recommended dosage, which is 4 sprays, which gives 1200ug of B12 (I realise you don’t absorb quite all...

Last night I tried the Better You B12 Spray – I used the recommended dosage, whi...

petal02

•6 years ago

8 Replies

Resistance - Anyone else have trouble injecting?

Sometime when I SI I just can't seem to get the plunger to go down. It's like their is some real resistance stopping the liquid leaving the needle. I have...

Sometime when I SI I just can't seem to get the plunger to go down. It's like th...

Acdoore1981

•6 years ago

8 Replies

B12 balance

I read Clive Alive’s Response yesterday where he listed b12 symptims one of which was the inability to stand on one foot with ones eyes closed. I tried doing...

I read Clive Alive’s Response yesterday where he listed b12 symptims one of whic...

Alfabeta

•6 years ago

11 Replies

Spasms of Trunk Muscles

I have been self-injecting for about two years now with no particular result in regard to my neuropathy, which has spread from my legs and feet to my trunk....

I have been self-injecting for about two years now with no particular result in ...

gnnmi

•6 years ago

3 Replies

Having a lot of trouble with my feet, and walking. Feet cramp up and I get in a lot of pain with walking. Is this from b12 deficiency?

I was just diagnosed with b12 deficiency. My count was 120. The doctor said that was very low but I really don’t know much about it. About a month ago I...

I was just diagnosed with b12 deficiency. My count was 120. The doctor said that...

brittany0612

•6 years ago

6 Replies

High b12

I folks I have elevated B12 levels and neuropathy symptom...burning tingling in my legs. I was diagnosed with SIBO small intestinal bacterial overgrowth. I am...

I folks I have elevated B12 levels and neuropathy symptom...burning tingling in ...

Dancingdp

•6 years ago

14 Replies

Syringes and needles, I need help.

The doctor has told me to order 2ml syringes + 29 g needles x100 I cannot find 29g needles, is this maybe a typo on his part? Only my B12 brain is not...

The doctor has told me to order 2ml syringes + 29 g needles x100 I cannot find ...

Katherine1234

•6 years ago

4 Replies

Would amputation stop my pain. ( neuropathy and arthritis in both feet).

In on Long Tec 50mg 3 x day and gabapentin 400mg 3x day. And its getting worse. Im 53 and feel I can't live with the pain for another 25 years.

In on Long Tec 50mg 3 x day and gabapentin 400mg 3x day. And its getting worse. ...

annebalto

•6 years ago

5 Replies

Ordering Hydroxycobalamin, help please,

I have been advised by a doctor and B12org to get Hydroxycobalamin 1mg/1ml x100 to self inject from versandApo.de but it is in German and there looks like no...

I have been advised by a doctor and B12org to get Hydroxycobalamin 1mg/1ml x100...

Katherine1234

•6 years ago

19 Replies

EMG/Nerve Conduction Studies results for Pins & Needles

I went to the GP complaining about pins and needles in my feet and hoping for more frequent B12 injections. The surgery doesn't have anyone on 8 weeks or less...

I went to the GP complaining about pins and needles in my feet and hoping for mo...

carer999

•6 years ago

4 Replies

Cream for minor injection scars

I inject intramuscularly in my thigh and occasionally a puncture hole will develop a small scar which can take a week to heal. I inject once or twice day, so...

I inject intramuscularly in my thigh and occasionally a puncture hole will devel...

Cetus

•6 years ago

7 Replies

Life assurance

Hi has anyone had problems with obtaining life assurance with PA. they Are asking ridiculous questions and are now writing to my drs which is fine although god...

Hi has anyone had problems with obtaining life assurance with PA. they Are askin...

lifegems

•6 years ago

2 Replies

Leg pain

I was diagnosed with type 2 diabetes 4wks ago but the pain in my legsis sheer agony please help

I was diagnosed with type 2 diabetes 4wks ago but the pain in my legsis sheer ag...

Ann-e

•6 years ago

2 Replies

Ok, think I'm going to start injecting. How much, and how often? Been taking 20 000 mcg sublinguals daily, since Nov, still struggling.

Thank you kindly. ox

Fl17

•6 years ago

2 Replies

Vial Craft Project

Ever since I started getting single-dose vials of B12, I haven’t really known what to do with the empty vials. Considering that they cost almost ten times as...

Ever since I started getting single-dose vials of B12, I haven’t really known wh...

Galixie

•6 years ago

10 Replies

Going to the Doctors

I went to the Drs Three times in the last month explaining myself and my conditions I thought that I was doing OK even my wife who was with me at the time...

I went to the Drs Three times in the last month explaining myself and my conditi...

nobbyclarke74

•6 years ago

1 Reply

Neurology Appointment

I have an appointment date for neurology in Glasgow. I worry that things are not going to get any better. Depression and bitter anger are consuming my hopes...

I have an appointment date for neurology in Glasgow. I worry that things are no...

Panpal

•6 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

Low ferritin

GP tomorrow re blood results

Anaesthetic & Antibiotics

How often do I inject?

How much B12 supplements?

I now don’t know where to turn !!

Emotional problems

Large bottles of B12 to make injections easier

Newly diagnosed - should there be referral to haematologist?

Feel amazing! Had my first B12 injection. Took whole 10 ml bottle, also had 20000 mcg of sublinguals, folate, mct oil,+ cardamom beforehand.

Could it be low B12 again?

How much can I inject? The whole vile? 10 000 mcg.

Does anyone here self- inject? Is it easy, dangerous? Ty.

Unpleasant reaction to B12 spray?

Resistance - Anyone else have trouble injecting?

B12 balance

Spasms of Trunk Muscles

Having a lot of trouble with my feet, and walking. Feet cramp up and I get in a lot of pain with walking. Is this from b12 deficiency?

High b12

Syringes and needles, I need help.

Would amputation stop my pain. ( neuropathy and arthritis in both feet).

Ordering Hydroxycobalamin, help please,

EMG/Nerve Conduction Studies results for Pins & Needles

Cream for minor injection scars

Life assurance

Leg pain

Ok, think I'm going to start injecting. How much, and how often? Been taking 20 000 mcg sublinguals daily, since Nov, still struggling.

Vial Craft Project

Going to the Doctors

Neurology Appointment

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