Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for May 2018

New and confused

Hello everyone, I’ve been reading lots of posts here and found much of help, many thanks. I have recently had blood tests to discover why I had a set of...

Hello everyone, I’ve been reading lots of posts here and found much of help, man...

Cardigan167

•6 years ago

18 Replies

Active B12 tests

Hi, I cannot find which tests to have and where to order them from - to check active B12. I supplement and inject 'sometimes' (cyno and B complex) - cannot do...

Hi, I cannot find which tests to have and where to order them from - to check ac...

Slosh

•6 years ago

4 Replies

Low serum folate 4.2 ug/L how low is low? Folic acid and nose bleeds I feel so tired

Low serum folate 4.2 ug/L I’ve been given some folic acid I was given folic acid a few months ago and it made me have nose bleeds has this happened with anyone...

Low serum folate 4.2 ug/L I’ve been given some folic acid I was given folic acid...

GillyGangGong

•6 years ago

4 Replies

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Help with b12 and folate levels

This is my first time on this forum, I have hashimotos and PBC and recently my b12 and folate levels are not good and I’m wondering what could be the symptoms...

This is my first time on this forum, I have hashimotos and PBC and recently my b...

Gwelos

•6 years ago

5 Replies

Turmeric, cinnamon, and mct oil are helping me. B12 deficiency? brain impairment.

Lots of care to you. Ox

Fl17

•6 years ago

6 Replies

How much folic acid should I take with 20 000 mcg of B12? Please help.

Thank you. ox

Fl17

•6 years ago

8 Replies

B12 High or Low? Trouble Tolerating?

My name is Christine. I'm brand new to all of this. My 19-year old daughter Faith has very serious health issues, including low iron, low folate, and low B12....

My name is Christine. I'm brand new to all of this. My 19-year old daughter Fait...

pafamily

•6 years ago

9 Replies

Feel really unwell

Hi everyone. It's a long time since I was on here. Hope you are all getting on well. I wasn't too bad with the help of B12 patches until last week when I got...

Hi everyone. It's a long time since I was on here. Hope you are all getting on ...

Margaret-S

•6 years ago

17 Replies

Symptoms

I’m wondering if anybody gets the same symptoms as me. When I’m running low and need an injection or have just had one and waiting for it to take effect I find...

I’m wondering if anybody gets the same symptoms as me. When I’m running low and ...

Canarian

•6 years ago

13 Replies

What is neuropathy?

Hi I'm trying to get my jabs re-approved for 8 weekly after my doctor claims she didn't agree to then a year ago. Initially she outright refused but after...

Hi I'm trying to get my jabs re-approved for 8 weekly after my doctor claims she...

Clare184

•6 years ago

10 Replies

Omeprazole and Zantac

I started taking Omeprazole about 6 years ago for a slight hiatus hernia. After 4 years I was feeling very poorly and my hair was falling out, so the doctor...

I started taking Omeprazole about 6 years ago for a slight hiatus hernia. After ...

pom01326

•6 years ago

5 Replies

Do symptoms get worse when there is a big time gap with taking B12 and nutrients?

Guess this doesn't apply to injections as much. I mean within 24 hrs or so. 12 hrs? Thank you. ox

Guess this doesn't apply to injections as much. I mean within 24 hrs or so. 12 h...

Fl17

•6 years ago

Be the first to reply

Cardamom is helping, with brain issues and absorption. Perhaps one can drink more water too for similar or better results.

Wanted to share just in case it helps anyone. It helped in the past too, when was struggling a bit more. (Menstruating too.)

Wanted to share just in case it helps anyone. It helped in the past too, when wa...

Fl17

•6 years ago

Be the first to reply

Newbie needing some advice.

Hi, I have been lurking for a little while and can't believe how much I have learnt, but still need to learn more and need some help in understanding my most...

Hi, I have been lurking for a little while and can't believe how much I have lea...

jackery

•6 years ago

4 Replies

Hope I continue to heal. Brain seems more clear.

There is a slight fear I may go back, and new bad symptoms may emerge, but I think once you correct the health issue you can only go up, or stay healed. Just...

There is a slight fear I may go back, and new bad symptoms may emerge, but I thi...

Fl17

•6 years ago

2 Replies

Brain damage, cognition and comprehension issues, and memory loss. **Any suggestions?

Thank you.

Fl17

•6 years ago

Be the first to reply

Road to recovery

Hi All, I've been low on iron and B12 due to a vegan-ish diet for the past few years - I guess you can say I was somewhat malnourished. I've been suffering...

Hi All, I've been low on iron and B12 due to a vegan-ish diet for the past few y...

chappa

•6 years ago

4 Replies

Churchy 12

Sending pic of old results , hope they help . Good luck

Annnon58

•6 years ago

1 Reply

Blood Count Results

I’m 22. I had blood tests done in my last pregnancy in August, as they said I had oversized blood cells. I was B12 deficient in my last pregnancy, I had three...

I’m 22. I had blood tests done in my last pregnancy in August, as they said I ha...

katie111

•6 years ago

4 Replies

Low serum B12 level but top of the range Active B12 level.

