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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2018

Shaking and trembling

I am new to this site and hopefully someone can give me some clues. I am B12 deficient . My level is 172 that’s all I know. I am being tested for PA. I have...

I am new to this site and hopefully someone can give me some clues. I am B12 def...

Hidden

•6 years ago

8 Replies

Low B12 and idiopathic poly neuropathy

My B12 of 174ng/L was described as borderline by my GP back in December when I consulted him about my numb toes. Unfortunately, I then involved a private...

My B12 of 174ng/L was described as borderline by my GP back in December when I c...

ABC852031

•6 years ago

45 Replies

I am just getting over sepsis was in hospital 6 days pumping antibiotics into me and came out,with a 12 day supply of antibiotics

This has really floored me just want to sleep what affect will this have on B12 not due an injection for 3 weeks x

This has really floored me just want to sleep what affect will this have on B12 ...

lilly60

•6 years ago

2 Replies

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Has anyone else had peripheral neuropathy with high folate?

I have been having peripheral neuropathy for a few months now. My vitamin B12 has been in range, however my folate level is over twice the upper range of the...

I have been having peripheral neuropathy for a few months now. My vitamin B12 h...

mbernhardt

•6 years ago

11 Replies

Functional B12 Deficiency

Hi all I'm new to this group so I hope my questions are ok for this forum. I have been feeling very unwell for just over 4 months. the main symptom being...

Hi all I'm new to this group so I hope my questions are ok for this forum. I ha...

Kitti1

•6 years ago

21 Replies

Low B-12

Hi I have low B-12 , I’ve lost 3lbs since Monday without trying and I have megoblastic anemia is the weight loss normal I’m very worried.

Hi I have low B-12 , I’ve lost 3lbs since Monday without trying and I have mego...

Janeylou69

•6 years ago

19 Replies

What needles / syringes

Hi I've ordered the following but what needles / syringes do I need and where do I get them from I will be injecting into my arm as that's where my doctor...

Hi I've ordered the following but what needles / syringes do I need and where d...

HippyChick73

•6 years ago

6 Replies

Help Please. B12 deficiency peripheral neuropathy. Now nerve conduction report, small fibre neuropathy. Excruiting pain what will ease this.

Hello, I have not posted for a few months. Sorry if this sounds long winded but I really need help. B12 deficient diagnosed 2 years, 2 injections weekly. My...

Hello, I have not posted for a few months. Sorry if this sounds long winded but ...

potter5

•6 years ago

58 Replies

To many problems plus gaining weight

I’m a 51 year old woman and I have the following conditions: Lupus Chrons stomach ulcers Barrettes esophagus Pseroatic arthritis Brain tumor The brain...

I’m a 51 year old woman and I have the following conditions: Lupus Chrons stoma...

Sofia67

•6 years ago

11 Replies

Increasing to 8 weekly injections - would sublinguals help give me an additional boost?

I’ve posted before, my B12 levels are not remaining very high between my 12-weekly injections and the surgery have suggested increasing to 8 weekly. My last...

I’ve posted before, my B12 levels are not remaining very high between my 12-week...

petal02

•6 years ago

2 Replies

sorry to be fussing.....

After all my struggles to get b12 every two weeks I have another problem. Both my upper arms are so painful most of the time from having the injections. I...

After all my struggles to get b12 every two weeks I have another problem. Both ...

jillc39

•6 years ago

5 Replies

After my 7 page letter

After sending in a 7 page letter to GP regarding stopping my b12, I have had them reinstated, they are going to do the test for PA again and refer me back to...

After sending in a 7 page letter to GP regarding stopping my b12, I have had the...

alison687

•6 years ago

6 Replies

Acceptable Rise in B-12 Levels?

Good Day all. I am writing from Toronto, Canada. I was diagnosed with B-12 Deficiency on February 23rd. Levels were tested at 150. My issues began in...

Good Day all. I am writing from Toronto, Canada. I was diagnosed with B-12 Def...

elvistoronto1

•6 years ago

10 Replies

B12 Blood test taken without warning

Hello All, I received a text from my GP surgery asking me to attend an NHS healthcheck. I called the surgery to ask what it entailed and the Receptionist did...

Hello All, I received a text from my GP surgery asking me to attend an NHS healt...

HKAnne

•6 years ago

19 Replies

SIBO/ not SIBO ? Looking better, but still symptomatic

Here I am, as of today in my 60's, and still in Limboland. Finished with my antibiotics (and probiotics) for suspected SIBO - and looking undeniably...

Here I am, as of today in my 60's, and still in Limboland. Finished with my an...

Cherylclaire

Forum Support•6 years ago

19 Replies

Very low CORTISOL level

I have recently taken is saliva cortisol test and the results came back saying that I have very very low cortisol levels After I got the results immediately...

I have recently taken is saliva cortisol test and the results came back saying t...

toph

•6 years ago

5 Replies

Auto-Injectors... Advice Please

Hi there ☺... I've just received my Auto Injector from Denmark 🇩🇰 and was wondering if anyone on the forum has one?... Looking for the dos and don'ts.. Also...

Hi there ☺... I've just received my Auto Injector from Denmark 🇩🇰 and was wond...

Frances55

•6 years ago

15 Replies

Next Steps and Recovery Outlook

I was experiencing severe fatigue and occasional depression for maybe a couple years and eventually peripheral neuropathy (pins, needles in hands and legs, a...

I was experiencing severe fatigue and occasional depression for maybe a couple y...

AirAl

•6 years ago

29 Replies

Advice on Bloodwork - Low Folate

Suspect low T3 even though TSH and T4 in range (last test was 1.1 TSH 15 T4 same range, that was 4-5 weeks prior.) FULL THYROID BLOODS HAVE ALSO BEEN DONE,...

Suspect low T3 even though TSH and T4 in range (last test was 1.1 TSH 15 T4 same...

canyouhearmeaya

•6 years ago

5 Replies

B12 injections feeling swful

Recently found to have a B12 level of 117 prescribed 5 injections over 2 weeks ever since my second I have been feeling lightheaded dizzy nauseous wiped out...

Recently found to have a B12 level of 117 prescribed 5 injections over 2 weeks e...

Louiseengland1

•6 years ago

9 Replies

Elevated b12, getting nervous

Hello! I have been having difficulty focusing and so i wen to my pcp who ordered blood work. CBC came back with everything normal except my b12 was elevated -...

Hello! I have been having difficulty focusing and so i wen to my pcp who ordere...

Kesz226

•6 years ago

8 Replies

B12 rejuvenation for most neurological problems.

Hi all am a 55y old female live in Scotland and was a staff nurse for years, had to take early retirement due to a diagnosis of MS in November 2014. I have a...

Hi all am a 55y old female live in Scotland and was a staff nurse for years, had...

Margomck32

•6 years ago

34 Replies

Small red patch after B12 Methylcobalamin injection

Hi everyone I’ve been injecting b12 Methylcobalamin on the outside of my thigh for two weeks now using TERUMO AGANI NEEDLE 30G YELLOW X 0.5" X 100. I have...

Hi everyone I’ve been injecting b12 Methylcobalamin on the outside of my thigh f...

senriki

•6 years ago

2 Replies

Addisons Crisid

Hopefully this is acceptable to post. http://www.bbc.co.uk/news/uk-england-hereford-worcester-43953203

Hopefully this is acceptable to post. http://www.bbc.co.uk/news/uk-england-heref...

GGourmet

•6 years ago

1 Reply

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

Shaking and trembling

Low B12 and idiopathic poly neuropathy

I am just getting over sepsis was in hospital 6 days pumping antibiotics into me and came out,with a 12 day supply of antibiotics

Has anyone else had peripheral neuropathy with high folate?

Functional B12 Deficiency

Low B-12

What needles / syringes

Help Please. B12 deficiency peripheral neuropathy. Now nerve conduction report, small fibre neuropathy. Excruiting pain what will ease this.

To many problems plus gaining weight

Increasing to 8 weekly injections - would sublinguals help give me an additional boost?

sorry to be fussing.....

After my 7 page letter

Acceptable Rise in B-12 Levels?

B12 Blood test taken without warning

SIBO/ not SIBO ? Looking better, but still symptomatic

Very low CORTISOL level

Auto-Injectors... Advice Please

Next Steps and Recovery Outlook

Advice on Bloodwork - Low Folate

B12 injections feeling swful

Elevated b12, getting nervous

B12 rejuvenation for most neurological problems.

Small red patch after B12 Methylcobalamin injection

Addisons Crisid

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

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