Hi I have popped over from the thyroid forum and hope someone can help with my results. November 2017 my serum B12 level was 677 range 115 - 1000 In March 2018...

Hi I have popped over from the thyroid forum and hope someone can help with my r...

lucylocks

•6 years ago

9 Replies

ME/CFS or B12 Deficiency

Hi all I have been in very poor health for over a decade now and received a diagnosis of ME/CFS nearly three years ago. I have lost a career, friends and any...

Hi all I have been in very poor health for over a decade now and received a diag...

pgw1000

•6 years ago

9 Replies

Absorption issues?

Folks, I was detected as B12 deficient when I had burning sensation in my hands, arms and shoulder blades. Fortunately, my doctor asked me get my serum B12...

Folks, I was detected as B12 deficient when I had burning sensation in my hands,...

linkerror

•6 years ago

3 Replies

B12 injection privatly

My doctor abit of an arse.Before i moved was told b12 low my new doc refused do b12 bloods,he do folics but thats not full story.i want b12 done.i live in uk...

My doctor abit of an arse.Before i moved was told b12 low my new doc refused do ...

Ken-ard20

•6 years ago

4 Replies

Cyanocobamalin 1mg B12 Injections withdrawn by NHS?

I was diagnosed with Pernicious Anaemia in May 1972 forty-six years ago and put on cyanocobamalin injections every four weeks for the rest of my life. When...

I was diagnosed with Pernicious Anaemia in May 1972 forty-six years ago and put ...

clivealive

Forum Support•6 years ago

9 Replies

Upped B12 from 20 000 mcg to 30 000 mcg today, feel better. Sublinguals. Just took 4mg folic acid. No other vitamins/ minerals

Maybe taking more will help. Also ovulating/menstruating. Still not sure if pa or just b12 deficiency. Thank you Best wishes all.

Maybe taking more will help. Also ovulating/menstruating. Still not sure if pa o...

Fl17

•6 years ago

6 Replies

Taking more B12 to alleviate symptoms, and less folic acid. Please help.

Ive heard taking folic acid masks symptoms of b12 deficiency? Taking 4 mg? 4000 mcg? Of folic acid. Took another b12 and feel better. So, 25 000 mcg...

Ive heard taking folic acid masks symptoms of b12 deficiency? Taking 4 mg? 4000 ...

Fl17

•6 years ago

3 Replies

Ferrous Sulphate

Diagnosed Aneamic 13 weeks ago at 120 then went to 123 nit Anaemic Ferratin level at 12 so another 8 week course of ferratin Sulphate yuk. Now at 118 and...

Diagnosed Aneamic 13 weeks ago at 120 then went to 123 nit Anaemic Ferratin leve...

norwegianjock

•6 years ago

2 Replies

B12 deficient, follow up appointment

I went to the dr for an appointment/shot. She isn’t hearing anything I’m saying. She took me off the shot and gave me the sublingual films. Bc I told her after...

I went to the dr for an appointment/shot. She isn’t hearing anything I’m saying....

LilliRaindrop

•6 years ago

16 Replies

Has anyone else noticed this?

Someone mentioned to me yesterday that b12 defiency can cause the half moons your finger nails to disappear. I’d never heard of it so googled it and it seems...

Someone mentioned to me yesterday that b12 defiency can cause the half moons you...

Winterlight

•6 years ago

17 Replies

Existing PA and enlarged red blood cells

Hi all, Was diagnosed about 6 years ago and have been self injecting very 6 weeks, thanks to advice received on here, for about a year. Went back to the docs...

Hi all, Was diagnosed about 6 years ago and have been self injecting very 6 week...

gemssea

•6 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

New and confused

Active B12 tests

Low serum folate 4.2 ug/L how low is low? Folic acid and nose bleeds I feel so tired

Help with b12 and folate levels

Turmeric, cinnamon, and mct oil are helping me. B12 deficiency? brain impairment.

How much folic acid should I take with 20 000 mcg of B12? Please help.

B12 High or Low? Trouble Tolerating?

Feel really unwell

Symptoms

What is neuropathy?

Omeprazole and Zantac

Do symptoms get worse when there is a big time gap with taking B12 and nutrients?

Cardamom is helping, with brain issues and absorption. Perhaps one can drink more water too for similar or better results.

Newbie needing some advice.

Hope I continue to heal. Brain seems more clear.

Brain damage, cognition and comprehension issues, and memory loss. **Any suggestions?

Road to recovery

Churchy 12

Blood Count Results

Low serum B12 level but top of the range Active B12 level.

ME/CFS or B12 Deficiency

Absorption issues?

B12 injection privatly

Cyanocobamalin 1mg B12 Injections withdrawn by NHS?

Upped B12 from 20 000 mcg to 30 000 mcg today, feel better. Sublinguals. Just took 4mg folic acid. No other vitamins/ minerals

Taking more B12 to alleviate symptoms, and less folic acid. Please help.

Ferrous Sulphate

B12 deficient, follow up appointment

Has anyone else noticed this?

Existing PA and enlarged red blood cells

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